Misdiagnosed? wrongly treated? Years lost? The Guardian newspaper want to hear your story! do it today! Email [e-mail]

[juliat]

theguardian.com/lifeandstyl...

Thank you to the person who flagged this up and which I have only shared

[clivealive Forum Support]

Just sent "My P.A. Story" off to them juliat which you can read by clicking on my name.

[juliat in reply to clivealive]

Well done!!!!!

Good for you, good for all too

well done!

xxxxx

[Hidden]

Thanks, - the problem, for me at least, is that I am still struggling (and being completely stonewalled on the medical side of things, to a good extent) to find out the full extent of exactly what our situation is. - It is only thanks to the awesome people on this site, and information from the PA site, that I am starting to make any progress at all ...but hopefully I will have a story of my own to give them if they have another article in a few months time.

[clivealive Forum Support in reply to Hidden]

Hidden I waited 44 years too long to put my story "together" doing it only this month.

[Hidden]

Well all the best with it, - I really hope you (and others from the site) manage to get your stories told. - For me, as it stands, I can understand what you are saying, but the stories require fact, and fact-based evidence; and 80% of what I have is based on my own research and subject to constant revision as I discover new information and, occasionally, new doctors who will actually carry out tests that I need in order to try and corroborate various details. It took 40 years to get confirmation that I had Hypothyroidism, and has taken me (so far) over 3 years just to get to the point of starting to confirm whether or not I have PA for definite; the Mitochondria side of things is looking to be a non-starter (in this part of the country, at least), and the other issues I can not even begin to address until (and unless) I can get something definite to work with on the PA and Mitochondria side of things.