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Pernicious Anaemia Society

32,214 members • 23,384 posts

All posts for May 2016

In tears and desperate

My gp had agreed (eventually) to four week b12 injections. however, two weeks on there was no way I could have gone on holiday - so paid privately. Today I...

My gp had agreed (eventually) to four week b12 injections. however, two weeks on...

jillc39

•8 years ago

25 Replies

Just a thought

What if every member on here. wrote to the daily mail with their story. they are always asking for folk to do this. this might highlight the problems that...

What if every member on here. wrote to the daily mail with their story. they ar...

sallyloade

•8 years ago

27 Replies

Bread and Flour Regulations (Folic Acid)

A Bill to amend the Bread and Flour Regulations 1998 to require flour to be fortified with folic acid. What are people's views on this? - Do we need to...

A Bill to amend the Bread and Flour Regulations 1998 to require flour to be fort...

Hidden

•8 years ago

20 Replies

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Brain MRI

Hi all Brain MRI tomorrow, not sure what to expect, any advice? Has anyone had this before?

Hi all Brain MRI tomorrow, not sure what to expect, any advice? Has anyone had...

Galadriel1

•8 years ago

18 Replies

Supplements alongside B12

Hi I plan on ordering the Jarrow B12 lozenges from Amazon as suspect I'll not be offered further injections other than the regulatory 3 monthly ones after my...

Hi I plan on ordering the Jarrow B12 lozenges from Amazon as suspect I'll not be...

Cooper74

•8 years ago

14 Replies

Help Understanding blood results and getting help from NHS

Hi, I have been reading a lot of information regarding B12 deficiency since my doctor request blood tests for this but am having trouble understanding it all....

Hi, I have been reading a lot of information regarding B12 deficiency since my ...

Rachel-285

•8 years ago

14 Replies

B12 and folate patches - any good?

Hi am currently researching supplementing my loading doses with a B12 patch as I suspect my GP will be unlikely to increase/extend my loading doses after the...

Hi am currently researching supplementing my loading doses with a B12 patch as I...

Cooper74

•8 years ago

9 Replies

Feeling awful

Woke up this morning, felt great as the Sun is shining. As the morning has gone on, I feel awful. It's like someone has just zapped my energy away. I'm...

Woke up this morning, felt great as the Sun is shining. As the morning has gone ...

Bentleyboo

•8 years ago

5 Replies

B12 needed before 3 months is up...help!

for a month after my loading doses i felt "back to normal". Tackling housework with a vengeance, things that had needed done for a long time. I even got my...

for a month after my loading doses i felt "back to normal". Tackling housework w...

Justified

•8 years ago

33 Replies

Supplementing folate levels whilst having loading doses B12

Hi me again. Sorry for all the posts but I keep on thinking of questions I hadn't asked - my brain seems to be very sieve-like lately! I'm currently on dose 3...

Hi me again. Sorry for all the posts but I keep on thinking of questions I hadn'...

Cooper74

•8 years ago

17 Replies

B12 frequency

am i read this correctly-cut and pasted from NICE website By intramuscular injection, pernicious anaemia and other macrocytic anaemias without neurological...

am i read this correctly-cut and pasted from NICE website By intramuscular injec...

beew

•8 years ago

16 Replies

B12 borderline deficient

Hi all Update time. GP blood tests confirmed my private results in that I am borderline deficient in B12. Just awaiting doctor to call back and confirm course...

Hi all Update time. GP blood tests confirmed my private results in that I am bor...

steviep43

•8 years ago

6 Replies

Autoimmune gastritis treatment with corticosteroids

Hi, I've been diagnosed with autoimmune gastritis and Helicobacter pylori infection few months ago after endoscopy and blood test. The results: Intrinsic...

Hi, I've been diagnosed with autoimmune gastritis and Helicobacter pylori infect...

veselin_vachev

•8 years ago

10 Replies

Tinnitus

could B12 help with my tinnitus

alderney

•8 years ago

14 Replies

B12 deficiency recovery time

Does anyone know roughly how long it takes to get better from low b12, I've read elsewhere it can take anywhere from 4 months onwards as your body needs to...

Does anyone know roughly how long it takes to get better from low b12, I've read...

Nathan12345

•8 years ago

96 Replies

self injecting and gp's

if so many of us self inject does this give a false reading to gp's who think we are all managing on what they give us? I would love to know your thoughts.

if so many of us self inject does this give a false reading to gp's who think we...

jillc39

•8 years ago

30 Replies

should I tell gp

going for my monthly b12 injection, but I have had one from a private doctor inbetween - should I tell my gp? advise please.........

going for my monthly b12 injection, but I have had one from a private doctor inb...

jillc39

•8 years ago

5 Replies

Knowing rite time to inject IV on folic acid

Hi I started self injecting but after having the third one ,I spaced them out fortnightly I was wiped out and felt distraught crying .wen I saw doctor said...

Hi I started self injecting but after having the third one ,I spaced them out fo...

Leigh6873

•8 years ago

8 Replies

I'm new and don't understand what my B12 should be after first doses.

Unfortunately I got tested only after noticing a MAJOR change after taking b12 and finding family history of early onset PA. I had one 1200mcg sublingual...

Unfortunately I got tested only after noticing a MAJOR change after taking b12 a...

KristenV

•8 years ago

3 Replies

petition reminder

please take a look at https://you.38degrees.org.uk/petitions/petition-pernicious-anaemia-remove-restrictions-on-vitamin-b12-jabs

please take a look at https://you.38degrees.org.uk/petitions/petition-pernicious...

jillc39

•8 years ago

6 Replies

Misdiagnosed? wrongly treated? Years lost? The Guardian newspaper want to hear your story! do it today! Email experience@theguardian.com

http://www.theguardian.com/lifeandstyle/2016/may/20/i-was-misdiagnosed-with-multiple-sclerosis-experience Thank you to the person who flagged this up and which...

http://www.theguardian.com/lifeandstyle/2016/may/20/i-was-misdiagnosed-with-mult...

juliat

•8 years ago

5 Replies

B12 and prolactin

Hi was wondering if anyone else suffers with high prolactin? I was diagnosed with PA 10years ago and currently self inject cyanocobalamin monthly. I am being...

Hi was wondering if anyone else suffers with high prolactin? I was diagnosed wit...

Murfie276

•8 years ago

6 Replies

Balance giddy

Hey guys .... So I'm 5 weeks into my 12 weekly shots, yesterday I started to feel the giddiness light headedness coming back I have forgotten twice this week...

Hey guys .... So I'm 5 weeks into my 12 weekly shots, yesterday I started to fee...

Pixielula

•8 years ago

16 Replies

A new book has given me hope

Clarealbinson

•8 years ago

1 Reply

Yellow acid sick

Hi, as I had my injection I found I brought up yellow bile type sick?? Does anyone know if that's normal please... Thanks and sorry for being graphic... Jo x

Hi, as I had my injection I found I brought up yellow bile type sick?? Does anyo...

scorpiojo

•8 years ago

17 Replies

See Sally Pacholok film in UK

Hi, Noticed this on B12 awareness website. http://b12awareness.org/events-upcoming-past/conference-2016-b12-deficiency-methylation-thyroid-disease/

Hi, Noticed this on B12 awareness website. http://b12awareness.org/events-upcomi...

Sleepybunny

•8 years ago

4 Replies

Thank you!

Really appreciate the replies! Thank you for the advice and the support,so glad to have found this site. Loved the radio analogy ! that makes a lot of sense...

Really appreciate the replies! Thank you for the advice and the support,so glad ...

Janee635

•8 years ago

Be the first to reply

Digestive alternatives to PPI's.

I am so glad I found this site... I'm very new to dealing with B12... have now got books and am well researched. In short what I need to know is information...

I am so glad I found this site... I'm very new to dealing with B12... have now ...

Cybrook

•8 years ago

23 Replies

Return of lost symptoms..and new ones!

I've just had my ninth injection (I've also been on 5000mcg methylcobalamin sublinguals for 4 weeks) and not only have I yet to experience any improvement in...

I've just had my ninth injection (I've also been on 5000mcg methylcobalamin subl...

Booksellercate

•8 years ago

11 Replies

Any advice on going private?

Ok, so in January I was diagnosed with a deficiency in Vitabin B12, the doc tells me that I don't have PA that I just don't absorb vb12. I'm ok at the moment...

Ok, so in January I was diagnosed with a deficiency in Vitabin B12, the doc tell...

Mr_E

•8 years ago

18 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2016

In tears and desperate

Just a thought

Bread and Flour Regulations (Folic Acid)

Brain MRI

Supplements alongside B12

Help Understanding blood results and getting help from NHS

B12 and folate patches - any good?

Feeling awful

B12 needed before 3 months is up...help!

Supplementing folate levels whilst having loading doses B12

B12 frequency

B12 borderline deficient

Autoimmune gastritis treatment with corticosteroids

Tinnitus

B12 deficiency recovery time

self injecting and gp's

should I tell gp

Knowing rite time to inject IV on folic acid

I'm new and don't understand what my B12 should be after first doses.

petition reminder

Misdiagnosed? wrongly treated? Years lost? The Guardian newspaper want to hear your story! do it today! Email experience@theguardian.com

B12 and prolactin

Balance giddy

A new book has given me hope

Yellow acid sick

See Sally Pacholok film in UK

Thank you!

Digestive alternatives to PPI's.

Return of lost symptoms..and new ones!

Any advice on going private?

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