Anyone else have constant headaches/e... - Pernicious Anaemi...

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Anyone else have constant headaches/eye pain?

Grifter profile image
8 Replies

Hi, I've had PA for many years and self inject. I also had Graves but now under active after RAI treatment, I've been on 100mg of levothyroxine for over a year and tests show normal thyroid levels. However I've had a constant headache around my eyes for the last 6 weeks. Opthamologist says eyes are fine (after short period of his eye pressure), CT scan normal. I'm v lethargic and have joint pain in thumbs which rheumatologist says is likely to be Osteo arthritis. I'm 42. Anyone have anything similar with regards to the headaches behind/ around eyes? I'm desperate to get rid of them!

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Grifter profile image
Grifter
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8 Replies
Lisahelen profile image
Lisahelen

Hi, what are you injecting and how often? Are you on any other meds and multi vits folic or potassium via food?

Grifter profile image
Grifter in reply toLisahelen

Oops replied but in the wrong place?

Grifter profile image
Grifter

Hi, I've been on duloxetine for 4 years. I inject 0.5ml of methyl irregularly depending on how I feel ranging from daily to monthly. Take iron supplements but haven't taken them for a few weeks.

Gambit62 profile image
Gambit62Administrator in reply toGrifter

is there any correlation between the methyl injections and the headache - some people find that methyl gives them headaches.

Sleepybunny profile image
Sleepybunny

I used to have constant pain in the muscles around my eyes before I started to self treat with B12.

Hoxo profile image
Hoxo

Which blood tests show you have normal thyroid levels? Hope it's not the useless TSH test they are using to decide on your dosage. What are your results? I had awful symptoms after treatment for my Graves and was so unwell on 100 mcg Levothyroxine for many years with 'normal' blood results. I now take NDT and self inject B12. I advise you to get your results and reference ranges and post on here or thyroid uk forum. I sometimes occasionally get eye pain headaches when I'm having a 'flare up'. I think it's when I go hyper but equally headaches are a symptom with hypo. Still hard to work out what happening even after having this disease for 22 yrs!

clivealive profile image
clivealiveForum Support

Hi Grifter I too have had P.A. for many years, suffer head and eye aches and find applying heat by mean of a microwavable mask for five minutes or so eases both of them.

I'm not a medically qualified person - just a fellow sufferer

ndodge profile image
ndodge

Hi, you could also try calcium/ magnesium supplements as they, esp. Mag, can help muscles relax. Sounds like it could be muscle tension? When Clive wrote that he used warm compresses around the eyes it helps- by relaxing the muscles. Maybe like sleepybunny in the post below, you need a bit more b12?

Good luck :-)

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