Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for June 2016

Schwannoma (nerve tumours )

Hi guys In the last 10 years I have had 2 schwannomas one in the inside of my nose the other in the tendon of my lower leg I was told these were in unusual...

Hi guys In the last 10 years I have had 2 schwannomas one in the inside of my n...

Alimeth

•8 years ago

2 Replies

Treatment in the Netherlands

I was just exploring the new PA site and I came across this survey on the Stichting Tekort site. It looks at the diagnosis and treatment of 1500 patients...

I was just exploring the new PA site and I came across this survey on the Sticht...

fbirder

•8 years ago

9 Replies

Active b12 levels

I'm having a private active b12 test on Tuesday. What is classed as deficient? (My total level is 214 = no treatment being given)

I'm having a private active b12 test on Tuesday. What is classed as deficient? (...

chloe2124

•8 years ago

33 Replies

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New to this

Hi so I'm new to this. I've started haven b12 jabs they say I only need them for 12 months. I'm just curious on wat symptoms do people get?

Hi so I'm new to this. I've started haven b12 jabs they say I only need them for...

katyjoa

•8 years ago

17 Replies

LOADING DOSES

I have just been diagnosed with pernicious anaemia by a haematologist. I asked to be referred at the beginning of the year when my doctor refused to give me...

I have just been diagnosed with pernicious anaemia by a haematologist. I asked ...

E-A-S

•8 years ago

18 Replies

B12 deficiency...need urgent help!

Hi everybody! I have read countless posts on this thread and am amazed by the kind of information and support provided by the fellow members. I was diagnosed...

Hi everybody! I have read countless posts on this thread and am amazed by the ki...

Dlonelyguy

•8 years ago

9 Replies

B12 levels drop very quickly- cause unknown. Frequent shots needed

Hi there, I am new to this site and have been doing lots of reading on it. My word, what a supportive bunch! I am 35 years old and since having a child almost...

Hi there, I am new to this site and have been doing lots of reading on it. My wo...

Ausuk

•8 years ago

6 Replies

Ugly feet

My left foot & leg swells sometimes alsi. Middle toes go blac. Doctor doesn't seem to be interested

My left foot & leg swells sometimes alsi. Middle toes go blac. Doctor doesn't se...

Justified

•8 years ago

2 Replies

Any clues b12 ?

I get these on my legs. Doctor is baffled. I'm sure ive seen an image on b12 deficiency s article somewhere

I get these on my legs. Doctor is baffled. I'm sure ive seen an image on b12 de...

Justified

•8 years ago

13 Replies

RHP NERVE SUPPORT

I keep getting ads popping up for this product. Has anyone any information as to whether these are safe/good ?

I keep getting ads popping up for this product. Has anyone any information as to...

Justified

•8 years ago

2 Replies

Why won't doctors listen :-(

Hi everyone, I'm a 35 year old female who feels I have a body of a 80 year old! For years (first found out I had low b12 in 2013 and was told to take a multi...

Hi everyone, I'm a 35 year old female who feels I have a body of a 80 year old! ...

Kells35

•8 years ago

18 Replies

Symptoms

Hi again Does anyone else get extremely hot flushed face sweating a lot at doing very little I'm sitting here tonight and my face is on fire 😞

Hi again Does anyone else get extremely hot flushed face sweating a lot at doin...

Alimeth

•8 years ago

8 Replies

New

I'm new so don't what to do

22ntstcw

•8 years ago

5 Replies

12 Year Old PA?

Hi everyone I had my B12 checked last year and my level was 119. B12 shots every week have been life changing for me. I haven't had checks for PA but my levels...

Hi everyone I had my B12 checked last year and my level was 119. B12 shots every...

Hidden

•8 years ago

22 Replies

Help interpreting B12 results

I am altering my thyroid medication and have also had my B12 and Folates checked. Can anyone help interpret the result? I have been advised I need to be in...

I am altering my thyroid medication and have also had my B12 and Folates checked...

jwestaway

•8 years ago

2 Replies

Newly diagnosed

Hi Iv just recently been diagnosed with pernicious anieama I also suffer from chronic back pain Iv had my loading injections but a month on I still feel as...

Hi Iv just recently been diagnosed with pernicious anieama I also suffer from c...

Alimeth

•8 years ago

19 Replies

B12 treatment query

Hi, I am looking for some advice regarding b12 treatment. So following on from my gp refusing to listen to ma regarding b12 I have changed gp surgery however...

Hi, I am looking for some advice regarding b12 treatment. So following on from m...

CarpaBob

•8 years ago

30 Replies

Oxford biosciences

Hi, I've just ordered some methyl cobalamin from Oxford Biosciences and sterile saline from Germany. When I've mixed the two they won't be sterile as I'll have...

Hi, I've just ordered some methyl cobalamin from Oxford Biosciences and sterile ...

Withattitude

•8 years ago

20 Replies

Banging my head off a brick wall regarding daughter

I feel like I am banging my head off a brick wall where my daughter and her gp is concerned. She's 17 and has suspected endometriosis. She has been on her...

I feel like I am banging my head off a brick wall where my daughter and her gp i...

Spiritwings

•8 years ago

7 Replies

Frosty Endo Knows Nothing About B12 Deficiency!!

Had a very frosty first appointment with endocrinologist today. In fact so frosty I commented to the lovely nurses on the way out who responded with knowing...

Had a very frosty first appointment with endocrinologist today. In fact so frost...

Sallybones

•8 years ago

12 Replies

B12 jabs versus diazepam ??

Saw the doctor yesterday on an unrelated matter and asked her if she would shorten the time between three monthly shots , as problems were coming back sooner...

Saw the doctor yesterday on an unrelated matter and asked her if she would short...

Pinkpeony

•8 years ago

22 Replies

Spare ampoules.

Hi everyone, good afternoon to you all! I have recently ordered ampoules and have received cyanocobalamin instead of hydroxycobalamin, I have obviously made a...

Hi everyone, good afternoon to you all! I have recently ordered ampoules and hav...

Louise-G

•8 years ago

10 Replies

Confused

Had a blood test this week. B12 102 (and I self inject ) foliate normal 431 what's going on? They have agreed to.loading does againthen 12 weekly. But last...

Had a blood test this week. B12 102 (and I self inject ) foliate normal 431 what...

catherinejordan

•8 years ago

21 Replies

Help needed - new blood results back

Please please help me. Had blood results back today. B12 is now 225 (180-910) Background: 21st March - go to dr with numbness in foot 4th April - blood test...

Please please help me. Had blood results back today. B12 is now 225 (180-910) Ba...

chloe2124

•8 years ago

6 Replies

Sharps box disposal

I have told my family I intend to self administer as my doctor will only give monthly as she is afraid to give me too much. I had already purchased everything...

I have told my family I intend to self administer as my doctor will only give mo...

Justified

•8 years ago

12 Replies

Sharpes box disposal

Well I just called a big Tesco and they say they don't dispose and Council would and then the council said they don't take them you take it back to who sold...

Well I just called a big Tesco and they say they don't dispose and Council would...

scorpiojo

•8 years ago

29 Replies

Low B12

Any advice would be appreciated. About 4 years ago I was started on B12 injections due to B12 deficiency. Then about 2 years ago a GP stopped them as my levels...

Any advice would be appreciated. About 4 years ago I was started on B12 injectio...

Girl123

•8 years ago

6 Replies

2ml or 1 ml solution?

I'm just wondering why some B12 ampoules of 1 mg are offered in different amounts of solution . Is there a particular advantage or disadvantage with either?

I'm just wondering why some B12 ampoules of 1 mg are offered in different amount...

wedgewood

•8 years ago

11 Replies

"Geriatric doctor"

Hi guys.... I have been back again to my GP to try to get more frequent B12 shots (did my first selfie three weeks ago) I took a symptom list hi lighted with...

Hi guys.... I have been back again to my GP to try to get more frequent B12 shot...

Pixielula

•8 years ago

15 Replies

West of Scotland Thyroid & B12d Support Group: next meeting Thursday 23 June 2016

Grab a drink from the counter and come and join our friendly, informal group on the sofas at the front of the café on Thursday, 23 June 2016 from 7pm to 9pm at...

Grab a drink from the counter and come and join our friendly, informal group on ...

SailingBy

•8 years ago

1 Reply

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for June 2016

Schwannoma (nerve tumours )

Treatment in the Netherlands

Active b12 levels

New to this

LOADING DOSES

B12 deficiency...need urgent help!

B12 levels drop very quickly- cause unknown. Frequent shots needed

Ugly feet

Any clues b12 ?

RHP NERVE SUPPORT

Why won't doctors listen :-(

Symptoms

New

12 Year Old PA?

Help interpreting B12 results

Newly diagnosed

B12 treatment query

Oxford biosciences

Banging my head off a brick wall regarding daughter

Frosty Endo Knows Nothing About B12 Deficiency!!

B12 jabs versus diazepam ??

Spare ampoules.

Confused

Help needed - new blood results back

Sharps box disposal

Sharpes box disposal

Low B12

2ml or 1 ml solution?

"Geriatric doctor"

West of Scotland Thyroid & B12d Support Group: next meeting Thursday 23 June 2016

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive