Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,214 members • 23,384 posts

All posts for May 2016

Advice Please - B12 Deficiency not Pernicious Anaemia

I was diagnosed with a B12 deficiency back in 2013 (after being very ill) and was put on to injections, even though I tested negative for pa. I continued on...

I was diagnosed with a B12 deficiency back in 2013 (after being very ill) and wa...

•8 years ago

Low B12, high B9

Apologies if you read this in the Thyroid forum only I didn't realise this group existed! I got back my results from Blue Horizon and thankfully thyroid...

Apologies if you read this in the Thyroid forum only I didn't realise this group...

•8 years ago

Need help choosing sublingual B12

I have got a bit fed up with feeling like an old wifie about two weeks before my B12 injection of Hydroxocobalamin. ( Have got it down to 6 weeks and they wont...

I have got a bit fed up with feeling like an old wifie about two weeks before my...

•8 years ago

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Ever rising blood count for b12

Hello Folks , a comment on my b12 results would be welcome. In June the result was 1390 ( 191 - 663 ) September 1333 " April. ...

Hello Folks , a comment on my b12 results would be welcome. In June the result w...

•8 years ago

Lichen sclerosis

Hi there. Does anyone with this condition feel it gets worse if you stop B12 supplements? I am hypothyroid, have coeliac, lichen sclerosis and...

Hi there. Does anyone with this condition feel it gets worse if you stop B12 sup...

•8 years ago

allowed injections

Hi all .recently visited endocrinologists and he has agreed I can get B12 injections,my Gp said I didnt need them as my level at 185 was fine and to take 1000...

Hi all .recently visited endocrinologists and he has agreed I can get B12 inject...

•8 years ago

Heartfelt thanks to all.

I have posted a couple of times on here over the last few weeks regarding my 84 year old mum who had a B12 level of 122 (180 - 914) and thanks to the guidance...

I have posted a couple of times on here over the last few weeks regarding my 84 ...

•8 years ago

Methylcobalamin and Headaches

I was wondering if anybody had any specific advice, information or reassurances regarding getting headaches whilst on Methylcobalamin. I'm on 2 x 5000mcg/day...

I was wondering if anybody had any specific advice, information or reassurances ...

•8 years ago

Please could I have some help with sourcing supplies for self injection?

I would appreciate if someone could post links to suppliers of injectable B12 and where I can source needles and syringes. My neuro symptoms have got much...

I would appreciate if someone could post links to suppliers of injectable B12 an...

•8 years ago

How much B12 spray?

Thank you to everyone who posts on here... I have learnt so much about B12D over the last couple of months! I had 6 loading shots which finished on 23rd...

Thank you to everyone who posts on here... I have learnt so much about B12D over...

•8 years ago

Hair loss?

Ever since I stopped receiving treatment 6-7 weeks ago, I've noticed that my hair has started to fall out. My hair is naturally really thick and over this...

Ever since I stopped receiving treatment 6-7 weeks ago, I've noticed that my hai...

•8 years ago

Further to my earlier posts.....

Today I received a copy of a letter from the haematologist I saw a few weeks ago. I was very pleased because he did listen and did do a lot of blood tests and...

Today I received a copy of a letter from the haematologist I saw a few weeks ago...

•8 years ago

Barbie boo

Hi all !can I just say I have been permanently glued to this website since finding .....thank god for you all and your fantastic information sharing ...have...

Hi all !can I just say I have been permanently glued to this website since findi...

•8 years ago

Mislaid information

Hi All, Am still busy trying to get my mum the correct treatment for her B12 and have been digesting the information kindly given to me from people on here...

Hi All, Am still busy trying to get my mum the correct treatment for her B12 an...

•8 years ago

B12 injections online

Hello to everyone - I am new to this site and to the concept of self injecting. I have been vegan since I was 6 years of age and have not taken supplements. I...

Hello to everyone - I am new to this site and to the concept of self injecting. ...

•8 years ago

Not anaemic but borderline low B12

should folic acid be taken with B12 sublinguals even if there's no anaemia ?

should folic acid be taken with B12 sublinguals even if there's no anaemia ?

•8 years ago

Newly diagnosed ? IV infusion to commence

Hi all, just after a bit of advice please. Just been positively diagnosed with pernicious anaemia, following a year of tests and finally a gastroscopy. Waiting...

Hi all, just after a bit of advice please. Just been positively diagnosed with p...

•8 years ago

I'm new but learning fast.

Good morning. Over a year ago I presented with a peripheral neuropathy in both hands and left foot. I felt like I had a sock on up to the knee on that foot. I...

Good morning. Over a year ago I presented with a peripheral neuropathy in both h...

•8 years ago

B12 and heart palpitations.

I am prone to ectopic beats which are essentially heart palpitations. Will the b12 injections make these worse?

I am prone to ectopic beats which are essentially heart palpitations. Will the b...

•8 years ago

Kilmarnock Thyroid & B12d Support Group: next meeting Monday 2 May 2016

Our next meeting will be held on Monday 2 May 2016 from 7pm to 9pm at The Canny Man, 1 Beith Rd, Lugton, Kilmarnock, Ayrshire KA3 4ED. We look forward to...

Our next meeting will be held on Monday 2 May 2016 from 7pm to 9pm at The Canny ...

•8 years ago

Be the first to reply

B12 General and Treatment advice for a Newbie

Hello, After nearly 3 months of going in and out of the doctors with the following symptoms I started to wonder if I was B12 deficient: -numbness/weakness in...

Hello, After nearly 3 months of going in and out of the doctors with the follow...

•8 years ago

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