Day 3 for my daughter 1mg IM Hydroxocobalamin everyday. She has been stuck in her bedroom for over 6 months with one word answers to any questions. Tonight she cannot stop talking. Either the injections are talking effect or she is taking drugs. Still stubborn though. I asked if she was noticing any difference and she said “no, I feel worse than ever!”
Hopefully she will continue to improve.
The first time I took a b12 injection; I was up for 36hrs straight and barely felt tired for most of it. It had a more gradual and controlled effect with further doses. Every time I have had an injection after a period since the last it feels so much better.
It will take time for improvements to take place; the body will have repair work to do. The important thing is that an objective assesment re ADHD you mentioned on a previous post cannot really be done in the loading phase of b12 treatment. I'd inform them of the current treatment and explain that you need to wait for the outcome of that first.
Once you go down the route of psych assessments you will get some practicioners putting a lot of their field bias into any assessment. Potentially questionable diagnoses can result from this and they tend to stick to peoples' medical files like glue even if you later get evidence to the contrary. ADHD drug treatments can have significant long-term side-effects on a person and so should really only be given after a firm diagnosis.
I'm not dismissing the suggestion that they have made of ADHD and calls for further assessment. But it would be prudent to rule out PA as the cause first. If the symptoms they ascribe to ADHD start to disappear with b12 treatment; why go through an uneeded assessment?
Sounds logical to me because you usually feel worse, in part because you suddenly can feel again whereas before any senses of feeling - actual nerve responses and cognition of these - weren't working!
Maybe try every other day jabs or less frequently, only giving the next as the returning symptoms dictate?
Don't forget that the body needs other things to make the B12 work properly so many people benefit from a broad spectrum multivitamin and mineral supplement plus extra folate, potassium, magnesium and iron.
Without an abundance of these too it is possible to get into extra deficiency situations which set off another set of symptoms, as well as the B12 deficiency symptoms returning because the cells can't use it effectively without all the necessary "ingredients".
As much as you want her to be well ASAP, it's all about careful balancing so take it gently and steadily to effect a long term management solution.
Brilliantly well done so far!
Glad you are getting somewhere. Took my daughter quite a few weeks to start feeling better but now much improved. Paediatrician said it would take about 6 months to recover as body needs to heal and new blood cells made.
Hope your daughter is soon back to herself.
Great news! please keep us updated. it is so nice to hear a success story even if it is just the begining.
Full run down to self injecting
Full blood count results
Progress made in full investigation and diagnosis, I hope.
Full Blood Count...what result should I be looking for?
