Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for June 2016

Looking at buying 100 ampoules is this worth it or ok to keep

I as looking at the site fbirder uses I still can't get enough English up to work it out, but I see Havert do a 100 piece hopefully that means ampoules, but I...

I as looking at the site fbirder uses I still can't get enough English up to wor...

scorpiojo

•8 years ago

8 Replies

Is 10,000mcg of hydroxocobalamin weekly too much?

It is a long story as to how I am on this dose but it is done within the health system though I have to purchase the B12 via a private prescription as only the...

It is a long story as to how I am on this dose but it is done within the health ...

ritario

•8 years ago

15 Replies

feeling right iffy

anyone had a chest infection lately I had one the other week for the first time ever,had antibiotics and still don't feel right, have to go for a chest X-ray...

anyone had a chest infection lately I had one the other week for the first time ...

grigmay57

•8 years ago

7 Replies

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b12 levels normal but ive read they are actually quite low

hi everyone, been looking at some blood test results that my dr said was normal but ive actuall read my b12 is actuall quite low. the level is 224. my symptoms...

hi everyone, been looking at some blood test results that my dr said was normal ...

ozzyosbo

•8 years ago

20 Replies

Comparison of active and ordinary serum vitamin B12 test results

Hi, I've come from the Thyroid UK community: one of the administrators suggested I post a query about vitamin B12 testing here and I would be very grateful for...

Hi, I've come from the Thyroid UK community: one of the administrators suggested...

glamrocks4girls

•8 years ago

4 Replies

a puzzle

I have had PA diagnosed and I have bad neurological pain in feet and legs. (My struggle with frequency of b12 injections is another matter). my gp prescribed...

I have had PA diagnosed and I have bad neurological pain in feet and legs. (My ...

jillc39

•8 years ago

16 Replies

Hey guys, quick question. I don't aspirate? Should i?

Doing 1ml b12 injections twice a week. My doctor told me it's totally fine just poke yourself with it (intramuscular) and the only danger I could make is if I...

Doing 1ml b12 injections twice a week. My doctor told me it's totally fine just ...

Ladyawkward

•8 years ago

19 Replies

Anyone else have constant headaches/eye pain?

Hi, I've had PA for many years and self inject. I also had Graves but now under active after RAI treatment, I've been on 100mg of levothyroxine for over a year...

Hi, I've had PA for many years and self inject. I also had Graves but now under ...

Grifter

•8 years ago

8 Replies

Happy Fathers Day Everyone !!! And Thank You for your kind mgs to my difficult week.

Afternoon everyone, just to say thank you for your kind replies to my post about my difficult week. My ear has calmed down a bit but I'm still phoning docs in...

Afternoon everyone, just to say thank you for your kind replies to my post abou...

Bentleyboo

•8 years ago

3 Replies

I did it! Just a small prick 😊

injection one done.. Must admit, I had a tiny bit left in the syringe:( But it hurt exactly the same as the GP nurse doing it. A scratch.. I'm determined to...

injection one done.. Must admit, I had a tiny bit left in the syringe:( But it ...

scorpiojo

•8 years ago

16 Replies

PAS New website and new membership structure

On Martyn's blogpost today he tells us of a new design for the website, mainly to make it more friendly for tablets and smartphones, and a new membership...

On Martyn's blogpost today he tells us of a new design for the website, mainly t...

fbirder

•8 years ago

2 Replies

New PAS membership structure

Hi, Thought you'd find this post on Martyn Hooper's blog interesting. http://www.martynhooper.com/2016/06/19/coming-soon-our-shiny-new-website/

Hi, Thought you'd find this post on Martyn Hooper's blog interesting. http://ww...

Sleepybunny

•8 years ago

6 Replies

Blood vessel

blimey, I thought I would look at videos again as I intend injecting tomorrow... I then heard one say mind the blood vessels as that's dangerous... So I...

blimey, I thought I would look at videos again as I intend injecting tomorrow......

scorpiojo

•8 years ago

5 Replies

30 Injections and a Decision

After 30 injections I have still not seen any significant improvements. Although I've finally accepted that this is going to take some time, today I had to...

After 30 injections I have still not seen any significant improvements. Although...

Booksellercate

•8 years ago

19 Replies

A little success & perhaps one doctor might just read into this debilitating condition

Well, after all the hassle trying to get to see my doctor, I had an appointment today. Thanks to all the information on this website I was able to put my case...

Well, after all the hassle trying to get to see my doctor, I had an appointment ...

Justified

•8 years ago

12 Replies

B12 drop

Hi my b12 has dropped from 434 to 234 In a month. What would cause this?

misslissa

•8 years ago

4 Replies

Another reason not to be given a B12 injection

10 days ago I went for my first 3 monthly B12 injection. As I had spots on my face , arms and back I asked the nurse what they were. To cut a long story short...

10 days ago I went for my first 3 monthly B12 injection. As I had spots on my fa...

carer999

•8 years ago

10 Replies

Bad couple of days and feeling very low.

What a week I've had.!!!!!! Can't stop crying!!!!!! Last week went alright apart from my ear. Me and my 2 daughters met up for a meal with some friends to...

What a week I've had.!!!!!! Can't stop crying!!!!!! Last week went alright apart...

Bentleyboo

•8 years ago

9 Replies

Learnt I'm Deficient today

Hi all, I have just found out today that I am B12 and folate deficient and looking on this and other web-sites it answers sooooo many questions I have had...

Hi all, I have just found out today that I am B12 and folate deficient and look...

Hidden

•8 years ago

8 Replies

Looking for answers

New here, and need advice. Rec'd a call last wk from GP for B12 deficiency blood tests. Hadn't herd of Pernicious Anaemia - looked on NHS website, and thought...

New here, and need advice. Rec'd a call last wk from GP for B12 deficiency blood...

JoXanAn

•8 years ago

15 Replies

Symptoms are worsening

I've been treating myself with a multivitamin and 5000mcg methylcobalamin sublingual tablet for a while now and all was going well to begin with, my fatigue...

I've been treating myself with a multivitamin and 5000mcg methylcobalamin sublin...

Nathan12345

•8 years ago

11 Replies

A different test for Pernicious Anaemia?

This paper is from 2004. A cancer marker was found to show up in 100% of the patients tested who had pernicious anaemia and reduced to normal levels after...

This paper is from 2004. A cancer marker was found to show up in 100% of the pat...

Laura5

•8 years ago

2 Replies

B12 patches

Hi i get b12 injections every other month & was thinking of topping up with patches as i still have some symptoms can anyone recomend any patches i could use...

Hi i get b12 injections every other month & was thinking of topping up with patc...

nic27

•8 years ago

1 Reply

Dolt !

I am such a dolt.... I have ordered needles but didn't realise I needed syringes....what should I buy ? these are the needles: Sterile Single Use Hypodermic...

I am such a dolt.... I have ordered needles but didn't realise I needed syringes...

Justified

•8 years ago

8 Replies

how do I store these

Sorry for all my questions, I'll get there some day but can you tell me if the hydroxocobalamin needs to be kept in the fridge ?

Sorry for all my questions, I'll get there some day but can you tell me if the h...

Justified

•8 years ago

6 Replies

had booster jabs. now low iron and still feel awful

I have been lucky enough to have the initial 6 booster jabs over two weeks and then one a month for 4 weeks (had 1). now a new blood test shows that my iron...

I have been lucky enough to have the initial 6 booster jabs over two weeks and t...

Robson957

•8 years ago

1 Reply

Please can you keep up the pressure and email the Health Secretary

A small number of rogue drugs companies are fleecing the NHS out of millions of pounds a year. They’re exploiting a loophole that allows them to buy up the...

A small number of rogue drugs companies are fleecing the NHS out of millions of...

Polaris

•8 years ago

3 Replies

So glad you are here...

I don't know what I would do without you all. I would think I was going mad. Feel so good after a b12 injections and that goes on until I have what I call a...

I don't know what I would do without you all. I would think I was going mad. F...

jillc39

•8 years ago

3 Replies

Hello Everyone

Hi All, I was diagnosed with PA about 6 years ago and joined the site soon after but have only posted once before . Thank you all for the help and advice, its...

Hi All, I was diagnosed with PA about 6 years ago and joined the site soon after...

pitney

•8 years ago

8 Replies

Blood test

I think my dad is suffering with low b12, docs said blood test was low but they won't test him again for another 3 months - does anyone know anywhere you can...

I think my dad is suffering with low b12, docs said blood test was low but they...

miccy5

•8 years ago

8 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2016

Looking at buying 100 ampoules is this worth it or ok to keep

Is 10,000mcg of hydroxocobalamin weekly too much?

feeling right iffy

b12 levels normal but ive read they are actually quite low

Comparison of active and ordinary serum vitamin B12 test results

a puzzle

Hey guys, quick question. I don't aspirate? Should i?

Anyone else have constant headaches/eye pain?

Happy Fathers Day Everyone !!! And Thank You for your kind mgs to my difficult week.

I did it! Just a small prick 😊

PAS New website and new membership structure

New PAS membership structure

Blood vessel

30 Injections and a Decision

A little success & perhaps one doctor might just read into this debilitating condition

B12 drop

Another reason not to be given a B12 injection

Bad couple of days and feeling very low.

Learnt I'm Deficient today

Looking for answers

Symptoms are worsening

A different test for Pernicious Anaemia?

B12 patches

Dolt !

how do I store these

had booster jabs. now low iron and still feel awful

Please can you keep up the pressure and email the Health Secretary

So glad you are here...

Hello Everyone

Blood test

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