Private bloods for B12 and folate - Pernicious Anaemi...

Pernicious Anaemia Society
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Private bloods for B12 and folate

faras66
faras66
10 Replies

Hi

I wonder if i can get some advice. Over the last couple of years my b12 levels have been coming down. I have alot of the symptoms and also neurological symptoms which have been getting worse. B12 deficiency runs in my family and they all receive the injections. I had some tests recently through medichecks and my b12 is 170.4 range 191-663 folate is 2.76 range 4.6-18.7 i have sent these results to my gp with an letter. I have been unwell for a number of years and been diagnosed with Fibro, subclinical hypothyroidism, reynauds, ibs, gastritis i am under an endo at the moment for thyroid. Has anyone been successful in gp taking private blood results or im looking for some extra info to back me up when i have my appt on the 3rd October. The gp is well aware of all my symptoms. Thanks

10 Replies
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puncturedbicycle

All doctors are different, some will take notice of private results and some won't. Some don't even take notice of the results of their own tests!

If you have neuro symptoms and get no joy from the gp you really must think about self-treating before your symptoms become permanent. Are you supplementing?

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faras66

Thanks for your reply. Im not supplementing at the moment im trying to hold off until i see my gp and would like them to treat it. I will def consider if they dont but i want to argue my corner first. Iv gone through the practice manager and said if they dont take the matter seriously i will hold them accountable for any neurological damage. Iv had neuro symptoms for a couple of years but its always been put down to my migraines and reynauds but its got worse and i have neuropathic pain in my spine everyday its awful. I agree they dont even take notice of there own results.

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puncturedbicycle

Yes, I can see your point, but give yourself a time limit and if need be get started on self-treatment. If it looks like they're dragging their heels and it's going to take forever just get on with it. You may tell them they'll be responsible for damage but you need to do the best for yourself. The good thing about that is that it is all within your control. Self-treatment is not expensive or difficult and it may save you from permanent damage.

Have you looked at this site? Informative and useful. b12d.org

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fbirder

If they ignore the private tests then ask for them to repeat the tests. Ask for serum B12 and folate as well as MMA (methylmalonic acid) and anti-IF (Intrinsic Factor) antibodies.

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faras66
faras66
in reply to fbirder

Thank you. I have written down the tests to ask for if they ignore them thank you.

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faras66

Its true what you are saying, if they drag their heals. I will definately take matters into hand. I will have a look on the link and all the info from your message has helped. Thank you for taking the time to do that :)

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puncturedbicycle

My pleasure! I hope you feel better soon.

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Gambit62
Gambit62Administrator

please have a look at this post and the linked blog

healthunlocked.com/pasoc/po...

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faras66
faras66
in reply to Gambit62

Thank you

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PAS-admin
PAS-adminAdministrator

And our Pinned Posts for all info: healthunlocked.com/pasoc (on the right, or on mobile scroll down to end of the page)

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