Hi everyone. I have not been diagnosed with PA yet but I after almost 4 months of illness, I was told that I have a Vit B12 deficiency and have been given injections. These ended 3 weeks ago and I'm still not feeling great. Part of me thinks they've missed something and I've been misdiagnosed, but maybe I'm expecting too much too soon. Should probably give you some background on it.
In April I almost passed out at work and I had been having some mild pains in my kidneys. Immediately I went to a drop-in clinic and was told that I was going to have a kidney stone. Since then I felt extremely fatigued, I'd get gassed out doing very little, weird pressure in my head and I found it hard to concentrate on much of anything. Pains in the kidneys presented to me like a UTI (had them before) but they went away after a couple of weeks.
Over the next month or so I had lots of blood tests which didn't give my GP a clue what was wrong with me. In Feb '15 I was diagnosed with Polycythemia, I stopped smoking and that has resolved itself now but I continued to feel light-headed. GP referred me to a Hematologist in June, thinking that this might be a blood issue. Hematologist did more blood tests and all he could find wrong with me was B12 and folate deficiency. Vit B12 level was 128 at that time. After checking up on B12 deficiency, it does explain a lot of the symptoms I have been having since April.
GP surgery gave me 6 B12 injections over the course of a couple of weeks and as I said, the last one was 3 weeks ago. During these injections I asked a GP how long until I feel well enough to go back to work and he told me 3 weeks. A couple of days ago I started to notice some change but I still feel run down. My brain is working better, fatigue's a little less and I find myself gasping for air less. The tinnitus is still with me, that and an ache on the tops of my feet have been very persistent symptoms. When I was still feeling light-headed after the Polycythemia should have resolved itself I got to thinking that I might be celiac and was feeling improvement when I cut out gluten. That was at the start of the year. After April I asked to be checked for celiac disease with the rest of the blood tests. This came back negative and the Hematologist made note to my GP that "given his persistent GI symptoms, I wonder if there is an element of malabsorption here". I will be seeing him again in a couple of weeks to test for PA.
My employer has been very patient but they can't wait for me much longer. I might have to force myself into going to work although I have not recovered. I'm finding that very stressful.
Wrote more than I meant to there, so if you got this far - thank you. I am just wondering if anyone can relate to this, any similar stories of advice would be appreciated. I can't say that I have felt well supported by the NHS so far and as I haven't recovered yet, I am concerned that maybe it's something else wrong with me they haven't picked up.