Hi again! Quick update.....had my six jabs,usually feel worse then a bit better after them so bit of a roller coaster right now. Seems I have a decent doc,nurses telling me different to her so had a follow up with doc who has signed me off for six more jabs as I'm not right yet then 2 mnthly or earlier if I need them. Nurses don't understand this and doc says she's getting grief about it but is sticking to the guidelines and not wavering! So there are good ones out there! I'm just looking for some views/experiences from others re memory firstly...mine seems rubbish still,I used to be switched on and organised now I can barely remember the simplest of things! Secondly ,seem to be getting itchy spots/bumps under the skin on my face,and wondering when my hair might get back to something near to half decent! at risk of sounding vain it's one thing feeling rubbish without looking rubbish too! On the positive....dizziness lots better,headaches no longer a daily event,breathlessness a lot better and some days feel way more cheery than I have before! This is such a weird experience,those close to me can't understand why I suddenly appear to be ill now I'm on treatment,when they thought I was fine till now. This thing was creeping up on me for so long that apart from saying I felt tired and always seemed to have a headache,the rest I didn't mention as I thought it was just me and I was lazy ,or not getting enough rest,stressed etc,I would have been continually moaning if I'd talked about how I feel all this time! Now I know I have something wrong it's allowed me to talk about it but it's made it all difficult for others to understand!
Sorry it's a long one but love to hear if this is similar to anyone else? And other experience of the spots,hair and memory. Also anyone whose had more than the six loading jabs and how they got on eventually? Thanks so much,this site really is a font of info.