What to do now.................?

[deede72]

Feeling absolutely shocking!! all i want to do is SLEEP just lately had laryngitis and a cold virus a week before Christmas and ive still got laryngitis cus stlll talking with a really bad horse voice and a slight cough and bringing up mucus, been back to the DR all they said was its nothing to do with my thyroid had thyroid leaves checked its off the scales as per cus carnt take any kind of replacement because of the side effects , had B12 checked thats high havent got to have an injection next month got to have it checked again in april cus Dr said having it too high is dangerous, but this all came about cus on week 8ish I start feeling really lethargic and have been for a number of months taking B12 injections so the doctor wanted to test me when I start to get any symptoms and that's result of it it's hi so he said I haven't got to have it, have started talking rosehip tablets for pain in knee i can't see them making me feel like this cus was feeling bad before but not so lethargic , starting them but im not getting any better what should i do ? advice please............

[Gambit62 Administrator]

deede72 -

high B12 is to be expected in people who have had injections.

after injections serum B12 test doesn't really tell you anything unless it comes back low. Current guidelines in the UK are that retesting B12 after loading shots is unnecessary.

B12 isn't toxic

Basically your GP should not have stopped your injections because your serum B12 was high.

Are you in the UK?

[deede72 in reply to Gambit62]

hi yes im in the uk and having more blood test then got to see gp for the results and go from there

[Gambit62 Administrator in reply to deede72]

suggest that you try righting to your GP asking to be treated in accordance with the NICE and current BCSH guidelines concerning cobalamin (B12) deficiency. The BCSH guidelines are available through the BNF but can also be found here

onlinelibrary.wiley.com/doi...

Note: there is an update on the BNF that isn't reflected in this version of the guidelines which is that maintenance doses where there isn't neurological involvement should be 2-3 months (rather than 3 months as in these guidelines).

Treatment points

- shots are for life,

- shots are not managed on the basis of serum B12 test (there is a lot in the BCSH guidelines on serious limitations of the serum B12 test)

You could also suggest that they take a look at the part of the PAS website specifically aimed at helping medical practitioners improve the diagnosis and treatment of PA and B12 absorption problems

pernicious-anaemia-society....