Had a very frosty first appointment with endocrinologist today. In fact so frosty I commented to the lovely nurses on the way out who responded with knowing smiles. However I was more or less inquisitioned as to why I was there. She was obviously having a off day - I hope. I'd gone well prepared with health history and relevant info because I'm often foggy headed and it makes things easier for me. She wasn't impressed when I asked her to read them but did and took some notes. B12 wasn't the only reason I went but when I mentioned it she just said ' I know nothing about B12 deficiency, see a haematologist' and that was that. Very dismissive manner. I had to tell her my GP was concerned she may have missed something with regard to my sudden Osteoporosis onset and dental decay etc so she condescended to do some blood tests & see me in 3 months time!! Well she won't be seeing me again I can tell you. I was so cross & down that I spoke to their Patient Care Team when I got home, who were extremely nice and helpful and hopefully are arranging for me to see someone different. Have to wait for a phone call.
Then I rang my local hospital haematology department and spoke to an admin person and I didn't care if I sounded stupid or not but I asked if any of their consultants had an interest in B12 deficiency? She went and enquired and told me yes, you just need a referral from your GP.
I needed a positive to end my day on even though it may still not lead to the end result I'm after but it's the last chance saloon before I remortgage my house (I'm acutally too old to get a mortgage) sell the dog and the clothes off my back and go private.
One other thing I learned this week is that NICE carry no clout and have no powers other than advising on heath matters.
thank you for allowing me to vent. I look forward to the day of posting positive news.
And so to bed a good bit later than normal.