Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,440 members • 23,719 posts

All posts for July 2017

2017 B12 conferences

Hi, Two conferences organised by the person behind "B12 Deficiency Info" website. London Conference: B12 Deficiency, Methylation & Diet Wednesday 27th...

Hi, Two conferences organised by the person behind "B12 Deficiency Info" website...

Sleepybunny

•7 years ago

4 Replies

Failed EMG

Hi although self injecting and on relevant co factors I'm having terrible neuropathy in my right arm and leg, my hand actually claws up and I'm loosing...

Hi although self injecting and on relevant co factors I'm having terrible neurop...

Vicki-s

•7 years ago

1 Reply

Symptoms

I'm si 3times a week but have tremendous pain under my shoulder blade. No lifting or twisting could it be PA relayed

I'm si 3times a week but have tremendous pain under my shoulder blade. No liftin...

Cath-britton

•7 years ago

4 Replies

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Too much MIC B12 overwhelmed my system

Hello everyone, I am in need of some advice. A little background about me. I have had every symptom of a B12 deficiency for 10+ years. Only 5 days after my...

Hello everyone, I am in need of some advice. A little background about me. I hav...

cshelly747

•7 years ago

20 Replies

PA AND THE WORK PLACE

I was diagnosed with pernicious anemia 19 months ago and have to have an injection every 12 weeks, i had my last one a week ago. In may I was so stressed at...

I was diagnosed with pernicious anemia 19 months ago and have to have an injecti...

niece13

•7 years ago

6 Replies

Advice needed

Hi everyone, I'm new to the forum and would love some advice as I really am getting desperate with not getting any answers or support from doctors! At the...

Hi everyone, I'm new to the forum and would love some advice as I really am get...

Chazbadaz

•7 years ago

6 Replies

All symptoms of PA, not showing in bloodwork

Hi, I've been tested twice for intrinsic factor, it has come back negative both times. I was told that was normal, and I am absorbing B12. I have been getting...

Hi, I've been tested twice for intrinsic factor, it has come back negative both ...

Crzygirl

•7 years ago

9 Replies

Hypo but possible Pernicious anaemia

Hi all I have come from thyroid support to ask if someone could take a look at my results? Hypo on 300 levo per day Thyroid function test, will be filed as...

Hi all I have come from thyroid support to ask if someone could take a look at m...

EasyPeasy12

•7 years ago

1 Reply

Could my Mum be B12 deficient?

Hi everyone, I'd really appreciate help on how to get my mum's GP to give her B12 injections. My mother has had MS for over 40 years now. She has also been...

Hi everyone, I'd really appreciate help on how to get my mum's GP to give her B1...

emvj

•7 years ago

4 Replies

b12 and folate +pins and needles

Hello I have just joined hope you can help.Have severe pins and needles in foot and spread up to my knee.Joined a different medical practice on moving and had...

Hello I have just joined hope you can help.Have severe pins and needles in foot ...

wobblw

•7 years ago

4 Replies

Update on the GP visit

Well the GP was more conciliatory today after I threatened to write letters if I didn't get answers. He said that after reading the consultants report which...

Well the GP was more conciliatory today after I threatened to write letters if I...

Cali25

•7 years ago

10 Replies

Vitamin B Injection

After 4 years of neurological symptoms and extreme fatigue, my GP gave in today and gave me a vitamin B injection. He said that he wasn't going to give me a...

After 4 years of neurological symptoms and extreme fatigue, my GP gave in today ...

jrb85

•7 years ago

14 Replies

Sublingual b12 - how much, how often?

I know from previous discussions that some of you here are using sublingual b12. I wonder how much you take, how often, and with how much folate/folic acid? I...

I know from previous discussions that some of you here are using sublingual b12....

BirgitteG

•7 years ago

6 Replies

Methylcobalamin injections - loading doses - dizziness and headaches - should i stop or switch to Hydroxo?

Please help! I have had a week of Methylcobalamin injections but seem to be getting headaches (I never get heartaches in life generally!) and I am very 'spaced...

Please help! I have had a week of Methylcobalamin injections but seem to be gett...

Hidden

•7 years ago

2 Replies

Vitamin B12 level 2000

I'm a 56-year-old woman who recently had a blood test that shows a high level of vitamin B-12. The level is 2000. I have taken the B-12 shots every week with...

I'm a 56-year-old woman who recently had a blood test that shows a high level of...

Ffatima

•7 years ago

4 Replies

PA but now have some stomach issues

Any help comments appreciated. I was diagnosed with PA in 2013. I also have asthma. I'm on 3 monthly injections. Tail end of April I had stomach issues. A...

Any help comments appreciated. I was diagnosed with PA in 2013. I also have ast...

dawniemo

•7 years ago

12 Replies

Side effects after injections

Hi, I had the first of my loading dose injections this morning at half 9 and since then I've gradually felt worse and worse, I have a really bad headache and...

Hi, I had the first of my loading dose injections this morning at half 9 and sin...

KJP723

•7 years ago

2 Replies

How much folate for how long?

Hi 🌞 I would happy to receive some advice 🌞 I've been using b12 sublinguals for about a year now. I started out with 1.000 or 2.000 mcg a day (with probably...

Hi 🌞 I would happy to receive some advice 🌞 I've been using b12 sublinguals fo...

BirgitteG

•7 years ago

8 Replies

Advice on test results & letters to GP from haematology and neurology please

I have now had all the tests that Haematology and Neurology requested: Nerve testing in hands and feet - everything fine Active B12 - above...

I have now had all the tests that Haematology and Neurology requested: Nerve ...

Cherylclaire

Forum Support•7 years ago

4 Replies

More pooh-poohing.

Well, what a waste of time and energy. I plucked up the courage to go back to the doctor, I am not happy with them, so I saw one I haven't seen before, hoping...

Well, what a waste of time and energy. I plucked up the courage to go back to th...

stumpnme1

•7 years ago

4 Replies

B12 low, treated but...

Hello, I have been having awful symptoms for about a yea, worsening as time went on. My pPCP, neurologist, and even bariatric dept missed this for months. I...

Hello, I have been having awful symptoms for about a yea, worsening as time went...

Lorilee60

•7 years ago

12 Replies

Where on Earth Do We Go From Here??

Good Evening to all who read this. My 28 year old daughter is about 28 weeks pregnant with 1st baby. She was diagnosed with low b12 just over a year ago. She...

Good Evening to all who read this. My 28 year old daughter is about 28 weeks pre...

roddogsbody

•7 years ago

6 Replies

Buy B12

Is there anywhere that you can B12 online??

silverhill

•7 years ago

3 Replies

low b12 levels with hypothyroidism

Hello I posted in thyroid forums and my b12 and ferritin is quite low so I was suggested to post here as well I am hypothyroid with possible hashimoto's SERUM...

Hello I posted in thyroid forums and my b12 and ferritin is quite low so I was s...

hypomomoffour

•7 years ago

16 Replies

Normal range b12

Hi my b12 test came back at 240 normal range 200-900, ferritin 20 but was taking iron supplements and heamaglobin normal range but I am having serious b12...

Hi my b12 test came back at 240 normal range 200-900, ferritin 20 but was taking...

Ald1

•7 years ago

13 Replies

Self injection supplies

I have read so many posts that I am now confused, easily done at the moment as I am desperate and just spending my life waiting for my next injection at the...

I have read so many posts that I am now confused, easily done at the moment as I...

carer999

•7 years ago

7 Replies

Borderline B12 Deficiency with neurological problems

Hi, I'm here in search of help for my husband. His symptoms started with a mid back ache, inability to climb stairs, strange sensations (sensitivity to cold...

Hi, I'm here in search of help for my husband. His symptoms started with a mid ...

leesielocket

•7 years ago

19 Replies

waiting 1st 12 week lapse to be over !!!

hi i have been diagnosed with pernicious anemia had my loading dose and my first 12 week injection not due till 7th august.. feeling terrible noticing problems...

hi i have been diagnosed with pernicious anemia had my loading dose and my first...

Mellowmum44

•7 years ago

14 Replies

Blood Test

My B12 was down around 120 when i was tested in April. I had 6 loading jabs and am in the low period waiting for the 3month jab. After some time i felt this...

My B12 was down around 120 when i was tested in April. I had 6 loading jabs and ...

steveb12

•7 years ago

3 Replies

Private Dr

I was diagnosed with PA about a year ago, since then I have had real hit and miss help from my DRs surgery with very little understanding of my symptoms or...

I was diagnosed with PA about a year ago, since then I have had real hit and mis...

lifegems

•7 years ago

3 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2017

2017 B12 conferences

Failed EMG

Symptoms

Too much MIC B12 overwhelmed my system

PA AND THE WORK PLACE

Advice needed

All symptoms of PA, not showing in bloodwork

Hypo but possible Pernicious anaemia

Could my Mum be B12 deficient?

b12 and folate +pins and needles

Update on the GP visit

Vitamin B Injection

Sublingual b12 - how much, how often?

Methylcobalamin injections - loading doses - dizziness and headaches - should i stop or switch to Hydroxo?

Vitamin B12 level 2000

PA but now have some stomach issues

Side effects after injections

How much folate for how long?

Advice on test results & letters to GP from haematology and neurology please

More pooh-poohing.

B12 low, treated but...

Where on Earth Do We Go From Here??

Buy B12

low b12 levels with hypothyroidism

Normal range b12

Self injection supplies

Borderline B12 Deficiency with neurological problems

waiting 1st 12 week lapse to be over !!!

Blood Test

Private Dr

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