In a bad way again: I'm feeling really... - Pernicious Anaemi...

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In a bad way again

Hayley31 profile image
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I'm feeling really bad again the last few weeks. I'm extremely tired all of the time. I have B12 every week and it was working well, but just seemed to get really bad again for no reason. I have increased my injections and am taking iron, folic acid and vitamin D. Nothing seems to be working. I feel breathless, my lips and tongue are really sore, I'm pale and people keep telling me how awful I look and then looking at me expectantly for an explanation that I do not have. I have heart palpitations, bloating, oral thrush for which I am on Nystatin. I am sure I have a candidate overgrowth in my body. I feel terrible, don't know what is wrong or what to do about it. Everyone just expects me to keep doing things I'm nowhere near well enough to do, they think I had an illness and its all better now, cos I just get on with it when I shouldn't cos I don't know what to tell people. I feel worse than ever. Any advice would be appreciated.

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Hayley31
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Nackapan profile image
Nackapan

Sorry to hear this. Have you had recent bloods donr. I posted about ferriton levels as not always checked . Below 59 can cause fatigue breathlessness ect. Low folate can caruse a sore mouth. I have read on here that when on regular b12 injections you do need to supplement . Perhaos you are not absorbing yours. Try another firm of iron? I'm Ashen too and trying to push through all the time to do the simplist of tasks. Hope you can get some. We bloods done and find something to work on. Sometimes it's best not to try and push though. Easier said than done I know as sometimes my body has the most horrible fatigue that can get worse in the day or improve. I wish you well

BirdlessBox profile image
BirdlessBox

It's true you might find some additional supplements help. I just heard that nitrous oxide can cause symptoms to worsen incase you have been to the dentist or something. One sure thing with Candida overgrowth is you need to completely give up anything that feeds it, which in the most part is sugar. No cheating. Also make sure you don't get constipated. I get very frustrated with peoples attitudes about what they think I should be able to do. To me it sounds like you need to take it easy and rest, try to stop worrying about undone things and put what energy you have into looking after yourself. Hope you improve soon.

ByGrace profile image
ByGrace

Are you taking a complex B vitamin?

Hayley31 profile image
Hayley31

Thank you. I'm just really down about it all. I never take time off work, and I've taken a week off this week - since Tuesday, and because it is difficult to explain exactly what is wrong with me, I've been made to feel like a delinquent teenager...I'm in my 30's and with genuine debilitating health problems. I push myself along when I shouldn't, mainly because I don't know what to tell people. People in other areas of my life are constantly telling me how tired and unwell I look and I have no explanation. People don't understand why I'm not up to going out all of the time as I'm really not well. I have had blood tests recently for diabetes (as I keep feeling ill after eating sugar), Coeliac, iron, folate, renal, liver, the usual. I have had all of this several times before and never diagnosed with anything concrete. All they know is I get stomach problems (there is a history of ulcerative colitis in the family) and problems absorbing vitamins B12, iron and D3 (all of which I take regularly but still feel awful). I'm working in a job that is quite far from where I live so it leaves me with no time or energy when I get home, barely enough to get ready for the next day....I think I made a big mistake taking the job given my health issues. I just don't know what to tell people. I don't want people to think I'm lazy or a hypocondriac. I'm really suffering and in a constant state of anxiety over my health. My symptoms are extreme fatigue, brain fog, memory problems, sore throat, sore tongue, speech difficulties (very frustrating), no immune system, bloating, stomach pain, candida, extremely dry skin, visible soreness around lips, burning and pins and needles in hands and feet, breathlessness, heart palpitations, gyno pain. I'm now at the point where I've pretty much decided not to have kids, I'm fairly old not to have them already (36), and it's because of my health issues, I worry that it will affect an unborn baby and that they could be born with problems as my body just doesn't feel healthy enough to have one. This upsets me as if it wasn't for my health issues I would want children. I hate being asked about it as again I don't know what to tell people, and it feels like a knife in the wound. Because I look a lot younger than I am, no - one has any idea how upset I am at the prospect of possibly not having a family as they think I'm not at the age of thinking about it as yet (when actually I'm past the age where most normal healthy people have already done all of that) It's completely changed the way I thought my life would turn out, and it's so upsetting. People just expect me to get on with it, but I just feel like giving up. People have no idea of the amount of emotional turmoil that goes with this.

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