Storing hydroxocobalamin

[Goaliegirl]

I have started self injecting thanks to all your help. I have just done my second one. Actually found this one more difficult than the first maybe because it was more awkward in my right thigh. Nevertheless I did it! although it bled a bit. I am right in thinking that's ok? The problem now is...should I be storing the hydroxocobalamin in the fridge? I thought it just had to be kept dark. Can someone please advise me what to do.

[Gambit62 Administrator]

if younick avein then it will resultin some blood escaping and be followed by a bruise - happens sometimes.

hydroxocobalamin needs to be stored somewhere cool and dark - it doesn't need to be kept cold/in a fridge.

[Goaliegirl in reply to Gambit62]

Thank you Gambit62. No bruise just a bit of blood. I would have been lost only for everyone on here. I have PA but when I tell my doctor my symptoms, she looks at me as though I'm mad. I am so thankful to know I am not.

[Ritchie1268 in reply to Goaliegirl]

You're definitely not mad!!

Most dr's think we're all just mad hypocondriacs, because most dr's as of yet don't understand what us PA sufferers go through, so you're not on your own & you're not going mad!

I've been self injecting every other day since Xmas & though I still get certain symptoms, most have now gone & I feel the best I've felt in very many years.

Even now after injecting as much as I have done, I still hate doing it & as daft as it sounds, even after this many, I still get anxious about doing it. But I just get on with it now as I have to, as the alternative isn't much fun.

It does get easier, I promise, and that coming from someone who once actually passed out watching someone get an injection & having a needle phobia.

Are you left handed? I'm guessing you are as I tried in my left thigh being right handed & I struggled.

You don't have to alternate (as dr's surgery does) I just do it in my right thigh as I find it easier.

It does get easier, I promise 👍

[Goaliegirl in reply to Ritchie1268]

Thank you so much Ritchie1268. I appreciate that very much. It gives me hope. Strangely enough I am right handed but find it more difficult in my right thigh...I'm just odd lol. I was so down and frustrated until I found all you wonderful helpful people.... you have made such a difference. I can honestly say this is my lifeline.

[Ritchie1268 in reply to Goaliegirl]

You are so very very welcome. I'm odd too 😄

I felt exactly the same this time last year when my Dr said to me: "you have Macrocytic Anemia, B12 deficiency, folate deficiency & Pernicious Anemia. When I asked what that all meant, I was told I'd just have to have injections for the rest of my life, that was it, no explanation, nothing.

After having so many questions I joined the PAS & this place which, due to all the absolute earth angels on here, I'm getting my life back now after learning how to self inject.

You'll be fine I promise. Just have a word with yourself, as I did. I sat there & said: "Now look, if you don't do this, you're gonna suffer as you have been doing for a very long time, you won't pass out" so I listened to myself, did it & felt great for overcoming my fear of needles.

As I said, it does get easier & believe me, if I can do it, you can too 👍

[Goaliegirl in reply to Ritchie1268]

You are an inspiration. Thank you. You don't know how much I appreciate your help.

[Ritchie1268 in reply to Goaliegirl]

As I said, you're so very welcome.

I have found amazing people on here who really do want to help others. That's what we're all here for.

If there is anything at all you're worried about, as I know how daunting it was for me when first self injecting, we're all here to help & support each other, please don't be afraid to ask. I know I was a nightmare as I didn't have a clue!

If you need any tips on how to make it easier, pain free etc, just ask. I'm still new to the self injecting as only been doing it since Xmas but, I've picked up some tips & now find it much easier, and I feel the best I've felt for many years.

Well done for taking control of your health & claiming your life back!!!

[Goaliegirl in reply to Ritchie1268]

Haha you might regret saying that. Seriously though, thank you. I will definitely ask if I have any more questions...which I’m sure I will lol.

[Ritchie1268 in reply to Goaliegirl]

Anything you need to ask, just ask. Honestly, there wasn't anyone worse than me & I messaged people asking questions as I didn't have a clue, I felt I was being a right pain, but I wanted to feel my old self again but had nowhere to go but here!!

I was frightened & worried etc. These wonderful people soon put my mind at rest.

Honestly, I promise, if you're worried about the slightest thing, or even injecting, please just ask, as we've all been there.

We're all here to help & advise so just ask.

You will be fine, feel proud that you've now taken control & well done for doing that! 👍

[lorriew]

Cool dark place