Wondering whats happening to my body - Pernicious Anaemi...

Pernicious Anaemia Society

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Wondering whats happening to my body

Cajunborn68 profile image
5 Replies

Diganosised with prenacious anemia in 03 after yrs of misdiagnosis took b12 injections bi wekly until level built up then put on 1mg injections monthly for life

I have neuropathy bc of this.

I also have fibromyalgia

3 wks ago i began shaking it hasnt stopped some days r worse than othershave appt with neurologists in 5 wks

Just puzzled as to whats happening?

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Cajunborn68
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clivealive profile image
clivealiveForum Support

Hi Cajunborn68 are you in the U.K?

Having monthly injections suggests you might be having cyanocobamalin.

Do you feel worse in the run up to the next injection?

Do you know what your Folate level is?

I am not a medically trained person but I've had Pernicious Anaemia (a form of B12 deficiency) for more than 46 years.

I wish you well.

Cajunborn68 profile image
Cajunborn68 in reply toclivealive

Thank u for your reply.

Im in us

No i do not know my folate level

clivealive profile image
clivealiveForum Support in reply toCajunborn68

If possible go and see a doctor to run some tests - B12, Folate. Iron, Vitamin D Thyroid etc.

It's our bedtime over here in England so I'll bid you goodnight in the hope that some of our American members will be able to help you.

Allyson1 profile image
Allyson1

When giving you the loading doses, were they treating your symptoms or your levels? Maybe you just need more b12.

Cajunborn68 profile image
Cajunborn68 in reply toAllyson1

My levels

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