Balance

[19191919]

Hi. I have found my neuro symptoms like balance/lurching issues and brain fog are much worse when i am tired and attempt to multi task. Anyone else find this. Thank you.

[Gambit62 Administrator]

Personally I'm not surprised that they are worse when tired or trying to do a lot at the same time.

Being tired may be an indication that your B12 is getting low anyway.

Actually both are things that i suspect a lot of people - regardless of a B12 problem or not - would associate with being tired.

[19191919 in reply to Gambit62]

Hi Gambit62. Thank you for the response. I only have to do a few things and I am lurching over. had a stroke as well but far worse since b12 problem. it was treated late and had fallen to 20. This is a good forum thanks for the support 

[jillc39]

yes, lurching and other neuro symptoms worse when I am tired, and also pain in legs and feet in the night.  gp disregards these symptoms.

[19191919 in reply to jillc39]

Thank you for that , it really is an uphill struggle x

[pvanderaa]

Yes absolutely.  I think stress consumes B12.  I use 5000 mcg methyl-b12 sublingual 2x on a daily basis when I feel tired.

I also notice that taking my multivitamin, folic acid (2x 800 mcg), and D3, and B6 midday helps with the afternoon energy level.  I've not isolated to which one does the most.

I also get similar symptoms about 24 hours after eating gluten or dairy.  Have you isolated any food issues?

Do you keep a logbook?

[19191919 in reply to pvanderaa]

Thank you for the  reply. Gluten is a painful experience. tested negative for coeliac but definitely have a lot of problems with gluten. 

[fbirder in reply to 19191919]

It's almost certainly not a gluten problem.

Experiments have shown that people with 'non-coeliac gluten sensitivity' can't tell the difference between gluten-free meals and gluten-containing meals. Interestingly, the experiments were done by the person who first demonstrated non-coeliac sensitivity.

It's though that carbohydrates in wheat-based products called FODMAPs are responsible for the symptoms some people experience.

Of course, gluten or FODMAPs is fairly irrelevant as you still need to avoid wheat. But, in the future, it might prove possible to make FODMAP-free food more easily than gluten-free.

sciencealert.com/scientists...

[19191919 in reply to fbirder]

Hi. Thanks for that. I too read some of these articles. My stomach seems to know about it thats for sure and given the severity of the last attack ( which almost had me in a and e,  I will continue to avoid it. Have often wondered if its the pesticides or something about the glue effect of it that isnt present in gluten free. I certainly know about it if i eat bread !. I do have severe diverticulosis which may also be a factor.  Thank you for taking the time to reply and help me think it through . It would be good if such food was available to try .susan

[19191919 in reply to pvanderaa]

and stress indeed  

[pvanderaa in reply to 19191919]

Here is something I wrote a while back.  I found the logbook gave me back some control and thereby reduced stress.

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Start a logbook, you will have lots of neurological symptoms that have probably been getting gradually worse.

Digestive issues can also be neurological if the vagus nerve has been damaged.

You will need frequent B12 injections and to convince your GP, provide a list of all your symptoms that is dated to him/her and ask for it to be included in your record.

Once you start in injections, if the GP wants to continue testing your B12 levels, insist that it be greater than 1500 pg/ml off the top end of the scale to allow the repair of any nerve damage.

Also you will need to supplement with folic acid, B6 and a daily multivitamin to support B12.

Keep researching. Nerve damage is scary stuff but once your B12 dosage and support vitamins are right things get better at a snail's pace.

The logbook allows you to go back and see progress as it also supports any short term memory loss. You can also use it to evaluate the results of any treatment of your B12 levels.

It can also give you some control back and reduce your stress, which consumes B12.

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Good luck

[19191919 in reply to pvanderaa]

Hiya. Thank you so much for that and for explaining how the log book will help. My GP doesnt seem to know much about it, but is good hearted so I will give it a try. Have a good weekend . Susan x

[BethattheBeach]

I have stopped closing the car door on my foot/ closing the backdoor on my head since I have begun to self inject and so ensure that I'm keeping my B12 levels where they need to be. 

Extra exercise consumes my stores so I need more frequent injections now I'm back exercising. 

Rarely lose words these days which is such a relief.. thought dementia was tapping on the window pane!

There is good advice here so follow the advice - it works!  

Good luck!

[19191919 in reply to BethattheBeach]

Thank you. I may have to consider injecting myself x