loading dose guidelines

[jade_s]

Hi all, I know I should be able to find this information myself as I think i've seen it posted about a million times, but I've been having really really bad brain fog and just can't think straight.

I would like to show my GP the guidelines for loading doses when there is neurological involvement. A link to the Dutch site would be even better as I currently live in a dutch-speaking country. I have an appointment Wed and want to go prepared! I'm looking for some sort of 'official' documentation I can print out, if you know what I mean.

Thanks in advance (both for the help and the understanding! ).

[PAS-admin Partner]

Dutch site: stichtingb12tekort.nl all info there, ' Behandeling '

[jade_s in reply to PAS-admin]

Ah, thank you!!!!!!! It is all there in black and white.

[Hidden]

Good luck. Hopefullt you will be fine.

[jade_s in reply to Hidden]

thanks the numbness in my hands is getting worse but i wonder how much of it is psychosomatic from being hyper-aware about it now LOL! It's pretty bad though, my two pinkies are rather numb.

I checked on the anti IF anitbodies and it seems in this country there's 1 hospital that runs the test, once every 2 weeks, and it can take up to 4 (!!!!!) weeks to get the results. So hopefully I can convince doc to do something about it WITHOUT waiting another month. Now that I've read through the symptoms, I didn't realize how bad and for how long I've had the *neuro* ones - losing balance (for a long time now), shoulder swipes, vision problems, tingling now progressing to numbness. Ugh I hope I'm not exaggerating my symptoms I had been attributing all of these things due to the thyroid/cortisol imbalances I haven't been able to sort out.

[Sleepybunny]

Page 8 "BCSH Cobalamin and Folate Guidelines"

I also found page 29 particularly useful, a diagnosis and treatment flowchart.

[jade_s in reply to Sleepybunny]

awesome thanks! printed out and filed away for my appt tmrw

[Sleepybunny]

"I have an appointment Wed "

Three other things I have taken to appts where B12 might be discussed are

1) PAS symptoms checklist with all my symptoms ticked.

pernicious-anaemia-society....

2) A copy of Martyn Hooper's book "What You Need to Know About Pernicious Anaemia and Vitamin B12 Deficiency"

3)

fbirder has compiled a summary of mainly Uk B12 documents, think there may be some dutch ones too. link to summary in last pinned post on this forum and on his profile page.

There is a dutch translation available of the book "Could it Be B12" by Sally Pacholok and JJ. Stuart which is a very comprehensive book about B12 deficiency.

Other links that might be helpful

pernicious-anaemia-society....

b12deficiency.info/

[jade_s in reply to Sleepybunny]

thank you! I did print out the symptoms list and mark the relevant ones. Not sure I would get the book in time. I also extracted my old labs showing B12 in the 300s without supplemtning, and the most recent one with megalo-whatever anemia. Hopefully all that togteher will be enough for now. thanks