Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,226 members • 23,393 posts

All posts for June 2018

B12 Topping Up Between Hydroxocobalamin Injections

Hi! I know some people SI between injections. If you don't SI does anyone supplement with Cyanocobalamin tablets or methylcobalamin sublingual drops in between...

Hi! I know some people SI between injections. If you don't SI does anyone supple...

Dham

•6 years ago

9 Replies

Site Glitch: Potential Problems with Reply Notifications.

All There are intermittent problems across the HU platform with reply notifications. If you replied to someone within a thread or asked a sub-question and are...

All There are intermittent problems across the HU platform with reply notificati...

Foggyme

Administrator•6 years ago

1 Reply

Steadily Rising B12 Levels - No PA?

Good day all. I was diagnosed with a B-12 Deficiency on February 23 with a level of 153 P/mol. I was immediately started on monthly injections (I am in...

Good day all. I was diagnosed with a B-12 Deficiency on February 23 with a leve...

elvistoronto1

•6 years ago

5 Replies

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Leicestershire PAS Support Group Meeting: Thursday 28 June, 10am - 12md, Ulverscroft Manor, Priory Lane, Ulverscroft, Leices, LE67 9PH

Hi All The Pernicious Anaemia Society and our joint hosts, the Shuttlewood-Clark Foundation, are holding the next PAS support group meeting, as above. The...

Hi All The Pernicious Anaemia Society and our joint hosts, the Shuttlewood-Clark...

Foggyme

Administrator•6 years ago

Be the first to reply

Low folate. Borderline B12. What would you do?

Hey all...Some on advice on my results would be greatly appreciated. . Serum B12 233 (197-771) ng/l Serum folate 1.8 (2.99-26.) ug/l Only other thing...

Hey all...Some on advice on my results would be greatly appreciated. . Serum B1...

Mdolly

•6 years ago

4 Replies

Temperature required to keep methylcobalamin?

Hi I store my methylcobalamin in the fridge. Any scientific evidence of temperature it needs to be at?

Hi I store my methylcobalamin in the fridge. Any scientific evidence of tempera...

pslmt

•6 years ago

1 Reply

Newbie

Newly diagnosed with PA which scared the life out of me on the last May bank holiday weekend, physical symptoms dizziness rapid heart beat, out of...

Newly diagnosed with PA which scared the life out of me on the last May bank hol...

Odaat

•6 years ago

14 Replies

Pernicious anemia - low folate - feeling worse, help

I'm new here! But desperate for help. I recently went to the doctor, had a series of blood tests, and was diagnosed with pernicious anemia caused by low...

I'm new here! But desperate for help. I recently went to the doctor, had a seri...

kieraowl

•6 years ago

8 Replies

Itchy scalp making my life hell is it due to b12 deficiency?

My issue dates back 7 years where I had an intensely itchy scalp like a crawling sensation for a month. It has since come back for 2 weeks at a time then...

My issue dates back 7 years where I had an intensely itchy scalp like a crawling...

Fi4737h

•6 years ago

4 Replies

Pernicious anaemia ihav had a blood test which shows i hav gotb12 defiemcy score six what should it be please roberta maxine

Honeyhonny

•6 years ago

1 Reply

PAS News Why Some Need More Frequent Jabs

New PAS news item. Can't wait to read full research. Suggests molecular differences in sample who needed more jabs....

New PAS news item. Can't wait to read full research. Suggests molecular differen...

Sleepybunny

•6 years ago

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Advice re symptoms

Morning, 18 months ago I had a lot of blood tests as was suffering from fatigue and felt dreadful. The blood tests showed I had vitamin d deficiency. I was...

Morning, 18 months ago I had a lot of blood tests as was suffering from fatigue ...

Lulusymes

•6 years ago

5 Replies

Mid/upper back spine joint pain

Hi, has anyone had spine joint pain and muscle spasm in the mid/upper back with b12 defficiency? Just above the bra line. It really is tight and painful...

Hi, has anyone had spine joint pain and muscle spasm in the mid/upper back with ...

Blondie503

•6 years ago

4 Replies

Full of beans!!

Day 3 for my daughter 1mg IM Hydroxocobalamin everyday. She has been stuck in her bedroom for over 6 months with one word answers to any questions. Tonight she...

Day 3 for my daughter 1mg IM Hydroxocobalamin everyday. She has been stuck in he...

Dadvatar

•6 years ago

4 Replies

RE: Doing SI incorrectly

Hi there I have been doing SI since April basically every other day. The pharmacist showed me how to SI when I begged him to, he taught me to grab a fold of...

Hi there I have been doing SI since April basically every other day. The pharmac...

Sita505USA

•6 years ago

5 Replies

MMA testing

Hi all, I am seriously thinking about have the B12+ test done privately at St.Thomas Hosp, which consists of:- Total B12, Active B12 and methylmalonic...

Hi all, I am seriously thinking about have the B12+ test done privately at St...

Moggie

•6 years ago

9 Replies

Active B12 Test

Good morning, I have a really quick question which I wondered if someone could help me with? I had the first 6 injections 3 months ago and I am due my next...

Good morning, I have a really quick question which I wondered if someone could h...

Eltoness

•6 years ago

1 Reply

B12 Deficiency and Blood Shot Eyes

Hi everyone, I'm waiting for private functional B12 bt results and have many of b12 defficiency symptoms. Chased my tail with NHS bt results as i was...

Hi everyone, I'm waiting for private functional B12 bt results and have many of ...

Blondie503

•6 years ago

8 Replies

Facial Acne after B12 Loading Doses - Help!

Hi, after getting aB12 result of 145 (180-914) back in April I finally got my loading doses, the fifth and final one of which was on Friday last week. My face...

Hi, after getting aB12 result of 145 (180-914) back in April I finally got my lo...

bubblesmcgee

•6 years ago

2 Replies

Advice please

Morning all - could you please point me to the official advice from Nice or PA society on other tests I add should have had (I'm officially diagnosed with PA...

Morning all - could you please point me to the official advice from Nice or PA s...

Gilmarnay

•6 years ago

1 Reply

In the middle of making decisions

Hi I’m 53 a single mum of a 16 yr old and also a self employed gardener. I’m in the middle of a 2 week course of b12 injections from my doctor. Iv been...

Hi I’m 53 a single mum of a 16 yr old and also a self employed gardener. I’m in ...

Kaw142

•6 years ago

8 Replies

Low B12 & injections

Hi I'm new here and hoping for a bit of advice. I have read a lot of people need to supplement between injections. I have found an oral b12 spray which is...

Hi I'm new here and hoping for a bit of advice. I have read a lot of people nee...

Dham

•6 years ago

4 Replies

B12 ampules

Hi where do people get b12 from in the uk ? Thanku

ben1988

•6 years ago

19 Replies

Low Vitamin B12 Not anaemic

I'm new here. My B12 level was 110 which was low, my GP says I am not anaemic. Other blood results are thyroid normal and folate level slightly above normal...

I'm new here. My B12 level was 110 which was low, my GP says I am not anaemic. ...

Paul2624

•6 years ago

10 Replies

Confused

I am recently diagnosed with PA and have had 3 sets of loading injections (I have a good GP). That said I am getting injections st 8 week intervals which is...

I am recently diagnosed with PA and have had 3 sets of loading injections (I hav...

Hidden

•6 years ago

5 Replies

B12d, ADHD or both

You wait for a bus and....... My daughter has been having concentration issues so we organised some testing for ADHD. In the mean time while they were...

You wait for a bus and....... My daughter has been having concentration issues...

Dadvatar

•6 years ago

2 Replies

I've been told to ask you lovely lot...any advice on my results please?

Hi, I posted on the thyroid site as my TSH was slightly high but they said to post here too as a few mentioned 'perniciuos anaemia' after seeing the b12 and...

Hi, I posted on the thyroid site as my TSH was slightly high but they said to po...

Tiredtired

•6 years ago

6 Replies

Why would B12 plummet so quickly?

Hi all, I've just received my latest set of blood results and I'm a bit puzzled, I wonder if any of you lovely people can help. Currently on Ferrous Fumarate...

Hi all, I've just received my latest set of blood results and I'm a bit puzzled,...

MelonJ

•6 years ago

7 Replies

Still worried about symptoms and even private Dr wouldn’t listen!

I’m sorry to be asking more questions here again. Long story short I put some symptoms last year down to grief and shock of my husband dying suddenly. May this...

I’m sorry to be asking more questions here again. Long story short I put some sy...

Winterlight

•6 years ago

7 Replies

Exciting new research results - PAS

News from the PAS... https://pernicious-anaemia-society.org/research/surprise-findings-by-research-team/ researchers have been examining faecal samples from PA...

News from the PAS... https://pernicious-anaemia-society.org/research/surprise-fi...

fbirder

•6 years ago

5 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2018

B12 Topping Up Between Hydroxocobalamin Injections

Site Glitch: Potential Problems with Reply Notifications.

Steadily Rising B12 Levels - No PA?

Leicestershire PAS Support Group Meeting: Thursday 28 June, 10am - 12md, Ulverscroft Manor, Priory Lane, Ulverscroft, Leices, LE67 9PH

Low folate. Borderline B12. What would you do?

Temperature required to keep methylcobalamin?

Newbie

Pernicious anemia - low folate - feeling worse, help

Itchy scalp making my life hell is it due to b12 deficiency?

Pernicious anaemia ihav had a blood test which shows i hav gotb12 defiemcy score six what should it be please roberta maxine

PAS News Why Some Need More Frequent Jabs

Advice re symptoms

Mid/upper back spine joint pain

Full of beans!!

RE: Doing SI incorrectly

MMA testing

Active B12 Test

B12 Deficiency and Blood Shot Eyes

Facial Acne after B12 Loading Doses - Help!

Advice please

In the middle of making decisions

Low B12 & injections

B12 ampules

Low Vitamin B12 Not anaemic

Confused

B12d, ADHD or both

I've been told to ask you lovely lot...any advice on my results please?

Why would B12 plummet so quickly?

Still worried about symptoms and even private Dr wouldn’t listen!

Exciting new research results - PAS

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