Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for April 2016

B12 Deficiency Guidelines Change Date Needed For GP Letter

Hi there, I'm writing a letter to my GP but need to put correct info and I'm unsure who I can quote eg NICE or BCSH or ? as to the change to the official...

Hi there, I'm writing a letter to my GP but need to put correct info and I'm uns...

Sallybones

•8 years ago

5 Replies

Balance

Hi. I have found my neuro symptoms like balance/lurching issues and brain fog are much worse when i am tired and attempt to multi task. Anyone else find this....

Hi. I have found my neuro symptoms like balance/lurching issues and brain fog ar...

19191919

•8 years ago

13 Replies

Test Results Back!

The test results came back that my new Internal Medicine doctor ordered. My feritin level was 12.7 ng/ml and my B-12 was 315 pg/ml. He told me to start...

The test results came back that my new Internal Medicine doctor ordered. My fer...

ChrisVic

•8 years ago

7 Replies

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Contacting our m.p;s?

can we make our voices heard? Is this https://petition.parliament.uk/petitions/111751 the same petition some of us have been signing already? What if we all...

can we make our voices heard? Is this https://petition.parliament.uk/petitions/...

jillc39

•8 years ago

5 Replies

Finally the Doctors and Haematologist are listening

I have kept on at my Doctors, downloaded documents and circled what I wanted them to take note of. Symptoms that we all suffer with and at the end have told...

I have kept on at my Doctors, downloaded documents and circled what I wanted the...

MISSNEATS

•8 years ago

18 Replies

From bad to worse

Hi all, As per my previous post I am battling with my mum's health and her incompetent GP surgery but this latest twist has floored me. We have been waiting...

Hi all, As per my previous post I am battling with my mum's health and her inco...

Moggie

•8 years ago

18 Replies

I'm new here

Hi all I've been following this group for the past month and have gained some great information. This is my very long story of which has mostly happened during...

Hi all I've been following this group for the past month and have gained some gr...

karenryman

•8 years ago

9 Replies

Low ferritin but high iron? GP referral ....

Hi I've been talking to my GP as to why I should have low ferritin (17) yet high iron (35) and a normal MCV. When asked, she's like a rabbit caught in the...

Hi I've been talking to my GP as to why I should have low ferritin (17) yet high...

Tima69

•8 years ago

9 Replies

HELP Please High B12 result

Hi I am wondering if anyone can help me ?? I was having B12 injections I have been a coeliac for 24 years and had a small fibre neuropathy so GP agreed the...

Hi I am wondering if anyone can help me ?? I was having B12 injections I have be...

lynnwin

•8 years ago

9 Replies

Best way/time to take Solgar Vitamin B12 5000mcg

My order for Solgar B12 5000 mcg has arrived. Following comments on here I have also got 1) multi vitamin 2) B complex 3) vitamin D (as also deficient in...

My order for Solgar B12 5000 mcg has arrived. Following comments on here I have ...

carer999

•8 years ago

3 Replies

Self treating B12 with injections from Germany

I downloaded the PDF check from the pernicious anaemia society website and scored 66....

I downloaded the PDF check from the pernicious anaemia society website and score...

th3joker

•8 years ago

11 Replies

Should I push for diagnosis?

Hi all, spoke to my doctor today after being told about low B12 levels (120) over the phone last week. He seems fairly relaxed about things. Apparently...

Hi all, spoke to my doctor today after being told about low B12 levels (120) ove...

Sunshine78

•8 years ago

10 Replies

GP problems

I've recently been diagnosed with pernicious anaemia after a low B12 blood test result, and then also testing positive for anti intrinsic factor antibodies. I...

I've recently been diagnosed with pernicious anaemia after a low B12 blood test ...

evilellie

•8 years ago

28 Replies

What's the next step.

Morning all, Am having to deal with a doctor I dont know or trust regarding my mums health and, although she has been prescribed iron injections, I would like...

Morning all, Am having to deal with a doctor I dont know or trust regarding my m...

Moggie

•8 years ago

7 Replies

Very high B12 folate

Blood tests have come back with B12/folate level at 4.9 & serum at 1936 ng/L. Dr says all results are fine and I obviously do NOT have a deficiency. Despite my...

Blood tests have come back with B12/folate level at 4.9 & serum at 1936 ng/L. Dr...

JaksR

•8 years ago

28 Replies

B12 blood tests

Having had b12 injections 3 monthly for 4 years my docter says i should start having them 6 monthly as my blood tests read at 1100. Tried waiting longer but...

Having had b12 injections 3 monthly for 4 years my docter says i should start ha...

babs67

•8 years ago

10 Replies

B12 Injection Side Effects

Hi All, My wife has suffered with PA for the last 5-7 years after recovering from Crones disease. She's been on Hydroxocobalim for the last 5 years but it now...

Hi All, My wife has suffered with PA for the last 5-7 years after recovering fro...

thefaces

•8 years ago

5 Replies

Breathlessness

Breathlessness Does anyone else still get breathless on exertion. I walk every day (2 young dogs) through sand dunes so reasonably fit, average weight. If...

Breathlessness Does anyone else still get breathless on exertion. I walk every ...

morgan45

•8 years ago

9 Replies

B12- weight gain

Hi am wondering if anyone else has noticed a big weight gain after starting in b12 shots!! I have been having monthly shots since December and have gained...

Hi am wondering if anyone else has noticed a big weight gain after starting in b...

Fiona1039

•8 years ago

26 Replies

please sign petition..

https://you.38degrees.org.uk/petitions/petition-pernicious-anaemia-remove-restrictions-on-vitamin-b12-jabs I know from reading the posts that so many of us...

https://you.38degrees.org.uk/petitions/petition-pernicious-anaemia-remove-restri...

jillc39

•8 years ago

8 Replies

Still tierd after supplementing

I'm self injecting Hydroxo two/three times per week and taking B complex, folate, vit D and iron daily. I'm going to sleep at 12 midnight and waking 10.30 the...

I'm self injecting Hydroxo two/three times per week and taking B complex, folate...

TAB100

•8 years ago

14 Replies

Seeking advice on Adenosylcobalamin for P.A

Hi all, Not sure if this subject has been brought up before - I couldn't find it but apologies if it has. During the course of reading about Pernicious...

Hi all, Not sure if this subject has been brought up before - I couldn't find it...

ODM79

•8 years ago

9 Replies

MMA Testing; B12 Side Effects

I had a B12 test that came back 163 pg/mL. Folate is in range. I've decided to pay for an MNA test to see just how serious this is but I've begun to...

I had a B12 test that came back 163 pg/mL. Folate is in range. I've decided to...

IsabellasGarden

•8 years ago

17 Replies

Fillers in a b12 tablet.anything to avoid?

Any thing i need to avoid ? Does these look ok?

xJJx

•8 years ago

4 Replies

I am new here

I have recently been diagnosed with pernicious anaemia and have had first loading injection. Mentally feeling much better as there is a reason for how I feel,...

I have recently been diagnosed with pernicious anaemia and have had first loadin...

asaund

•8 years ago

22 Replies

Could someone please help with these blood test results

Hi could someone please advise whether these blood tests are alright or whether they could indicate that B12 is low. They are my husbands and I was going to...

Hi could someone please advise whether these blood tests are alright or whether ...

tmoxon

•8 years ago

5 Replies

Active b12 result

I've had a private b12 test and results are below. Does this mean I'm definitely not deficient? Thank you! 97. 25.1 - 165.0

I've had a private b12 test and results are below. Does this mean I'm definitely...

Otes73

•8 years ago

1 Reply

PA since puberty

Hi, I am from Belgium. Sorry if my English is not that great. Had my condition since puberty. I am 40 years now. Diagnosed 2 years ago. Took me1 year to get...

Hi, I am from Belgium. Sorry if my English is not that great. Had my condition...

regulake21222

•8 years ago

15 Replies

Advice for needles and syringes

Can some body please advise what needles and syringes I will need to buy to self inject.

Can some body please advise what needles and syringes I will need to buy to self...

Gudge66

•8 years ago

7 Replies

Can some one tell me please...

I have been on injections now for 10 years initially 3 monthly and for the last 3 years 4 weekly and still have neurological symptoms ie numbness in feet,...

I have been on injections now for 10 years initially 3 monthly and for the last ...

pugdogs10

•8 years ago

10 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2016

B12 Deficiency Guidelines Change Date Needed For GP Letter

Balance

Test Results Back!

Contacting our m.p;s?

Finally the Doctors and Haematologist are listening

From bad to worse

I'm new here

Low ferritin but high iron? GP referral ....

HELP Please High B12 result

Best way/time to take Solgar Vitamin B12 5000mcg

Self treating B12 with injections from Germany

Should I push for diagnosis?

GP problems

What's the next step.

Very high B12 folate

B12 blood tests

B12 Injection Side Effects

Breathlessness

B12- weight gain

please sign petition..

Still tierd after supplementing

Seeking advice on Adenosylcobalamin for P.A

MMA Testing; B12 Side Effects

Fillers in a b12 tablet.anything to avoid?

I am new here

Could someone please help with these blood test results

Active b12 result

PA since puberty

Advice for needles and syringes

Can some one tell me please...

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