Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,441 members • 23,719 posts

All posts for July 2017

Guidance needed

This group has helped me with my b12 deficiency greatly and I have been spreading the word about B12 to everyone. Now I have a friend that could do with some...

This group has helped me with my b12 deficiency greatly and I have been spreadin...

mojo2460

•7 years ago

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B12 and Active B12

I've just recently joined the Thyroid community -- I have Hashimoto's and Coeliac -- and was asked to post this query here... Checking back through my B12...

I've just recently joined the Thyroid community -- I have Hashimoto's and Coelia...

Blue_Bee

•7 years ago

2 Replies

Update- Diagnosis turned out to Guillain Barre Syndrome

I took my husband to the ER Wednesday because his condition had gotten so bad. He could barely walk and it was starting to affect his arms. The neurologist...

I took my husband to the ER Wednesday because his condition had gotten so bad. H...

leesielocket

•7 years ago

4 Replies

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Anyone improve after being bedridden?

I was misdiagnosed for several years until I went to an integrative medicine Doctor. I'm so weak, I'm bedridden. My legs don't work; I do use a walker. But...

I was misdiagnosed for several years until I went to an integrative medicine Doc...

Blinkysmom

•7 years ago

17 Replies

B12 or Hypothyroidism, or something else?

A lot of you will already know me on here. About a year ago, I sought advice, after the local doctor in Oman diagnosed me with severe B12 deficiency, but then...

A lot of you will already know me on here. About a year ago, I sought advice, af...

patez

•7 years ago

10 Replies

B12 injections

Hello Foggyme, Gambit, Clive alive et al, I spoke to someone at PAS yesterday and they advised me to print off the document - Update for healthcare...

Hello Foggyme, Gambit, Clive alive et al, I spoke to someone at PAS yesterday an...

Cali25

•7 years ago

9 Replies

Can I take ibuprofen if I have gastritis caused by PA?

I am having a painful reoccurrence of sciatica and wonderedf if it is ok to take ibuprofen short term. I know it can cause gastritis but my gastritis is...

I am having a painful reoccurrence of sciatica and wonderedf if it is ok to take...

Agapanthus1

•7 years ago

7 Replies

Low ferritin

Hi guys Wondering if someone could please help. I get flip flop feeling in my chest. I have thyroid problens but dr says they are ok now but my iron ferritin...

Hi guys Wondering if someone could please help. I get flip flop feeling in my c...

Contra21

•7 years ago

15 Replies

Can you please advice on low B12?

I've been diagnosed with subclinical hypothyroidism- possible Hashimoto;s- but before that,I was diagnosed with severe B12 deficiency (September 2015 149 pg/ml...

I've been diagnosed with subclinical hypothyroidism- possible Hashimoto;s- but b...

irme

•7 years ago

5 Replies

Best symptom list for GP's to treat

Hi Everyone, I am still trying to get diagnosed or treated for B12 deficiency which I strongly suspect I have going by my symptoms. I am going to try again to...

Hi Everyone, I am still trying to get diagnosed or treated for B12 deficiency wh...

Cn13

•7 years ago

11 Replies

Difference between aplastic anaemia and alpha thalassemia minor?

Hi all, Just wondering what the difference between aplastic anaemia is and thalassemia minor? As I have thalassemia minor and can it turn into aplastic anaemia...

Hi all, Just wondering what the difference between aplastic anaemia is and thala...

Crystalee

•7 years ago

2 Replies

B12 Deficiency

Hi all Just posted this on the Thyroid forum and it was suggested this might be the better place to post. I've just read on someone else's post that a...

Hi all Just posted this on the Thyroid forum and it was suggested this might be ...

lucylovesgin

•7 years ago

3 Replies

Too long between injections?

Hi all, Its less than a year since I was diagnosed with B12 problems and I get an injection every 3 months. Two weeks before it's due I feel that I begin to go...

Hi all, Its less than a year since I was diagnosed with B12 problems and I get a...

NanaFifi

•7 years ago

17 Replies

Frustrated and Fed up

Hi, am new to this feeling really frustrated. Don't know where to start so will just jump in. I am thinking of injecting myself but don't know anything about...

Hi, am new to this feeling really frustrated. Don't know where to start so will ...

CleoG

•7 years ago

8 Replies

magnesium oil

I have posted on and off on this site for a while - and had so much help. I am now getting b12 injections every month (after 18 months of struggle). some...

I have posted on and off on this site for a while - and had so much help. I am ...

jillc39

•7 years ago

2 Replies

B12 injections with Folic Acid and Iron.

Can you get B12 injections with Folic Acid and Iron in them or is the only way to take them separately?

Can you get B12 injections with Folic Acid and Iron in them or is the only way t...

Ryaan

•7 years ago

3 Replies

Taking B complex if I'm SI Vitamin B12 ?

Should I be taking a B complex if I'm self injecting B12 every 2 weeks ? At the moment I'm only taking 400ug Folic Acid daily. I'm SI for about 6 months every...

Should I be taking a B complex if I'm self injecting B12 every 2 weeks ? At the ...

Ryaan

•7 years ago

1 Reply

No difference

I was diagnosed with Pernicious Anaemia about 6 months ago along with folate deficiency. I finished my 3 months of folic acid a while back and had my loading...

I was diagnosed with Pernicious Anaemia about 6 months ago along with folate def...

Emsx

•7 years ago

3 Replies

B12 symptoms and sunshine

Hi all I'm Just back from a week in the sun. Although fatigue worsened and I felt wiped out, i felt a real noticeable improvement in my neuro symptoms - esp...

Hi all I'm Just back from a week in the sun. Although fatigue worsened and I fel...

Sharon75

•7 years ago

2 Replies

Needles for IM Vit B injections

After much thinking about it and researching, I have decided that I am going to start self injecting as my GP won't give me loading doses despite severe...

After much thinking about it and researching, I have decided that I am going to ...

jrb85

•7 years ago

12 Replies

Homocysteine and Anti-parietal cell antibody tests if supplementing with Folic acid

Yesterday I took 5mg of folic acid and the day before, 4mg and I have to test anti-parietal cell ab and homocysteine. How long should I wait? Is one week...

Yesterday I took 5mg of folic acid and the day before, 4mg and I have to test an...

AidaA

•7 years ago

12 Replies

Blood test results

Hi. I've just got blood test results back for my daughter whom has been suffering with extreme fatigue. She has had low B12 and ferritin, folate at various...

Hi. I've just got blood test results back for my daughter whom has been sufferin...

Catlover3

•7 years ago

4 Replies

Potassium

Im injecting B12 every other day until no further improvement as per NICE guidelines for B12 deficiency with neuro logical Involvement. I could be needing...

Im injecting B12 every other day until no further improvement as per NICE guidel...

steveb12

•7 years ago

7 Replies

New here and would appreciate some advice

I would be very grateful for some advice from any of you knowledgeable people on this forum. I have been experiencing extreme fatigue, weakness, palpitations...

I would be very grateful for some advice from any of you knowledgeable people on...

flibertygibert

•7 years ago

12 Replies

B12 injections, informaation needed

Hi I'm Robbie I am a women. One year ago I was diagnosed with Autoimmune Atrophic Metaplastic Gastritis. I believe that is spelled correctly. I currently...

Hi I'm Robbie I am a women. One year ago I was diagnosed with Autoimmune Atrop...

robbie4ever

•7 years ago

4 Replies

Hashimotos and b12

I posted on another site today after a phone call from my doctor (long story)but the outcome was I perhaps mistakenly said among other things that over 60s and...

I posted on another site today after a phone call from my doctor (long story)but...

pet-lamb

•7 years ago

3 Replies

Upsetting visit to docs

Finally got to get B12 injection this afternoon. After being persistent with gp that I needed it after 8 weeks. Woke this morning feeling awful.. pain in...

Finally got to get B12 injection this afternoon. After being persistent with gp ...

Mellowmum44

•7 years ago

8 Replies

I want to be a sheep!

I was wandering around the interweb when I came across a sustained release formula of injectable B12 for sheep, readily available for farmers. It says: 'The...

I was wandering around the interweb when I came across a sustained release formu...

topazrat

•7 years ago

11 Replies

MTHFR treatment

Hi all, i know you are not all doctors, but to be honest here in the UK the doctors don't have a clue what im talking about, so hoping someone on here does...

Hi all, i know you are not all doctors, but to be honest here in the UK the doc...

br74649

•7 years ago

8 Replies

Thinking of giving injections a go, help!!!!

Hi all My mum has PA and even though she has some awful symptoms the doctor's still only give her injections every 3 months. I am 36 an starting to have my...

Hi all My mum has PA and even though she has some awful symptoms the doctor's s...

acdoore

•7 years ago

13 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2017

Guidance needed

B12 and Active B12

Update- Diagnosis turned out to Guillain Barre Syndrome

Anyone improve after being bedridden?

B12 or Hypothyroidism, or something else?

B12 injections

Can I take ibuprofen if I have gastritis caused by PA?

Low ferritin

Can you please advice on low B12?

Best symptom list for GP's to treat

Difference between aplastic anaemia and alpha thalassemia minor?

B12 Deficiency

Too long between injections?

Frustrated and Fed up

magnesium oil

B12 injections with Folic Acid and Iron.

Taking B complex if I'm SI Vitamin B12 ?

No difference

B12 symptoms and sunshine

Needles for IM Vit B injections

Homocysteine and Anti-parietal cell antibody tests if supplementing with Folic acid

Blood test results

Potassium

New here and would appreciate some advice

B12 injections, informaation needed

Hashimotos and b12

Upsetting visit to docs

I want to be a sheep!

MTHFR treatment

Thinking of giving injections a go, help!!!!

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