Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for May 2018

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Hi 3 weeks before my B12 injection my symptoms get worst bad temper spots all over My face itchy skin I've talk to my doctor but all she says is you have...

Hi 3 weeks before my B12 injection my symptoms get worst bad temper spots all ov...

Bloodblood123

•6 years ago

3 Replies

B12 Administered

Thank heavens today I had the jab, I find my mental state improves within 3 hours but everything else can take a good 24 hours.

Thank heavens today I had the jab, I find my mental state improves within 3 hour...

Bethany1977

•6 years ago

1 Reply

Help understanding...

Hi I am looking for some information. So for several weeks now I have felt really drained, week and wanted to sleep all the time. I knew there was something...

Hi I am looking for some information. So for several weeks now I have felt real...

Sdarrien

•6 years ago

7 Replies

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Might avancement in MS research offer hope for PA sufferers?

This article in Forbes came out today and discusses how there have been advancements focused on inflamation, starting in the gut, causing issues with myelin in...

This article in Forbes came out today and discusses how there have been advancem...

KimberinUS

•6 years ago

3 Replies

Injection every 4 months

Also the doctor took me off folic acid and said to have my injection every 4 months

Also the doctor took me off folic acid and said to have my injection every 4 mon...

Sally39

•6 years ago

3 Replies

Shakes waiting for injections

Does anyone get the shakes when waiting for there b12 injections

Sally39

•6 years ago

2 Replies

Greater Diversity in what we eat is good for our microbiome says professor

Another very interesting piece (9 mins to 9.00 am near the very end) on radio 4 'Today' programme this morning : https://www.bbc.co.uk/programmes/b0b2gskt A...

Another very interesting piece (9 mins to 9.00 am near the very end) on radio 4 ...

Polaris

•6 years ago

7 Replies

Trying Different B12 Types

Hiya, I've been sub cut injecting with 1ml of 1500ug hydrox every 2 days for 2 1/2 weeks. I think after feeling worse in some regards i've felt an...

Hiya, I've been sub cut injecting with 1ml of 1500ug hydrox every 2 days for 2 ...

DogInTheDisco

•6 years ago

9 Replies

Testing B12 and Pernicious Anaemia

Hi there, Pretty sure this is my first post but I've been lurking and reading for a couple of months... I've managed to convince my dr to retest my B12 levels...

Hi there, Pretty sure this is my first post but I've been lurking and reading f...

lnjdevereux

•6 years ago

19 Replies

Am finding everything worrying.

Hi, I’ve very grateful for the good advice I’ve received on here over the last week or so thank you. This afternoon I will be receiving my third loading b12...

Hi, I’ve very grateful for the good advice I’ve received on here over the last w...

Winterlight

•6 years ago

13 Replies

Results

Hi everyone... I received the results of my pernicious Anaemia Bloods back today and was wondering if anyone could help me understand them as I’m a little...

Hi everyone... I received the results of my pernicious Anaemia Bloods back today...

Churchy12

•6 years ago

12 Replies

Size of loading dose?

When referencing "loading doses" for b12 treatment how many MCG of B12 are in these doses? 1,000 like a standard injection?

When referencing "loading doses" for b12 treatment how many MCG of B12 are in th...

elvistoronto1

•6 years ago

4 Replies

Methylcobalamin Side-Effects?

Hello! Just a quick question that I would really appreciate any clarification to. A week ago I started taking the Solgar methylcobalamin sublinguals 1000ug -...

Hello! Just a quick question that I would really appreciate any clarification to...

AnnaR10

•6 years ago

13 Replies

Trinsin factors blood test

Hi guys I'm in the UK and had my blood taken for trinsin factor but it's been 2 weeks and results are not bk does anyone no how long they usually take as I'm...

Hi guys I'm in the UK and had my blood taken for trinsin factor but it's been 2 ...

Megan2011

•6 years ago

3 Replies

B12/folate advice please for hypothyroid patient

I have Hashimotos and possible coeliac. My new results for vitamins are Vitamin D 38.2 (25 - 50 deficiency) Folate 2.2 (2.5 - 19.5) Ferritin 28 (30 -...

I have Hashimotos and possible coeliac. My new results for vitamins are Vita...

Kyla665

•6 years ago

7 Replies

B12 advice please(Hypothyroidism)

Hi, I have hypothyroidism and been posting my latest blood test results on the Thyroid UK and they have suggested to post this question as someone may be able...

Hi, I have hypothyroidism and been posting my latest blood test results on the T...

Anniejw

•6 years ago

8 Replies

Considering stopping B6 for a bit. Hands sore and numb,and bottom half of face (still). Thought I had to take with B12?

Also for Ocd? Thought tingling was from B12 deficiency, and maybe other minerals. Cld be the b6? Came across a post here. Dr. Weil also has some info on b6...

Also for Ocd? Thought tingling was from B12 deficiency, and maybe other minerals...

Fl17

•6 years ago

10 Replies

MCT oil seems to be helping with 'permanent' brain damage, from B12 deficiency ? ..been one week

Took coconut oil as well, but decided to try this, and it appears to be working better? Please dont lose hope, you probably dont. Please do your own research...

Took coconut oil as well, but decided to try this, and it appears to be working ...

Fl17

•6 years ago

5 Replies

B12 Deficiency

I just found out that I’m B12 deficient. She said it was so low it couldn’t be detected. Weekly injections for 3 months. First injection was Thursday, I can’t...

I just found out that I’m B12 deficient. She said it was so low it couldn’t be d...

LilliRaindrop

•6 years ago

14 Replies

Dizzy spell when thinking/Recall memory

This may sound really weird, but the best way i can explain the dizzy spells that i get is that, say im trying to picture a memory in my brain, you know when...

This may sound really weird, but the best way i can explain the dizzy spells tha...

leahcim

•6 years ago

13 Replies

Methylfolate, MTHFR and arthritis.

For over 35 years I’ve been suffering from osteoarthritis. Over the years it had been getting steadily worse. But soon after my diagnosis with PA it improved....

For over 35 years I’ve been suffering from osteoarthritis. Over the years it had...

fbirder

•6 years ago

13 Replies

Vit B12

does high level B12 cause numbness in fingertip? (just one)

foxglove

•6 years ago

22 Replies

100 Ampoules of Hydroxocobalamin for £54.62 , including shipping to U.K.

If you can manage German at versandapo.de or you have the translation facility , the above are in stock again .You need to register for your first purchase ....

If you can manage German at versandapo.de or you have the translation facility ,...

wedgewood

•6 years ago

2 Replies

Newly Diagnosed & In need of asvice

I recently been diagnosed with pernicious anemia in March this year, after feeling not myself for a good few months and my hair drastically thinning I decided...

I recently been diagnosed with pernicious anemia in March this year, after feeli...

Joleen1983

•6 years ago

3 Replies

Pain and tingling after self injection of B12

My partner injected my b12 for me last night into my upper thigh and it was more painful than usual as he injected the fluid. He had to go fairly slowly and he...

My partner injected my b12 for me last night into my upper thigh and it was more...

LeanneMarie87

•6 years ago

7 Replies

Maybe useful information about buying B12 in Germany

Hi Everyone, In light of our recent nervousness about possibly losing supplies, and having a little German, I had a hunt around on the Internet. I found this...

Hi Everyone, In light of our recent nervousness about possibly losing supplies, ...

blogsy2

•6 years ago

7 Replies

Can drinking water make your deficiencies worse?

I'm pretty sure i have a mineral deficiency and anemia. My nutritionist put me on iron supplements a few days ago and i also have very low gut immunity....

I'm pretty sure i have a mineral deficiency and anemia. My nutritionist put me o...

healthiskey

•6 years ago

36 Replies

Hi

Hi just recently been diagnosed with pernicious Anaemia. Came as a bit of a surprise as I only went in for a blood test to check my iron level and then had a...

Hi just recently been diagnosed with pernicious Anaemia. Came as a bit of a surp...

KarenCarr

•6 years ago

6 Replies

Blood Test Concerns

Hi all I need a little help with some concerns about a blood test the doctor has asked me to have. I was diagnosed with pernicious anaemia last August. The...

Hi all I need a little help with some concerns about a blood test the doctor has...

Themabinogion

•6 years ago

7 Replies

I itchy skin

Does anyone know one have itching and like little white bumps come on there legs and hands , it's not there all the time, it goes away.

Does anyone know one have itching and like little white bumps come on there legs...

Shirley7144

•6 years ago

3 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2018

Help

B12 Administered

Help understanding...

Might avancement in MS research offer hope for PA sufferers?

Injection every 4 months

Shakes waiting for injections

Greater Diversity in what we eat is good for our microbiome says professor

Trying Different B12 Types

Testing B12 and Pernicious Anaemia

Am finding everything worrying.

Results

Size of loading dose?

Methylcobalamin Side-Effects?

Trinsin factors blood test

B12/folate advice please for hypothyroid patient

B12 advice please(Hypothyroidism)

Considering stopping B6 for a bit. Hands sore and numb,and bottom half of face (still). Thought I had to take with B12?

MCT oil seems to be helping with 'permanent' brain damage, from B12 deficiency ? ..been one week

B12 Deficiency

Dizzy spell when thinking/Recall memory

Methylfolate, MTHFR and arthritis.

Vit B12

100 Ampoules of Hydroxocobalamin for £54.62 , including shipping to U.K.

Newly Diagnosed & In need of asvice

Pain and tingling after self injection of B12

Maybe useful information about buying B12 in Germany

Can drinking water make your deficiencies worse?

Hi

Blood Test Concerns

I itchy skin

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