Anecdotes of cures: Is anyone aware of... - Pernicious Anaemi...

Pernicious Anaemia Society
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Anecdotes of cures

topher2018
topher2018

Is anyone aware of any anecdotes of cures for PA? All over the internet there are stories of people curing cancer through juice diets etc. There are also plenty of people claiming to have cured their autoimmune disease through diet. But you don't really see anything about anyone curing PA. And by cure, I mean that the body ceases to attack the intrinsic factor or the body ceases to attack the parietal cells and the body is able to process and absorb B12 again. Any stories of the immune system normalizing and the autoimmunity going away?

10 Replies
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I’m sure that there are some stories, all of them nonsense. There will be fewer stories about PA than there are about cancer. Cancer sometimes goes into remission, PA doesn’t. So some people will have their cancer disappear naturally and believe it was because they threw a dead cat after the devil in a churchyard at midnight.

topher2018
topher2018
in reply to fbirder

Thanks fbirder. Agreed that any anecdotes should be viewed skeptically. Weird that autoimmune issues like exzema or other autoimmune problems can come and go but this one does not. Perhaps it is because it messes with an early step in the digestive process and that makes it that much more difficult to heal leaky gut - which a lot of folks seem to think is what triggers autoimmune problems?

fbirder
fbirder
in reply to topher2018

The only evidence that eczema is autoimmune comes from studies where a drug that can affect autoimmune diseases reducuced the severity of eczema. They don’t know how it worked though, so it’s not proof that it’s autoimmune.

The Big Pharma conspiracists will like the fact that the study was run by the company that makes the drug.as

The NHS conspiracists will like the fact that NICE don’t allow it to be prescribed for eczema.

pitney
pitney
in reply to fbirder

I could not find a dead cat anywhere so tried dancing naked round a wishing well instead but that didn't work either, just frightened off all the live cats :)

Gambit62
Gambit62Administrator

to be clear - you can treat most of the symptoms of PA - including B12 deficiency - very effectively but there is no known cure.

Interestingly there do seem to be some ways of treating and reversing hashi's (auto-immune thyroidosis) but I suspect these are due to instances where the only factor that has triggered hashi's has been raised levels of iodine in diet. I don't know if any of these methods have been subject to scientific studies.

topher2018 - I can recommend the NCBI website - and in particular pubmeds - if you want to do more research for yourself into what is going on. A lot of the time it only gives you access to abstracts but it is a valuable resource.

ncbi.nlm.nih.gov/

ncbi.nlm.nih.gov/pubmed

topher2018
topher2018
in reply to Gambit62

Thanks Gambit. I have read some of those. I frequently find myself scratching my head as to what kind of conclusions can be drawn from them. But I will continue to read them.

Gambit62
Gambit62Administrator
in reply to topher2018

there will be different types of papers - the most common are:

- the results of particular studies/experiments - which usually come to the conclusion that more research is needed - which is often because they are small scale and there are problems drawing conclusions about the general population from a small sample

- the reviews of previous studies on a particular issue which can start to draw more conclusions if based, for example, on a large number of smaller scale studies that have all replicated the same results.

The latter are generally the more interesting.

People tend to have a view of science that is about uncertainties - actually most of it is about looking for relationships so you can then start to look for causal links - though so many people - including most journalists - don't understand/choose not to understand the difference between a correlation and a causal link which is why you get so many stories in the paper that seem to give conflicting advice - the correlation is reported as if it was a causal link - but when you go back to the study itself it usually has the rider that 'more research is needed'.

Totally agree with fbirder, I just wish I could also find the end of that rainbow as well for the pot of gold :-)

As a cancer survivor, I cringe when I read of people trying to cure their cancer with diet. They are flirting with death. Say what you will about the policies of Big Pharma, but they have managed to come up with substances and procedures that save lives.

Found something maybe based on title of paper in this link

annals.org/aim/article-abst...

Anyone already aware of this one? Maybe PAS knows who it is?

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