PA and treatment: Hi all. I have a... - Pernicious Anaemi...

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PA and treatment

Wowo23
Wowo23

Hi all. I have a question. I was diagnosed with PA a year and a half ago. My b12 had all but bottomed out and IF was positive and thru the roof. Because I had/ have bone cancer and lost my leg, I thought I was dying due to what I now know was PA symptoms. I am doing jabs at home twice a week. I just realized that isn't enough. I had a jab on Sat and ear ringing went away but came back full force the next evening. I'm going to my primary and want to ask(which I'm sure they'll go by my word) either for daily or every other day injections. Does anyone here do daily and is daily what I should ask for? Any advice would be much appreciated

4 Replies
clivealive
clivealiveForum Support

Hi Wowo23

It is also important that your Folate level is monitored as this is essential to process the B12.

There is a complex interaction between folic acid, vitamin B12 and iron. A deficiency of one may be "masked" by excess of another so the three must always be in balance.

Symptoms of a folate deficiency can include:

symptoms related to anaemia

reduced sense of taste

diarrhoea

numbness and tingling in the feet and hands

muscle weakness

depression

Folic acid works closely with vitamin B12 in making red blood cells and helps iron function properly in the body

I am not a medically trained person but I've had Pernicious Anaemia (one of many causes of B12 deficiency) for more than 46 years.

I wish you well.

I agree with clivealive you need all 3 to be in balance and within normal range. If your Iron levels are rock bottom an intravenous Iron infusion will make a big difference to how you feel. I have had a couple now & even though it’s at a hospital it only takes 2-3 hours.

All the best Wowo23, feel better soon. Have you got a good Dr that you can talk to and understands you? It’s not an answer to how often you take B3 but more for one of the 3 elements clivealive spoke about

Hope you feel better soon,

Suzee (M.G.) xx

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Thank you. I'll have it on and folate rechecked

Wowo23 I am so sorry I wrote by mistake that if your iron levels are low you may need a red blood cell infusion.

It is an Iron IRON INFUSION that you would need, I have had 2 so far for very low iron levels and they were very successful and gave me a lot more energy.

I just wrote to someone else asking about low iron levels so I think that you may find that interesting as well, she is having one on Thursday,

All the best xx

Melbourne-Girl

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