Yet again I feel in limbo! I am yet to have a diagnosis but am awaiting homocysteine and MMA test results from the haematologist. I was self injecting twice a week in October and by the end of October I managed to go for a short run. I had the haematologist appointment come through for start of December so stopped my SI at end of October (in a vain attempt to not skew results knowing that a month is probably not enough time). I was honest with the haematologist about SI but he frowned upon the high frequency of dosing because of potential for low potassium levels. I'd have thought the logical approach would be to tell me to keep going on SI and they'll test my potassium. No! His letter to GP stated "do not increase frequency of B12 above once 3 months". So here I am back in limbo feeling worse than ever - peripheral neuropathy feet, legs, hands, arms, face; so so tired now I can barely function; head tightness and deafening tinnitus etc etc.
I'm off to the GP this morning to discuss as my other half is becoming more and more reluctant to inject as she sees it as me bleating on about "my illness" all the time with very little other evidence to support it.
Deep down I think I should go back to SI and listen to MY OWN body, but I am very worried about low potassium (although I drink coconut water and eat bananas and have low salt now).
Just looking for a bit of support and encouragement from you guys and I feel so alone and sense I am slipping into a dark place.