Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,214 members • 23,384 posts

All posts for June 2018

Too much B12?

Hi all, I wonder if anyone else has had a similar problem? Firstly, I don't have pernicious anaemia. Last year I had awful GI issues and unexplained folic acid...

Hi all, I wonder if anyone else has had a similar problem? Firstly, I don't have...

Julesboz

•6 years ago

4 Replies

Completed loading injections, now what?

Hiya, I had my last loading injection 7days ago, had a total of 6. Just had a blood test to check b12 levels,is that right as I thought after 6 loading...

Hiya, I had my last loading injection 7days ago, had a total of 6. Just had a bl...

Magpie1234

•6 years ago

5 Replies

Low Ferritin,High Vitamin D levels,Grey area B12 Vitamin and Folic Acid

Hey there. So in 16th of May, I felt like couldn't breathe,my hand/right eye, above my lip became numb and according to doctors, I had panic attack. A few...

Hey there. So in 16th of May, I felt like couldn't breathe,my hand/right eye, a...

jennifer207

•6 years ago

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Me again ! New and second post

I’m due my 5th out of 6 b12 Injection today and woke up with extreme shakes . Even tho I have been shaking and that was why I originally went to see my doc I...

I’m due my 5th out of 6 b12 Injection today and woke up with extreme shakes . Ev...

Kaw142

•6 years ago

7 Replies

Bloated all the time.. why?..

Hi I’m self injecting every week at least as my doctor just laughed at me when I asked for more frequent jabs. My problem is I’m very bloated and have stomach...

Hi I’m self injecting every week at least as my doctor just laughed at me when I...

Hidden

•6 years ago

12 Replies

PA and now Osteopenia

Hi. I've been taking b12 injections for 2 years now and have now been diagnosed with osteopenia and dr recommended Prolia injections. I have taken one, so...

Hi. I've been taking b12 injections for 2 years now and have now been diagnosed ...

claudette

•6 years ago

2 Replies

Pancreatitis and PA. Any known link?

Hi folks! Super new here but have lived with PA since my last pregnancy (my son is now 11) and try and get monthly injections from doc or take double...

Hi folks! Super new here but have lived with PA since my last pregnancy (my son...

Cricket79

•6 years ago

1 Reply

Pareital cell antibodies

Hi a little confused and hoping someone can clarify. I have had low b12 for years and getting 3 monthly injections i then started getting the tingly sore red...

Hi a little confused and hoping someone can clarify. I have had low b12 for year...

Sandra_Holmes_R

•6 years ago

9 Replies

Will my folic acid and ferritin test results be skewed now that I have received two B 12 vitamin loading doses?

Hello. My name is Marianne. I live in the US and was given my first B 12 injection on June 1st, I started supplements (one per day, 1000 MCG each tablet) on...

Hello. My name is Marianne. I live in the US and was given my first B 12 injecti...

dianewilson1900

•6 years ago

4 Replies

8 or 10 weeks blood test ? to check levels

Hi. I am finding 10 weeks too long to wait for my b12 injection - by 10 weeks i am already getting bouts of exhaustion, clumsiness and dippiness.... My doctor...

Hi. I am finding 10 weeks too long to wait for my b12 injection - by 10 weeks i ...

luckymaria

•6 years ago

4 Replies

Blood result help please. low ferritin & high haemoglobin plus other results.

Hi The lovely folk over at Thyroid UK said you may be able to help me understand my results regarding low ferritin and linked results. Before I post results...

Hi The lovely folk over at Thyroid UK said you may be able to help me understand...

StillEverHopeful

•6 years ago

5 Replies

Effect of B12 deficiency on digestion and gut.

Hi all, for as long as I can remember I have had problems with digesting many different food types. Not being able to eat gluten, milk products, and many types...

Hi all, for as long as I can remember I have had problems with digesting many di...

jointpain

•6 years ago

4 Replies

Vitamin B12 ....

Hi...I am new here.. Hello all ;) I have sarcoidosis and recent tests show low in a few things including B12... I had my first injection on Thursday. Last...

Hi...I am new here.. Hello all ;) I have sarcoidosis and recent tests show low ...

49goingon99

•6 years ago

6 Replies

Liposomal B12, a great idea?

Hi everyone. Has anyone considered using Liposomal B12? I don't see much (if any) talk about this anywhere, and I'm thinking that this could be a great product...

Hi everyone. Has anyone considered using Liposomal B12? I don't see much (if any...

whitenoise

•6 years ago

3 Replies

Abdominal agony

Back in hospital again a few days ago with acute abdominal pain. Not the first time. Could not move. Nothing touched it (painkillers etc). Following onset...

Back in hospital again a few days ago with acute abdominal pain. Not the first t...

Benji76

•6 years ago

10 Replies

How and where to get an Active B12 Test

What US Labs give the Active B12 tests ? Lab Corp does not. Any other way to have the test done ? Thank you.

What US Labs give the Active B12 tests ? Lab Corp does not. Any other way to h...

EAPLind

•6 years ago

4 Replies

Support before GP visit

I am so very confused about what to do with my situation. Anti-parietal cells have been confirmed in 2013, but I've not had treatment for this. I am repeatedly...

I am so very confused about what to do with my situation. Anti-parietal cells ha...

FelineGhost

•6 years ago

4 Replies

Test result for B12.... help required to stop GP prescribing B12 for SI.

Hello, I am seeking your help and support again. I am due to see my GP on Monday afternoon and require some advice in order to ensure she will not use my...

Hello, I am seeking your help and support again. I am due to see my GP on Monda...

JGBH

•6 years ago

23 Replies

Two steps forward..

One step back. After a great week for my daughter, she had a meltdown last night over her studies and cannot get out of bed this morning. She went to an...

One step back. After a great week for my daughter, she had a meltdown last night...

Dadvatar

•6 years ago

5 Replies

Taken off injections and feel awful

I have had B12 injections every 8 weeks for years. I had a health scare recently and had a lot of blood tests done. My b12 levels were over 2000 so my doctor...

I have had B12 injections every 8 weeks for years. I had a health scare recentl...

Meigleminx

•6 years ago

3 Replies

ButterfLY28

I'm diagnosed with b12 deficiency and now struggling with walking properly? Admin edit: This is one of a series of posts on the same subject by the same person...

I'm diagnosed with b12 deficiency and now struggling with walking properly? Admi...

Ailidhgrace

•6 years ago

1 Reply

ButterfLY28

Why no answer I'm unable to walk properly?

Ailidhgrace

•6 years ago

Be the first to reply

Ailidhgrace

Really struggling with my legs legs not working properly? Edit by admin: this is one of several posts in a short period of time on the same subject - it has...

Really struggling with my legs legs not working properly? Edit by admin: this i...

Ailidhgrace

•6 years ago

ButterfLY28

I'm receiving B12 injections (no improvement )when is it likely to show any movement?

I'm receiving B12 injections (no improvement )when is it likely to show any move...

Ailidhgrace

•6 years ago

2 Replies

ADVICE HELP NEEDED

How do I know or find out if I have anemia? I’m convinced I have it. I already have a underactive thyroid which I take 150mg per day of Levothyroxine Doctor...

How do I know or find out if I have anemia? I’m convinced I have it. I already h...

Hidden

•6 years ago

3 Replies

Taurine?

Im 43 male. I have 3 decades malabsorption from beers and pizza. My nerves pins needles, MS Hug, peripheral hands feet. Six months into b complex vitamins most...

Im 43 male. I have 3 decades malabsorption from beers and pizza. My nerves pins ...

Herbert123

•6 years ago

1 Reply

B12 levels question

I do shots every 3 weeks and my levels never go higher than 500 it so. My doctor told me my levels would never be higher due to PA. I tested positive for not...

I do shots every 3 weeks and my levels never go higher than 500 it so. My docto...

Jenergy

•6 years ago

5 Replies

Confused with diagnosis

So I am a little unsure of what my actual diagnosis is.... I was diagnosed with polycytheamia nearly 2 years ago which I have now 6-8 weekly venesection for....

So I am a little unsure of what my actual diagnosis is.... I was diagnosed with ...

Amr123

•6 years ago

3 Replies

Thanks for confirming this isn't all in my head!

I've just read Martin Hooper's 2nd book 'Living with Pernicious Anaemia' & am sat here sobbing with relief. After my latest visit to my GP to try & get some...

I've just read Martin Hooper's 2nd book 'Living with Pernicious Anaemia' & am sa...

carolinejellis

•6 years ago

5 Replies

Brain on Fire - a movie about NOT GIVING UP or IN TO GPs - not B12 - not PA - but a rare autoimmune disease.

I deliberated about whether to post this here, as it's not B12 deficiency or PA related, but this support group has helped me so much over the last couple of...

I deliberated about whether to post this here, as it's not B12 deficiency or PA ...

designer8

•6 years ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2018

Too much B12?

Completed loading injections, now what?

Low Ferritin,High Vitamin D levels,Grey area B12 Vitamin and Folic Acid

Me again ! New and second post

Bloated all the time.. why?..

PA and now Osteopenia

Pancreatitis and PA. Any known link?

Pareital cell antibodies

Will my folic acid and ferritin test results be skewed now that I have received two B 12 vitamin loading doses?

8 or 10 weeks blood test ? to check levels

Blood result help please. low ferritin & high haemoglobin plus other results.

Effect of B12 deficiency on digestion and gut.

Vitamin B12 ....

Liposomal B12, a great idea?

Abdominal agony

How and where to get an Active B12 Test

Support before GP visit

Test result for B12.... help required to stop GP prescribing B12 for SI.

Two steps forward..

Taken off injections and feel awful

ButterfLY28

ButterfLY28

Ailidhgrace

ButterfLY28

ADVICE HELP NEEDED

Taurine?

B12 levels question

Confused with diagnosis

Thanks for confirming this isn't all in my head!

Brain on Fire - a movie about NOT GIVING UP or IN TO GPs - not B12 - not PA - but a rare autoimmune disease.

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