'It seems reasonable to offer B12 injections here but I have nothing to add re the frequency, beyond that there are not infrequent patients who get symptoms pre injection. There is clearly no biological explanation, however in the interests of maintaining a working relationship with the patient and the fact that B12 is completely non-toxic, it seems not unreasonable to offer more frequent injections such as 6-8 weekly. I am aware of a number of patients around the area who have these issues. I would be happy to support this, but doubt I can offer a satisfactory explanation to the patient.'
What was written by a Doctor from Gartnavel General Hospital in Glasgow to my GP. I have sent a copy of 'Could it be B12' to this Doctor and also to my GP. I hope they both get the opportunity to read this book and then review the patients they have and may be have not been treating.
I went for my own Vit B12 injection which has changed to every 6 weeks. The reaction of the Nurse was of confusion because of it being changed to 6 weeks instead of 12.
I hope when I actually get to see someone at Neurology they actually know about all the difficulties/problems/issues with this condition and related conditions!!!!
Having problems with claiming PIP benefit has also not helped. Over a year living on £125.05 per wk and just been awarded standard mobility before Christmas. So now an extra £22 per wk on top of that. At least I am not sleeping rough on streets or having to go to a foodbank.
I hope 2018 is good for yous and to yous!!!!