My head

[Nackapan]

Has anyone had skull tightness with sizzling noises ? Sometimes going into awfuk headaches or migrain

For me it's connected to using my eyes! Also vibrations in my mouth and nose when talking. No TV unable to read A4 paper. If anyone has ,what have they done to improve matters. Does it eventually go? Driving me mad.

Bloods are fine apart from ferritin levels dropping. Still having b12 injections regularly and vitamins

[pitney]

I get the tightness feeling but not the sizzling or migraine that you describe with it

[Nackapan in reply to pitney]

Oh okay . HSBC it persisted or gradually got better? I used to have it over whole head with severe scalp sensitivity. It's mainot over forehead now and a burning patch back top of head. At what times do you get it? Using your eyes or tI red? I've never been given an explanation . Have you?

[Nackapan in reply to Nackapan]

Has it persisted! !

[pitney in reply to Nackapan]

It has improved since starting SI once a month but still kicks in from time to time for no apparent reason, had CT scans and MRI scans the only suggestion has been silent migraine but no one seems to have an explanation, sometimes comes along with light and sound sensitivity but not always, I have always had a lot of symptoms from before I was diagnosed with PA some of which have improved quite a bit since SI and some which do not seem to have improved much at all, I just try and work out what works for me and make the most of the good days, but so far have not found anything for helping the tight head sensation other than rest and hoping it goes quickly.

Hope you manage to have a good weekend

All best wishes

[Nackapan in reply to pitney]

Sane here I have to stop and close my eyes. Sometimes will pass sometimes givrs me nausea . Horrid. We need to use our eyes. I get the noise and light sensitivity all the time worse at the end of the day around 5. I've also had a brain mright and ct scan. I was told I was having a panic attack! ! I was not . Hope you have a good easter too.

[Hayley31]

I used to get all sorts of weird and not so wonderful symptoms before I went on B12

[Nackapan in reply to Hayley31]

Yes so did I. Many gone with b12 injections thank goodness. Left with quite a lot though

[TACCT]

Yes, I had skull tightness with vibrations in neck and other areas. Also severe issues with eyes: blurriness, unable to focus and shimmering vision. It has improved since starting SI six weeks ago. I am doing 3x a week and taking other co-factors like magnesium, folate, a multivitamin/mineral and omega-3. But still has some vision problems and get headache while reading. Computers and other luminous screens tend to make it worse.

[Nackapan in reply to TACCT]

Thanks. I'm taking the same supplements and Lutein and zeathin for eyes I checked okay with the Optician. I can't cope with florescent lights. I've bought a stick on anti blue light for this phone too. I was on every other daily injections but fEly at the time there was no further improvement so I reduced. I'm no worse or better just stuck it seems. I will up the injections if nothing improves. Luckily I've negotiated flexibility at my doctors sugery. Hope improvements continue for you

[TACCT in reply to Nackapan]

I have found that Taurine is beneficial for skull tightness and migraine type headaches. I am using it from last few days and it helps alleviate the headache.

[Nackapan in reply to TACCT]

Oh okay. Thank your. I will find out what that is and try it