I was just exploring the new PA site and I came across this survey on the Stichting Tekort site. It looks at the diagnosis and treatment of 1500 patients (presumably Dutch).
The amazing thing was that, after loading doses, almost 60% of those receiving injections were getting them once a month, or better!
In the UK B12 injections are licensed for use 3 monthly for those with PA and no neurological symptoms. For those with such symptoms it's licensed for use every 2 months.
For some other conditions it's licensed for use up to monthly.
However, it is fairly common for doctors to prescribe off-label (i.e., not within the terms of the license). This is especially true when treating children as many drugs are only licensed for adults.
This is the case with B12. So a doctor treating a 15-year-old with PA would have to go off-label.
Oh thanks for that info, that would be why she keeps telling me the pins and needles in my arms and legs are nothing to do with PA. I expect the Atrial fibrillation I now have is random as well. At least I have to see a Cardiologist for that.
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