Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for September 2018

GP refusing further tests

I have borderline low B12 (196) so my GP is adamant I do not have pernicious anaemia, she wont refer me for any further testing full stop. I also have low...

I have borderline low B12 (196) so my GP is adamant I do not have pernicious ana...

Riv_

•6 years ago

3 Replies

Is muscular pain and stiffness a symptom of PA?

Hi, I've just joined PA because my husband was diagnosed with PA about 2 weeks ago. At this stage we're hoping that it is just PA he has as his symptoms are...

Hi, I've just joined PA because my husband was diagnosed with PA about 2 weeks a...

LuceyLocket

•6 years ago

15 Replies

Low B12 but only given tablets

Hi all, I was recently discovered to have low B12 levels. I went to see the Dr with dizziness/vertigo, unilateral tingling in my face and some pins and...

Hi all, I was recently discovered to have low B12 levels. I went to see the Dr w...

Noreek

•6 years ago

5 Replies

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B12 from Versandapo

I've just bought B12 Depot Rotexmedica 100x1ml for ~£55. The code was N3K4-SXKC-5CC9. Whether this code was specific to me, and whether it would work for...

I've just bought B12 Depot Rotexmedica 100x1ml for ~£55. The code was N3K4-SXKC...

rusholme

•6 years ago

6 Replies

Think I have been incorrectly diagnosed - could I possible still have PA?

For the six or so years, I've been battling stomach problems that have gotten increasingly worse (constant diarrhoea resulting in weight loss of 15kg - i'm now...

For the six or so years, I've been battling stomach problems that have gotten in...

stephj92

•6 years ago

4 Replies

Expected B12 levels after loading dose?

Hi ive recently been diagnosed with b12 deficiency. My level was 125, and 2 months after 5 loading injections, they've raised to 580. Should they be higher...

Hi ive recently been diagnosed with b12 deficiency. My level was 125, and 2 mont...

Mumof3boyz

•6 years ago

11 Replies

PA and Sjogren’s Syndrome

Hi all, I was wondering whether anyone in this forum has Sjogren’s Syndrome as well as PA? It looks like I might have both and wanted to find out if the B12...

Hi all, I was wondering whether anyone in this forum has Sjogren’s Syndrome as ...

natcap1

•6 years ago

15 Replies

Rejected B12 injections at home

Hi everyone, I'm new here and have read a few posts about people trying to get B12 at home. I've been trying to do the same for last month or so from my GP and...

Hi everyone, I'm new here and have read a few posts about people trying to get B...

miss90

•6 years ago

31 Replies

Question on necessity of blood thinning medication in relation to Pernicious Anaemia, once solved.

Hi everyone, I am new here, writing from the Netherlands. I have a question that I am struggling with: After a 2 lungembolisms in 2013 and 2016 and many other...

Hi everyone, I am new here, writing from the Netherlands. I have a question that...

AndreZ

•6 years ago

5 Replies

More media nonsense

ITV’s This Morning had a bit by some celebrity doctor about B12. Apparently the vast majority of people with a severe deficiency need a few injections but are...

ITV’s This Morning had a bit by some celebrity doctor about B12. Apparently the ...

fbirder

•6 years ago

5 Replies

Newly diagnosed with pernicious anemia, still have unresolved symptoms

Hi everyone! I'm quite new here, and was just diagnosed with pernicious anemia (somewhat--more later) a month ago. I essentially had overwhelming fatigue for...

Hi everyone! I'm quite new here, and was just diagnosed with pernicious anemia (...

hummingbird88

•6 years ago

4 Replies

B12 injections not working

Hey everyone. This is my first time posting and am really hoping for some advice, as I'm new to all of this. I'm 25 and have had hypothyroidism since I was a...

Hey everyone. This is my first time posting and am really hoping for some advice...

Trudie1

•6 years ago

25 Replies

Belsfield

Can anyone tell me what exactly is termed as neurological symptoms? GP didnt seem interested just said I was to be on injections forever. Had injections...

Can anyone tell me what exactly is termed as neurological symptoms? GP didnt s...

Belsfield

•6 years ago

8 Replies

Still not feeling better...

Apologies for incoherent rambling as usual... I had a level of 104 on my B12 in March of this year (2018) I had 4 or 5 injections (there was a problem with...

Apologies for incoherent rambling as usual... I had a level of 104 on my B12 in ...

Hidden

•6 years ago

3 Replies

Finally getting answers thanks to you

I am about to cry!! I posted on here two Months ago about still being tired after 7 years. A few of you told me to ask for a folate test. This led to my...

I am about to cry!! I posted on here two Months ago about still being tired afte...

ButlerNM

•6 years ago

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Medical record online.

Hope everyone is as well as can be😜 Just been checking my Medical record online and going through one letter my doctor wrote to I can’t remember who at this...

Hope everyone is as well as can be😜 Just been checking my Medical record online...

Chance15

•6 years ago

7 Replies

Sore shoulder and upper arm and very tired

I have had 41/2 months of injections Could this be related?

Gsmandin

•6 years ago

2 Replies

Any advice pleeease!

Hi - I’ve already had excellent advice and support from this community - being a newbie I’m still trying to read and research as much as possible. I am...

Hi - I’ve already had excellent advice and support from this community - being a...

Mandymoos8

•6 years ago

5 Replies

Feraheme infusions

I just received my 2nd infusion of feraheme. How long does it take to feel the full benefits of it. And , how long does it last. I so lost hair before I was...

I just received my 2nd infusion of feraheme. How long does it take to feel the f...

Batbara

•6 years ago

2 Replies

NHS and Pernicious Anaemia

I am probably way behind things here, but NHS Choices appear to have abandoned the term Pernicious Anaemia! https://www.nhs.uk/conditions/#P Vitamin B12 or...

I am probably way behind things here, but NHS Choices appear to have abandoned t...

helvella

•6 years ago

13 Replies

Dr refused my b12 injection cause I SI

Are they allowed to do this ?

area16rep

•6 years ago

15 Replies

Dr responses

I posted the other day that my surgeon( i have had 2 surgeries for diverticulitis) sent me for b12 and iron studies blood test because of my symptoms. That was...

I posted the other day that my surgeon( i have had 2 surgeries for diverticuliti...

Gardeningbuff

•6 years ago

2 Replies

Looking for a little bit of reassurance

Hello all, First time poster here. I have been suffering for the last month or so with some symptoms of peripheral neuropathy. Being an otherwise fit and...

Hello all, First time poster here. I have been suffering for the last month or ...

MatthewOrr1

•6 years ago

5 Replies

Pain in wrist and arm while increasing B12

I just want to know if this has happened to others: I increased my hydroxo B12 shots to every day from every other day about 2 weeks ago and a few days ago I...

I just want to know if this has happened to others: I increased my hydroxo B12 s...

Musicgirlie

•6 years ago

6 Replies

How to become a member

Hello lovely people Please can someone tell me how to become a member of PAS - am I missing something obvious ?! Also a quick question if someone can answer -...

Hello lovely people Please can someone tell me how to become a member of PAS - a...

Mandymoos8

•6 years ago

1 Reply

How to become a member

Hello lovely people Please can someone tell me how to become a member of PAS - am I missing something obvious ?! Also a quick question if someone can answer -...

Hello lovely people Please can someone tell me how to become a member of PAS - a...

Mandymoos8

•6 years ago

2 Replies

Trying hard to absorb all the info here, but ...

Hello. Want to begin by saying thank you as I am very grateful for all the information people have provided here when I posted before. I don't know where...

Hello. Want to begin by saying thank you as I am very grateful for all the info...

jib70

•6 years ago

3 Replies

Blood Results.

Hi, I have recently posted about me B12, I had 2 print outs off my bloods, this one stated low cholesterol. And second sheet printed my b12 low which I’m now...

Hi, I have recently posted about me B12, I had 2 print outs off my bloods, this...

Hayleyjel

•6 years ago

11 Replies

Vitamin B12 Definicy.

When you are initially diagnosed with vitamin B12 definicy are you automatically tested for low folic acid. All I was told was your vit B12 is low Just under...

When you are initially diagnosed with vitamin B12 definicy are you automatically...

Belsfield

•6 years ago

9 Replies

There is a complex interaction between folic acid, vitamin B12 and iron. A deficiency of one may be "masked" by excess of another.

After reading the above in a reply to a recent post, it has prompted me to ask if supplementing with too much B12 could make my folate low and ferritin high....

After reading the above in a reply to a recent post, it has prompted me to ask i...

lucylocks

•6 years ago

13 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2018

GP refusing further tests

Is muscular pain and stiffness a symptom of PA?

Low B12 but only given tablets

B12 from Versandapo

Think I have been incorrectly diagnosed - could I possible still have PA?

Expected B12 levels after loading dose?

PA and Sjogren’s Syndrome

Rejected B12 injections at home

Question on necessity of blood thinning medication in relation to Pernicious Anaemia, once solved.

More media nonsense

Newly diagnosed with pernicious anemia, still have unresolved symptoms

B12 injections not working

Belsfield

Still not feeling better...

Finally getting answers thanks to you

Medical record online.

Sore shoulder and upper arm and very tired

Any advice pleeease!

Feraheme infusions

NHS and Pernicious Anaemia

Dr refused my b12 injection cause I SI

Dr responses

Looking for a little bit of reassurance

Pain in wrist and arm while increasing B12

How to become a member

How to become a member

Trying hard to absorb all the info here, but ...

Blood Results.

Vitamin B12 Definicy.

There is a complex interaction between folic acid, vitamin B12 and iron. A deficiency of one may be "masked" by excess of another.

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