Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for April 2016

New member with a few questions

Hi, I've just joined the PAS and am not sure about a few things. Briefly, I was told I was b12 deficient about 10 months ago. The GP hasn't ever explained or...

Hi, I've just joined the PAS and am not sure about a few things. Briefly, I was ...

Andanj

•8 years ago

17 Replies

I'm new

Hi Im new to this siteand as yet have not been diagnosed with thisdisease. IIgot the blood results yestand waiting for appoint for haematologist. Ive got...

Hi Im new to this siteand as yet have not been diagnosed with thisdisease. IIgo...

Buddyhollie

•8 years ago

3 Replies

Other Vit supplements

Hi all, I am finding it difficult to get my head round the vitamins I need to supplement to support the B12 injections. I am presently having B12 twice weekly...

Hi all, I am finding it difficult to get my head round the vitamins I need to su...

Galadriel1

•8 years ago

7 Replies

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Feel awful

Sorry for the moan but today I feel like I've been hit by a bus. I'm putting it down to the methotrexate I take for rheumatoid arthritis. I've woken up this...

Sorry for the moan but today I feel like I've been hit by a bus. I'm putting it...

Spiritwings

•8 years ago

6 Replies

Whoop whoop

So today I woke up...... Easily! No drowsiness or dragging myself up through the layers of fog, I just woke up feeling normal. I swung out of bed not needing...

So today I woke up...... Easily! No drowsiness or dragging myself up through the...

Pixielula

•8 years ago

3 Replies

Sent home with diazapan

Hi I recently self injected three b12jabs over a month ,but I have been tearful and slept for nearly two days ,went bak to doctor today and begged him refer me...

Hi I recently self injected three b12jabs over a month ,but I have been tearful ...

Leigh6873

•8 years ago

14 Replies

Getting into that B12 ‘ampoule'!

I wonder if other people struggle to break the tip off? Finally noticed there’s a little dot. If you break it away from the little dot, it breaks easily!! :-)

I wonder if other people struggle to break the tip off? Finally noticed there’s ...

sirlam

•8 years ago

12 Replies

Does PA cause a Vitamin K deficiency?

Hello All, This is my first post on the PA forum. I was diagnosed at the beginning of January and had my loading doses in February. Ist 12 week injection...

Hello All, This is my first post on the PA forum. I was diagnosed at the begin...

shipscat

•8 years ago

7 Replies

HOW MUCH POTASSIUM DOES EVERYONE TAKE

Hello Everyone, I've recently realised that taking more potassium alongside my B12 is helping me enormously, but sometimes I wonder if I should take more, then...

Hello Everyone, I've recently realised that taking more potassium alongside my B...

Clarealbinson

•8 years ago

2 Replies

oh please please sign petition

https://you.38degrees.org.uk/petitions/petition-pernicious-anaemia-remove-restrictions-on-vitamin-b12-jabs

https://you.38degrees.org.uk/petitions/petition-pernicious-anaemia-remove-restri...

jillc39

•8 years ago

4 Replies

Whoop whoop

B12 is due today big whoop on that ... Clivealive at nearly 75 did I read somewhere your having yours today as well? We are syncronised!! 12 weeks has never...

B12 is due today big whoop on that ... Clivealive at nearly 75 did I read somewh...

Pixielula

•8 years ago

6 Replies

trying to find wedgewood

read a very helpful message wedgewood - but now cant find it again in order to reply. help

read a very helpful message wedgewood - but now cant find it again in order to r...

jillc39

•8 years ago

5 Replies

My P.A. Story

Although my P.A. journey started “officially” on 10th May 1972 events from 13 years before may well have been the true beginning. Around Christmas time in...

Although my P.A. journey started “officially” on 10th May 1972 events from 13 ye...

clivealive

Forum Support•8 years ago

45 Replies

B12 Deficiency and Low Thyroid Function?

I've been on natural thyroid replacement for about 6 years during which time I suspected I also had B12 deficiency but couldn't get anywhere with my doctor. I...

I've been on natural thyroid replacement for about 6 years during which time I s...

LadyNZ

•8 years ago

4 Replies

Good evening everyone, I hope you are well.

It's been a lovely day, the weather was nice and sunny. Couldn't do much today as I'm feeling exhausted and my back is really bad. On a brighter note, did...

It's been a lovely day, the weather was nice and sunny. Couldn't do much today a...

Bentleyboo

•8 years ago

7 Replies

Folate deficient but am I b12 deficient?

I have numbness in my foot so went to dr who did blood tests. Folate was 3.6 and b12 240. I'm on 5mg of folic acid but after 3 weeks of taking them I'm...

I have numbness in my foot so went to dr who did blood tests. Folate was 3.6 and...

chloe2124

•8 years ago

11 Replies

Second page of reults

Page 2

TAB100

•8 years ago

7 Replies

5 in one day

Hi, A post on Martyn Hooper's blog caught my eye. In one day he had 5 people contact him who had had a diagnosis of PA in teh past but had had their injections...

Hi, A post on Martyn Hooper's blog caught my eye. In one day he had 5 people con...

Sleepybunny

•8 years ago

10 Replies

Which Consultant?

I am currently on the eight week injection regime (persuaded my GP to change from 12 weeks) Because I continue to have numbness in lower leg areas, the GP was...

I am currently on the eight week injection regime (persuaded my GP to change fro...

HARBY15

•8 years ago

6 Replies

Active B12 levels

Hi, I've been advised that this is the best board to seek help interpreting some B12 lab results. I understand that this doesn't constitute medical advice, I...

Hi, I've been advised that this is the best board to seek help interpreting some...

ABC100

•8 years ago

14 Replies

Levels Of B12

What are the best levels of B12 what should they be for a person to be healthy?

Jay-46

•8 years ago

20 Replies

CFS or Low B12

Hi, my doctor has diagnosed me with Chronic Fatigue Syndrome, after standard blood tests. All the blood tests have shown B12 just above the normal range. My...

Hi, my doctor has diagnosed me with Chronic Fatigue Syndrome, after standard blo...

hawkis

•8 years ago

18 Replies

Article advising GP's to not follow the NICE Guidelines if they are not appropriate for a patient

Just seen this and thought it might help with anyone going to their GP...

tmoxon

•8 years ago

10 Replies

Everything is being stopped

My latest blood results. My doctor said everything. Is high and he is stopping everything. I argued pleaded and begged for him not to stop B12 but he just...

My latest blood results. My doctor said everything. Is high and he is stopping ...

catherinejordan

•8 years ago

4 Replies

Neuroboin

Going to start self medicating with b12 injections. Has any one tried neuroboin?

Going to start self medicating with b12 injections. Has any one tried neuroboin?...

tactano50

•8 years ago

7 Replies

B12 injections

Hi there, I joined healthunlocked again a couple of days ago after a 2 year absent. I left as I had a mini breakdown caused by my ill health which includes...

Hi there, I joined healthunlocked again a couple of days ago after a 2 year abse...

Bentleyboo

•8 years ago

9 Replies

Blood Test - results

Hi Apologies for the long long post I have Diabetes type 2, Thyroidectomy, B12 deficiency, Calcium Deficiency. I constantly feel unwell with foggy brain,...

Hi Apologies for the long long post I have Diabetes type 2, Thyroidectomy, B12 d...

jobey30

•8 years ago

6 Replies

New and about to start B12 injections

Hi all, I've had gut issues since having my gallbladder out 3 years ago and have to supplement for low Vit d but for the last few months I've had a few odd...

Hi all, I've had gut issues since having my gallbladder out 3 years ago and have...

mazz155

•8 years ago

11 Replies

Help with blood results

Can anyone help with these blood results and tell me which other supplements i may need. (These were taken on 1st april). Having more done tomorrow but folate...

Can anyone help with these blood results and tell me which other supplements i m...

Spiritwings

•8 years ago

3 Replies

A small victory...

I went for the first of 6 loading injections today. As soon as I walked in I asked if the nurse would consider letting me self inject the remaining doses,...

I went for the first of 6 loading injections today. As soon as I walked in I ask...

Sunshine78

•8 years ago

11 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2016

New member with a few questions

I'm new

Other Vit supplements

Feel awful

Whoop whoop

Sent home with diazapan

Getting into that B12 ‘ampoule'!

Does PA cause a Vitamin K deficiency?

HOW MUCH POTASSIUM DOES EVERYONE TAKE

oh please please sign petition

Whoop whoop

trying to find wedgewood

My P.A. Story

B12 Deficiency and Low Thyroid Function?

Good evening everyone, I hope you are well.

Folate deficient but am I b12 deficient?

Second page of reults

5 in one day

Which Consultant?

Active B12 levels

Levels Of B12

CFS or Low B12

Article advising GP's to not follow the NICE Guidelines if they are not appropriate for a patient

Everything is being stopped

Neuroboin

B12 injections

Blood Test - results

New and about to start B12 injections

Help with blood results

A small victory...

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