B12 1438????

[area16rep]

I had a b12 level of 138 after b12 loading GP says it's 1438 but 2 weeks after back to being awake to 3 to 4 hours a day and all symptoms have returned. Any advise?????

[clivealive Forum Support]

Hi area16rep

It is not uncommon for some symptoms to appear to get worse before they get better as the B12 starts repairing the damage done to your nervous system and your brain starts getting multiple messages from part of the body it had "forgotten about" or lost contact with.

I sometimes liken it to a badly tuned radio on which you have turned the volume up high trying to catch the programme you want when all of a sudden the signal comes in loud and clear and the blast nearly deafens you.

A lot will depend on the severity and longevity of your B12 deficiency as to how long before there is no further improvement or recovery.

Some symptoms will "disappear" quite quickly whereas others may take months or even years. There is no set timescale as we are all different.

Make a list of your symptoms and present this to your doctor and ask him to treat you according to your symptoms and (perhaps) even re-start you on loading doses "until there is no further improvement" according to the N.I.C.E guidelines below. Click on the link, then on "Scenario: Management" and scroll down to "Treatment for B12 deficiency"

google.co.uk/url?sa=t&rct=j...

If you can get to see your doctor please also ask him to check your Folate level as this and B12 help your iron to make red blood cells and to function properly.

If possible take someone with you who can validate your neurological symptoms as the doctor is less likely to pooh pooh you in front of a witness.

I am not a medically trained person but I've had P.A. (a form of B12 deficiency) for more than 45 years.

I wish you well

.

[area16rep in reply to clivealive]

I am in folate tablets for life since being hospitalised in March this year. I have neurological symptoms but GP won't give more injections than the loading doses and a 3 monthly jab. I have asked for more and printed out the guidelines and given them to the GP. My sister has PA too but the same GP practice gives her a 6 weekly top up. I am thinking about changing GP.

[clivealive Forum Support in reply to area16rep]

That sounds like a good idea area16rep