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Pernicious Anaemia Society

32,058 members • 23,206 posts

All posts for September 2018

Just completed first self-injection session for B12, some questions....

Hello I have just completed my first B12 intramuscular self-injection into the outer thigh. It seemed to go relatively smoothly, but I do have some...

Hello I have just completed my first B12 intramuscular self-injection into the o...

ARRozental

•6 years ago

4 Replies

Skin patches, sublingual sprays etc. Do they work?

Hi I tested negative for intrinsic factor antibodies and my b12 is quite low (see profile for numbers), but I am Hashi's and not got the treatment for that...

Hi I tested negative for intrinsic factor antibodies and my b12 is quite low (se...

Laundretta

•6 years ago

28 Replies

Lamotrigine and Vitamin K2

Does anyone take Lamotrigine for epilepsy and vitamin K2? I heard that blood thinning medication can interact with K2, but I need to take K2 to start...

Does anyone take Lamotrigine for epilepsy and vitamin K2? I heard that blood thi...

Fashiomister271

•6 years ago

4 Replies

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B 12 deficiency symptoms worse during period

Hello! I am new to this forum and I’m just trying to figure it out. I was diagnosed with a deficiency just over a year ago. It took me a while but I finally...

Hello! I am new to this forum and I’m just trying to figure it out. I was dia...

BlueGray

•6 years ago

2 Replies

How low is low?

Hi, I’ve jumped over here for the thyroid forum! Im in the process of getting my thyroid meds sorted but for the last 10 months or so I’ve been supplementing...

Hi, I’ve jumped over here for the thyroid forum! Im in the process of getting my...

Murphysmum

•6 years ago

2 Replies

self injections

I have taken the step in getting my own injections, as my doctor will only give me 4 a year, I have seen the you tube on how to inject, and it looks scary as a...

I have taken the step in getting my own injections, as my doctor will only give ...

mandywhiteland

•6 years ago

6 Replies

High level of vitamin B12

I have high level of vitamin B12, 2000, what's happened?

vmariana

•6 years ago

2 Replies

Importance of very good B12 levels to prevent atrophy of Alzheimer's related brain regions

https://www.youtube.com/watch?feature=player_embedded&v=n7aMPF5P9AY Professor David Smith at the PAS conference 2013 begins to speak after about 4 minutes...

https://www.youtube.com/watch?feature=player_embedded&v=n7aMPF5P9AY Professor D...

Polaris

•6 years ago

7 Replies

Iron supplements

Good morning everyone Please could anyone let me know which iron supplements they take, and do you notice any difference. When taking them. Many thanks x

Good morning everyone Please could anyone let me know which iron supplements t...

Patjamber

•6 years ago

2 Replies

So sorry to hear that B12.org can no longer supply B12 ampoules to folk who cannot afford them .

If there is any way to help these people I would love to know , as I’m sure would many others on this forum . They can be supplied as slimming aids without...

If there is any way to help these people I would love to know , as I’m sure woul...

wedgewood

•6 years ago

7 Replies

B 12

I'm 66 and have peripheral neuropathy in my feet and rheumatoid arthritis. I just had a blood test today and my B12 came back at 1400. I am also taking B12...

I'm 66 and have peripheral neuropathy in my feet and rheumatoid arthritis. I jus...

Kennyatw

•6 years ago

14 Replies

Folate levels

How low is a low folate reading? I was initially told I had b12 defitiency and they just did my folate and its came back 2.5 and the said this is low av tried...

How low is a low folate reading? I was initially told I had b12 defitiency and ...

Starr2345

•6 years ago

4 Replies

B12d.org no longer providing injectable B12

This post is for information only and will be closed to responses as a result. It appears that B12d have been advised that, because of the context of their...

This post is for information only and will be closed to responses as a result. I...

Gambit62

Administrator•6 years ago

Losing teeth: B12 related ?

I have experienced teeth becoming loose, painful to bite on, and hot swollen and sometimes bleeding gums- as if an abcess is forming. Sometimes, affects...

I have experienced teeth becoming loose, painful to bite on, and hot swollen and...

Cherylclaire

Forum Support•6 years ago

7 Replies

B12 injections

Has anyone used vitaminb12.com to buy hydroxcolbalmin injections from. The b12 actually was posted from Vietnam, though the company is in Australia.

Has anyone used vitaminb12.com to buy hydroxcolbalmin injections from. The b12...

Debbiebasildabbers

•6 years ago

2 Replies

Erfa or Armour on nhs

My gp has just written a prescription for armour but I will have to pay for it myself. The quote I was given for 100 x 2 grain tablets was a whopping 367...

My gp has just written a prescription for armour but I will have to pay for it m...

Debbiebasildabbers

•6 years ago

1 Reply

Help with MMA and Cysteine test results

I've posted a couple of times and I'm trying to make sense of what's going on. Total B12 was in the 'normal range' when I was tested earlier in the year but I...

I've posted a couple of times and I'm trying to make sense of what's going on. T...

Pinn14

•6 years ago

4 Replies

Please help! Folate

Hi, I don't know if any of you remember but I posted a while ago when I was due to have surgery and Low B12 and Iron. My surgery was cancelled as the...

Hi, I don't know if any of you remember but I posted a while ago when I was due ...

Elge

•6 years ago

7 Replies

Requesting guidance about labs. Very High!

B12 reference 83-986 pg/ML : result 2,035 H Folate 3.10-17.50 result: 93.60 H Homeocysteine 3.2-10.7 result: 6.8 good MMA 0-378nmol/L result 90 Several years...

B12 reference 83-986 pg/ML : result 2,035 H Folate 3.10-17.50 result: 93.60 H Ho...

06hat

•6 years ago

2 Replies

Best appointment so far

I’ve just had a fantastic appointment with the cardiologist. She was horrified at some of the things my GP has been saying e.g. B12 is toxic. She asked how...

I’ve just had a fantastic appointment with the cardiologist. She was horrified ...

dippyduck

•6 years ago

7 Replies

B12 shot reaction

Just did my first B12 shot today after carefully studying the correct procedure. No pain from the needle going in, slightly uncomfortable when injecting into...

Just did my first B12 shot today after carefully studying the correct procedure....

somerandomperson

•6 years ago

7 Replies

ASD

HI, I haven't posted for a while; I am on the miserly three-monthly injections and feel no better after 3ish years. However, my concern at the moment is my 11...

HI, I haven't posted for a while; I am on the miserly three-monthly injections a...

stumpnme1

•6 years ago

5 Replies

Does B12 shots cause prominent veins on hands and feet?

Hi, I am low on B12 from last 2 years. 3 times I decided to start B12 shots and have got 6 loading shots. After getting them I feel like a crap and mess =...

Hi, I am low on B12 from last 2 years. 3 times I decided to start B12 shots and ...

nasiriftekhar

•6 years ago

4 Replies

Recently diagnosed with PA

I’m just back from GP, I am due my final loading dose this afternoon, my GP said I will then have an injection every 3 months. I was querying if I should take...

I’m just back from GP, I am due my final loading dose this afternoon, my GP said...

Melie3

•6 years ago

7 Replies

B12

I had B12 injections and my joints hurt and my skin broke out badly with acne and boils 4 years ago. The doctor told me there was nothing in it to be allergic...

I had B12 injections and my joints hurt and my skin broke out badly with acne an...

Robz7

•6 years ago

3 Replies

Alchohol & B12

I am new to the world of B12 deficiency. I have been away for a few days and during that time I drank a reasonable amount of alchohol, namely champagne and...

I am new to the world of B12 deficiency. I have been away for a few days and dur...

waveylines

•6 years ago

21 Replies

3 monthly injection

My Mum(in her 70’s) has been told she is borderline low B12 (158) with symptoms consistent so the GP agreed to prescribe injections. However she had her first...

My Mum(in her 70’s) has been told she is borderline low B12 (158) with symptoms ...

isalou

•6 years ago

6 Replies

Seeking advice please

Hello everyone I'm new and just wanted to thank you for providing such helpful and insightful content. Around 6 weeks ago I went to my doctors requesting...

Hello everyone I'm new and just wanted to thank you for providing such helpful a...

Wagonwheel

•6 years ago

8 Replies

Results of MMA test - does it mean anything helpful?

I got the MMA test done, with the following results: Methylmalonic Acid148 nmol/L (range) 79 - 376 nmol/L B121,902 pg/mL (range) 211 - 911 pg/mL...

I got the MMA test done, with the following results: Methylmalonic Acid148 nmol/...

Linda730

•6 years ago

22 Replies

Looking for advice regarding the storage of B12 ampoules....

Hello. I have ordered *100 Vitamin B12 Depot Rotexmedica and am aware that the enclosed instructions will most likely be in German, including the instructions...

Hello. I have ordered *100 Vitamin B12 Depot Rotexmedica and am aware that the e...

ARRozental

•6 years ago

7 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2018

Just completed first self-injection session for B12, some questions....

Skin patches, sublingual sprays etc. Do they work?

Lamotrigine and Vitamin K2

B 12 deficiency symptoms worse during period

How low is low?

self injections

High level of vitamin B12

Importance of very good B12 levels to prevent atrophy of Alzheimer's related brain regions

Iron supplements

So sorry to hear that B12.org can no longer supply B12 ampoules to folk who cannot afford them .

B 12

Folate levels

B12d.org no longer providing injectable B12

Losing teeth: B12 related ?

B12 injections

Erfa or Armour on nhs

Help with MMA and Cysteine test results

Please help! Folate

Requesting guidance about labs. Very High!

Best appointment so far

B12 shot reaction

ASD

Does B12 shots cause prominent veins on hands and feet?

Recently diagnosed with PA

B12

Alchohol & B12

3 monthly injection

Seeking advice please

Results of MMA test - does it mean anything helpful?

Looking for advice regarding the storage of B12 ampoules....

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive