I’ve been SI since May last year and was trying to reduce the amount. Just to see if I could really. I’ve been on weekly injections of hydroxocobalmin for at least 6 months.
I’m not doing too well, I have possible Lupus (or similar rheumatic autoimmune disorder) too so it’s complicated. I’m on new meds for that and my ongoing anxiety is extra bad.
Foot pain and burning has come back and I’m shaky, walking into door frames, tummy troubles are worse and I have pica (for ice or iced water).
I’m just afraid my GP is going to have a fit about me still injecting every week. He knows I went private for B12 and then SI. I have to go and see him because I’m a mess and need his help with a benefit claim.
So, should I just SI when I feel I need it? It really can’t hurt can it? Any experiences of how often you guys need it?
It’s all very scary because I have no support that covers all the issues, they are all treated separately by different doctors. 5 psych referrals over the years, rheumatology, neurology.
Currently I’m afraid all the extra B12 could be masking something more sinister. Probably just my anxiety talking.
Thanks for any suggestions/support.