to help provide B12 injections he didnt really go through much of it but he summed up my symptoms and agreed on the loading dose as have been waiting a year to see if it went down ,which it did so good result to be taken seriously.
I got some some B12 Sublingual 1000mg Cyna (too small to read)
When is the best time to take sublungual B12 ?
i have seen articles that mention this is the worse and better brands available also articles that say B12 sublingual dont work as the have done clinical trials but i thought i will give them a try while i wait for the injections and see if helps my symptoms any thoughts from others here?Thanks in advance
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Advice1
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Hi Advice1 I'm not medically qualified but am interested to know why, if your doctor has agreed loading doses (presumably of hydroxocobalamin) you have got B12 sublingual Cyanocobalamin tablets.
Are they what the doctor prescribed or did you source them yourself?
Also, do you know what your Folate level is as this needs to be "healthy" when you start the B12?
Folate from May does not say anything about your current level as it is not stored in the body very long. Get it re-checked and add also ferritin and antibodies IF/PC (see for info our Pinned Posts on the homepage of this forum) to test for pernicious anaemia. I would wait with the sublinguals, just in case the dr wants to test something B12 related first, you don't want to interfere with that.
HI PAS-admin my B12 loading injections are already booked for next week,
so what you mean is i need to test for PA with blood test for Folate and Ferritin and antibodies IF/PC this would confirm PA and if levels are fine i would not be needing B12 Injections or do i have to get, by supplements,, a good level of Folate before the GP can give injections?
No, I mean that it's best to test antibodies before injections as too close to an injection can possible give a false testresult (in case of certain testmethod) It's testing for the cause (pernicious anaemia) not if you have a deficiency, cause that is clear already. The antibodies tests can be negative, and then you still don't know anything about the cause (you have a deficieny, that's clear and needs no further testing) but if it's positive, you have PA, and that will give a clear diagnosis, and the doctor will be less hesitant to give you the proper treatment. And it's good to know in general for several reasons.
And it's good to have a level of folate and ferritin before starting B12, to see if you need to add those as well, otherwise it will feel like the B12 is not doing much.
and why no sublinguals yet? Because you never know if the dr comes up with another test and then your level will look ok, and you run the risk of not getting injections at all. It's just a few more days so I wouldn't take the risk.
There are many causes..any stomach or bowel disease (like Crohn, coeliakie, parasites, Helicobacter-infection etc), some medications, GBP, pancreas insufficiency...and of course lack of B12 in diet. PA is, probably, the most common cause.
Why would it take time to test? Won't they just give a form, you get blood taken and straight after you can have your 1st injection (sorry, not so familiar with UK procedures) If it takes much time then leave it till after the loading dose, and just take some extra folate.
Here in the UK my GP Surgery does not do blood test on site they send you to another GP practice
(HUB) which is not always quick they normally give you an appointment for 1 week or 2 weeks
time.
And not easy just to get an appointment about this with my local GP either that could be another week due to high population in the area.
So it may ,like you say, be best to take extra folate now and then in the future after the B12 Loading dose get the Folate Ferritin and antibodies IF/PC after a few months just before the 3 monthly coming injection?
Also what type of Folate would you recommend to start taking now please,
Thanks for all the kind advice much appreciated too.
Of course, folic acid is perfectly fine for 98% (or so) of the people It's not needed to metabolize B12, other way round, B12 needed to metabolize folate. But they kind of belong together the two, so during loading doses (and when folate is low of course) it helps to take both together.
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It's not needed to metabolize B12, other way round, B12 needed to metabolize folate. But they kind of belong together the two, so during loading doses (and when folate is low of course) it helps to take both together. 
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