I have been suffering from symptoms of B12 deficiency for many years but was only properly diagnosed last September when things really took a turn for the worse.
As most of you have found, my GP had no real knowledge of what treatment I needed. I fought and was given 6 loading doses but was then told I could have 3 monthly injections ongoing. I improved a little but was desperate.
The 2 things that really helped was reading the PAS website ( I will be a member for life) and being a member of this forum. Your support and suggestions are invaluable to everyone seeking help on here. To have people to turn to who have been where you are really helped.
I began self injecting and was injecting alternate days as I had neurological symptoms. I didn’t ever get relief after an injection like so many of you seem to. I improved very slowly. The general advice on here is work out your own frequency of injections depending on when your symptoms reappear. I never did know and although my symptoms improved I assumed I was never going to completely recover. A couple of months ago I became desperate as I felt I could no longer manage working full time. I can’t afford not to but my life was work and rest/ sleep to recover for more work. I say “work” but although I was there in body I struggled to actually do much.
My breakthrough came when I appealed for some help on here and received support from Polaris and Denisemilden who both suggested I try daily injections. Although I found it hard at first as I was too tired to inject before work and then too exhausted after work I forced myself to do it.
After just a few days I noticed a huge difference! I seemed to be able to concentrate for longer at work. My boss noticed in the first week and commented “ what’s going on?, I look over at you and you are still working at 3pm each day”.
So a few weeks on and I feel like I am getting a bit of life back. No longer am I in bed by 9pm every night. I am less irritable and am able to carry on without having to rest every half hour.
I am still having symptoms but much less than before and feel less consumed by them. I am hoping it will last but only time will tell.
So a huge thank you to Polaris and Denisemilden for your advice in my hour/ year of need and to everyone who devotes their time to help.