Which is worse, PA or B12 Deficiency ?

[Sleepybunny]

Hi All,

New post on B12 Deficiency Info blog.

Mentions treatment of people with a PA diagnosis compared with people who do not have a PA diagnosis.

b12deficiency.info/blog/

[deniseinmilden]

Thank you for the link - I have found another list of new, detailed links I haven't read as a consequence - very helpful.

I'm one of those who has been told "but you don't have PA because you are not anaemic"... as if that made my symptoms disappear, and, shame on me perhaps, I have been a bit grumbly about "PA", rather than B12 deficiency since, even though I have gone on to learn the difference (or not)!

[Sleepybunny]

Hi,

"I am one who had 5 loading, retest - you are fine now"

Years ago, I also had one set of loading doses then nothing despite multiple neuro symptoms. IFA test was negative but my symptoms were typical of B12 deficiency (not related to diet).

[Cherylclaire Forum Support]

.........A diagnosis at all would be nice !

Will let you know what it is when I get one.

All I know is that some symptoms are getting better very gradually and that I get very much worse very quickly if I don't inject with B12. I have been doing this every other day since September last year, and yet consultants continue to test my blood and tell me I'm "normal" now......

How do I prove that I can no longer read a book, or follow political discussions, or have an ordinary conversation if music/TV/other people speaking competes for attention ? How "normal" is that ?

So I'd say right now that "no diagnosis" for degenerative deficiencies is worse still.

I may change my mind on that.

[Cherylclaire Forum Support]

...I already have, Sleepybunny ....... I was probably just having a "sorryformyself" moment.

Of course "no diagnosis" is not worse than PA or B12 deficiency; it could potentially be something that is easily cured, for one thing. Starting to think that, after over 3 years, this is less likely. Also running out of consultants and tests.

Besides, I currently still get my 2-monthly NHS injections, and so am still being considered as B12 deficient.

Seems from posts here that all of it is just a lottery: you need luck with your nurse, your GP, your health centre, your local hospital, your consultants all the way along the line to get the proper treatment for your condition, whatever they decide to call it. Then you need luck to keep your diagnosis and of course, your GP, who could leave or retire.

Probably best you never move, if you are lucky enough to get all of these people onside !