Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for May 2018

May try something different. Taking an extra b12 sublingual when I'm feeling 'good,' or an extra one at night. Wish me luck please ! ;p ty!

Hope it helps. Ideas welcome. Hope things are working out for people here ox ..

Fl17

•6 years ago

4 Replies

Rotexmedica packs of 10 Hydroxocobalamin B12available again .

Just received an E mail informing me of the above . The packs of 100 not yet available .

Just received an E mail informing me of the above . The packs of 100 not yet av...

wedgewood

•6 years ago

11 Replies

Raised levels

Hi my active b12 is almost double top end of range 295 (25.1-165) should I be worried? I've not been diagnosed PA as not had the tests but have been having 3...

Hi my active b12 is almost double top end of range 295 (25.1-165) should I be wo...

Salphy

•6 years ago

6 Replies

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Immerging from an Multiple Sclerosis coma.

Hi all just wanted to boast today about B12 the magical nectar. Am beginning to make progress with walking, standing, thinking, processes. Can’t mention B12...

Hi all just wanted to boast today about B12 the magical nectar. Am beginning to ...

Margomck32

•6 years ago

44 Replies

H. pylori breath test

Does anyone know anywhere in the UK where I could get an h. pylori breath test done? The only place I've found insists I see a consultant first (kerching) and...

Does anyone know anywhere in the UK where I could get an h. pylori breath test d...

ABC852031

•6 years ago

17 Replies

Ampoules arrived OK from new versandapo.de site

Hi Everyone! Just to let you know a couple of days ago I registered my details on the new versandapo.de website and ordered my ampoules. They arrived safely...

Hi Everyone! Just to let you know a couple of days ago I registered my details ...

deniseinmilden

•6 years ago

26 Replies

causes of b12 deficiency

Hi. Is it possible that 4 pregnancies in 5 years and breastfeeding can deplete b12 stores, if diet was bad and no supplementation? if this is possible then...

Hi. Is it possible that 4 pregnancies in 5 years and breastfeeding can deplete b...

OnePlusThree

•6 years ago

17 Replies

High B12, fatigue, and sore joints 24/7

I am 67, new to this site and need help. I was diagnosed with Lyme last October by a naturopath doctor. My body/joints hurt 24/7. I am tired all the time...

I am 67, new to this site and need help. I was diagnosed with Lyme last October...

Happylynette1

•6 years ago

10 Replies

2 months after loading doses

Hi. I wrote on here about 2 months ago as i'd just been told I had a b12 level of 88. I hadn't heard of b12 deficiency so I came here to get advice and it was...

Hi. I wrote on here about 2 months ago as i'd just been told I had a b12 level o...

Eltoness

•6 years ago

14 Replies

More b12? If symptoms are acting up?

Is it good/beneficial to take more? Thank you. On same day that is. Ty.

Fl17

•6 years ago

11 Replies

Should I be concerned?

Hi, New here. Hopefully someone can help shed some light for me. A little bit of a background, I am 32 and had Gastric Bypass surgery in 2008. I've been...

Hi, New here. Hopefully someone can help shed some light for me. A little bit o...

LaBella

•6 years ago

10 Replies

51 and to many issues

I need advice. I am just finishing chemo and I also have and taking medicine for: Lupus Pseroatic arthritis Chrones disease Heart issues Thyroid I’m very...

I need advice. I am just finishing chemo and I also have and taking medicine fo...

Sofia67

•6 years ago

2 Replies

Treatment removed

Hi there, was just wondering if this had happened to anyone else. Got a call from the nurse today an hour before my jab, advising that they are withdrawing my...

Hi there, was just wondering if this had happened to anyone else. Got a call fr...

Missmo79

•6 years ago

9 Replies

CBD instead of codiene

The past few weeks or so have been a bit bad on the pain side regarding the PA, now normally the more regular jabs vastly help with this... but for the bad...

The past few weeks or so have been a bit bad on the pain side regarding the PA, ...

Fudgemanjim

•6 years ago

3 Replies

Where can I buy B12 injections

Hi, Can someone please send me a link of where I can buy B12 injections. Have read you can buy online from Germany but struggling to find where. Would be so...

Hi, Can someone please send me a link of where I can buy B12 injections. Have re...

RiskiestEnd

•6 years ago

26 Replies

B12 Advice & Results Help Really Needed!

Hi all, thank you so much for clicking on my post I really need your help! I recently undertook the B12+ Testing at St Thomas' Hospital and received the...

Hi all, thank you so much for clicking on my post I really need your help! I rec...

AnnaR10

•6 years ago

3 Replies

What is benchmark for b12 levels

Does anyone know the range for low b12 Mine is 141 I have burning feet Can anyone help

Does anyone know the range for low b12 Mine is 141 I have burning feet Can anyo...

B12X

•6 years ago

16 Replies

I’d be grateful for any advise please.

Hi I’m new here, sorry if I’ve posted in the wrong place. I’m waiting on blood test results having been seen as an emergency at my GP practice yesterday. I...

Hi I’m new here, sorry if I’ve posted in the wrong place. I’m waiting on blood...

Winterlight

•6 years ago

10 Replies

Reaction to B12

Hi all Recently I have been feeling very unwell. All of my symptoms have pointed to a b 12 deficiency. Lots of nerve twitching, trembling hands, and tinnitus...

Hi all Recently I have been feeling very unwell. All of my symptoms have pointe...

OnePlusThree

•6 years ago

10 Replies

B12 1438????

I had a b12 level of 138 after b12 loading GP says it's 1438 but 2 weeks after back to being awake to 3 to 4 hours a day and all symptoms have returned. Any...

I had a b12 level of 138 after b12 loading GP says it's 1438 but 2 weeks after b...

area16rep

•6 years ago

3 Replies

Perhaps not utilising B12 - how to know? what to do?

Hi, I'm new to this forum. I don't *think* I have PA but it's one of several possibilities that I'm looking into. My profile has more info and you're welcome...

Hi, I'm new to this forum. I don't *think* I have PA but it's one of several pos...

muddlemand

•6 years ago

6 Replies

B12 injection

Hi. Bit confused. My gp gave me a prescription for b12 injection. I picked it up today. When I opened the box there were two small sealed bottles inside. I...

Hi. Bit confused. My gp gave me a prescription for b12 injection. I picked it u...

unclefester67

•6 years ago

10 Replies

Today's funny...

I spoke with my GP about my B12 today. She has been harping on that my level has only just dropped since January (337 down to 192) so I cannot possibly have...

I spoke with my GP about my B12 today. She has been harping on that my level has...

Hercules1969

•6 years ago

10 Replies

Sources of B12 for lactose intolerant patient receiving injections

I am vegan because I am lactose intolerant, what sources of B12 are there if I cannot take dairy? I also have Hashimotos and I am also iron deficient, folate...

I am vegan because I am lactose intolerant, what sources of B12 are there if I c...

Opal19

•6 years ago

9 Replies

B6 and B12

Hi I have been having regular B12 injections (3 months) for a year and have also increased my iron intake and Folic Acid. I was having vibrations in my feet...

Hi I have been having regular B12 injections (3 months) for a year and have also...

Springbabyboo

•6 years ago

6 Replies

Self Injection Help

Afternoon lovely people. I am considering self injection of B12. Can anyone recommend a safe andcreputable supplier and also any advice on the type of needle I...

Afternoon lovely people. I am considering self injection of B12. Can anyone reco...

Hidden

•6 years ago

14 Replies

Hi new to this site

Hi all, I am new to this site. I was diagnosed with low B12 in 2017 after sublingual B12 failed to raise my B12 level very much or very quickly. I pulled up a...

Hi all, I am new to this site. I was diagnosed with low B12 in 2017 after sublin...

Opal19

•6 years ago

13 Replies

Which is worse, PA or B12 Deficiency ?

Hi All, New post on B12 Deficiency Info blog. Mentions treatment of people with a PA diagnosis compared with people who do not have a PA diagnosis....

Hi All, New post on B12 Deficiency Info blog. Mentions treatment of people wit...

Sleepybunny

•6 years ago

4 Replies

5 months of B12 supplementation high MCHC, MCH,MCV.

High MCHC, MCH, MCV and normal folate. 5 months of B12 supplementation and just had bloods done (doctor did not do ferritin). Now my MCHC has gone low, MCH...

High MCHC, MCH, MCV and normal folate. 5 months of B12 supplementation and just ...

Katherine123

•6 years ago

Be the first to reply

How much iron do we need a day?

I’m reading conflicting amounts all over the internet Also on pill buying sites..the amounts are strange Such as this: Ferrous Fumarate (Equiv. Iron 24mg)...

I’m reading conflicting amounts all over the internet Also on pill buying sites...

Daisydream92

•6 years ago

1 Reply

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2018

May try something different. Taking an extra b12 sublingual when I'm feeling 'good,' or an extra one at night. Wish me luck please ! ;p ty!

Rotexmedica packs of 10 Hydroxocobalamin B12available again .

Raised levels

Immerging from an Multiple Sclerosis coma.

H. pylori breath test

Ampoules arrived OK from new versandapo.de site

causes of b12 deficiency

High B12, fatigue, and sore joints 24/7

2 months after loading doses

More b12? If symptoms are acting up?

Should I be concerned?

51 and to many issues

Treatment removed

CBD instead of codiene

Where can I buy B12 injections

B12 Advice & Results Help Really Needed!

What is benchmark for b12 levels

I’d be grateful for any advise please.

Reaction to B12

B12 1438????

Perhaps not utilising B12 - how to know? what to do?

B12 injection

Today's funny...

Sources of B12 for lactose intolerant patient receiving injections

B6 and B12

Self Injection Help

Hi new to this site

Which is worse, PA or B12 Deficiency ?

5 months of B12 supplementation high MCHC, MCH,MCV.

How much iron do we need a day?

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