Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for July 2018

Thoroughly confused about B12

Hi all I would be very grateful for some help please. I am diagnosed with severe Fibromyalgia (diagnosed by a consultant Rheumatologist), Chronic Fatigue...

Hi all I would be very grateful for some help please. I am diagnosed with severe...

Catleighcat

•6 years ago

6 Replies

Methylmalonic Acid level of 462 nmol/l

Normal level in u.s.a. is 87 to 318. Intrinsic and parietal antibodies tests both negative. Have B12 deficiency symptoms and have autoimmune hypothyroidism....

Normal level in u.s.a. is 87 to 318. Intrinsic and parietal antibodies tests bot...

nifuarain-63

•6 years ago

10 Replies

HCl Pills

Do most of us take HCl pills since our pareital cells that produce acid have been destroyed? I assume everyone with PA has difficulty just popping out to a...

Do most of us take HCl pills since our pareital cells that produce acid have bee...

topher2018

•6 years ago

13 Replies

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New here - advice needed please!

Hi, is a positive gastric parietal cell antibody test plus ongoing anaemia enough for a diagnosis of pernicious anaemia, even if serum B12 is in range?

Hi, is a positive gastric parietal cell antibody test plus ongoing anaemia enoug...

barton444

•6 years ago

2 Replies

SYRINGES AND NEEDLES - can someone kindly post an up to date UK link for syringes and needles - I am starting to self inject -small quantity

vitamin B12 Vitamin B12 Depot Rotexmedica Injection Solution (10X1 ml)

jacjc

•6 years ago

11 Replies

Daughter diagnosed with b12 deficiency result was 109

Hi my daughter has just been diagnosed with b12 deficiency .I took her to doctors because out of nowhere she was having panic attacks and psychosis .she got...

Hi my daughter has just been diagnosed with b12 deficiency .I took her to doctor...

kyanah

•6 years ago

11 Replies

B12 deficiency headache?

Hi all, I posted earlier and forgot to ask if anyone has experienced a headache with the b12 deficiency symptoms? My level is 152, and I just had my second...

Hi all, I posted earlier and forgot to ask if anyone has experienced a headache ...

Jnelson123

•6 years ago

3 Replies

Will I Ever Feel Normal Again

Do those of you who have had this for some time ever regain a sense of feeling normal? I was sitting outside today one week after diagnosis feeling like an...

Do those of you who have had this for some time ever regain a sense of feeling n...

topher2018

•6 years ago

18 Replies

why am I B12 deficient?

after being diagnosed B12 deficient a year ago I have completed a course of loading doses and then prescribed 3-monthly b12 injections indefinitely, i wanted...

after being diagnosed B12 deficient a year ago I have completed a course of load...

Kaffiolio

•6 years ago

10 Replies

Loading dose question

Hi all, I am new to this. About a month ago I was diagnosed with b12 deficiency and my level was 152. My doctor gave me one b12 injection and I just had my...

Hi all, I am new to this. About a month ago I was diagnosed with b12 deficiency...

Jnelson123

•6 years ago

6 Replies

Daily injections have given me my life back!

I have been suffering from symptoms of B12 deficiency for many years but was only properly diagnosed last September when things really took a turn for the...

I have been suffering from symptoms of B12 deficiency for many years but was onl...

Padders12

•6 years ago

14 Replies

Anecdotes of cures

Is anyone aware of any anecdotes of cures for PA? All over the internet there are stories of people curing cancer through juice diets etc. There are also...

Is anyone aware of any anecdotes of cures for PA? All over the internet there a...

topher2018

•6 years ago

10 Replies

Intrinsic Factor vs Parietal Cell Antibodies

If a person tested positive for the intrinsic factor antibody but negative to the parietal cell antibody, would that mean that the parietal cells in the...

If a person tested positive for the intrinsic factor antibody but negative to th...

topher2018

•6 years ago

4 Replies

Genetic risk

Is there a test that can be done to determine if I passed on any genetic predisposition for PA to my daughter?

Is there a test that can be done to determine if I passed on any genetic predisp...

topher2018

•6 years ago

4 Replies

Recently Diagnosed - Seeking Information

I am a 49 year old male who was diagnosed on July 3, 2018 with pernicious anemia resulting from autoimmune atrophic gastritis based on a B12 level of less than...

I am a 49 year old male who was diagnosed on July 3, 2018 with pernicious anemia...

topher2018

•6 years ago

24 Replies

Has anyone improved symptoms with vlcd diet

I know about blood tests which I have had and I’m going to get full thyroid and vit d done ect an taking folic acid for folates but what about rapidly reducing...

I know about blood tests which I have had and I’m going to get full thyroid and ...

Hidden

•6 years ago

1 Reply

B12 Injections not absorbed

I have been injecting B12 Cobalamin 1,000 mcg since the end of April, every other day. I just got the results from a NutraEval and my B12 went from 472 to...

I have been injecting B12 Cobalamin 1,000 mcg since the end of April, every othe...

Sita505USA

•6 years ago

3 Replies

Breakdown

Had melt down. God only knows where I am going to end up but must Write and let you all know. Doctors put me on diazepam.... Big mistake feel week as a baby....

Had melt down. God only knows where I am going to end up but must Write and let...

Hidden

•6 years ago

11 Replies

Vit D and b12 results

Hi all can anybody help with these blood results Fairly low b12 and Vit D levels High cholesterol has shown up also and high bilirubin I can’t get all the...

Hi all can anybody help with these blood results Fairly low b12 and Vit D levels...

Mancity1234

•6 years ago

3 Replies

pain.

So fed up of feeling useless.I'm so tired everything hurts x

vivjay

•6 years ago

2 Replies

PRIVATE GP OR NOT

Due to my doctor being no good And refusing vit d and thyroid antibodies blood test I’m going to go private as spire hospital but my question is would I be...

Due to my doctor being no good And refusing vit d and thyroid antibodies blood t...

Hidden

•6 years ago

5 Replies

Folic acid and when to start?

Ive had Hashimotos for approx 8 years and medicate with NDT as Levo wasn’t great. My Vit B12 was low in 2013/14 when I joined here. Getting nowhere with...

Ive had Hashimotos for approx 8 years and medicate with NDT as Levo wasn’t great...

angelharley

•6 years ago

2 Replies

PAS Blog - Consequences of Adding Folic Acid to Flour

HI All, New post on Martyn Hooper's blog about potential consequences of adding folic acid to flour. Mentions that adding folic acid may mask some signs of B12...

HI All, New post on Martyn Hooper's blog about potential consequences of adding ...

Sleepybunny

•6 years ago

1 Reply

low B12 - high RBC folate HELP!

Does anyone have low B12 and high RBC folate? My B12 is 290 and my RBC folate is 1499. My provider thinks this is of little concern. I have tried...

Does anyone have low B12 and high RBC folate? My B12 is 290 and my RBC folate i...

suem3

•6 years ago

1 Reply

Hemochromatosis and B12 Relationship?

I am a 45 year old female. In the last 6-8 months I have experienced following symptoms: cessation of periods, tinnitus, heart palpitations, anxiety,...

I am a 45 year old female. In the last 6-8 months I have experienced following s...

BelleHH

•6 years ago

2 Replies

B12 Binding Capacity (Unsaturated) Blood Test

Hello - Our 11 year old son with a history of infections, high fevers, night terrors, and anxiety had a B12 Binding Capacity (Unsaturated) Blood Test three...

Hello - Our 11 year old son with a history of infections, high fevers, night ter...

skiras1

•6 years ago

4 Replies

Wondering whats happening to my body

Diganosised with prenacious anemia in 03 after yrs of misdiagnosis took b12 injections bi wekly until level built up then put on 1mg injections monthly for...

Diganosised with prenacious anemia in 03 after yrs of misdiagnosis took b12 inje...

Cajunborn68

•6 years ago

5 Replies

chronic FATIGUE HELP!

4th time being to my gp. Long story short they done all my bloods told me their ok folates a little low gave me folic acid won’t do no more tests told me all...

4th time being to my gp. Long story short they done all my bloods told me their ...

Hidden

•6 years ago

7 Replies

B12 deficiency?

Hi Everyone. I have been experiencing a variety of symptoms:fatigue not relieve by resting, postural tremor in legs and hand, weakness, timgling and burning...

Hi Everyone. I have been experiencing a variety of symptoms:fatigue not relieve...

waveylines

•6 years ago

8 Replies

Oh dear! I am likely to have B12 toxicity!

Just been to see another different GP for a new prescription for an unrelated problem. While there I said I had not felt as well as I do now for twenty years...

Just been to see another different GP for a new prescription for an unrelated pr...

jointpain

•6 years ago

13 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2018

Thoroughly confused about B12

Methylmalonic Acid level of 462 nmol/l

HCl Pills

New here - advice needed please!

SYRINGES AND NEEDLES - can someone kindly post an up to date UK link for syringes and needles - I am starting to self inject -small quantity

Daughter diagnosed with b12 deficiency result was 109

B12 deficiency headache?

Will I Ever Feel Normal Again

why am I B12 deficient?

Loading dose question

Daily injections have given me my life back!

Anecdotes of cures

Intrinsic Factor vs Parietal Cell Antibodies

Genetic risk

Recently Diagnosed - Seeking Information

Has anyone improved symptoms with vlcd diet

B12 Injections not absorbed

Breakdown

Vit D and b12 results

pain.

PRIVATE GP OR NOT

Folic acid and when to start?

PAS Blog - Consequences of Adding Folic Acid to Flour

low B12 - high RBC folate HELP!

Hemochromatosis and B12 Relationship?

B12 Binding Capacity (Unsaturated) Blood Test

Wondering whats happening to my body

chronic FATIGUE HELP!

B12 deficiency?

Oh dear! I am likely to have B12 toxicity!

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