Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for September 2015

Low GGT on Blood Result. ls this PA related?

Hi!! Need some assistance deciphering blood work. Can't locate RBC Folate though it was on the blood requisition. Thank you!!...

Hi!! Need some assistance deciphering blood work. Can't locate RBC Folate though...

MarMcL

•9 years ago

8 Replies

What type of symptom is a Swollen Tongue?

I've read about neurological symptoms and the loading doses to bring them under control, but what kind of symptom is a swollen tongue? Mines been swollen for...

I've read about neurological symptoms and the loading doses to bring them under ...

LadyNZ

•9 years ago

5 Replies

To be treated or not be treated – that is the question

How do you know if you have Pernicious Anemia? My Grandmother had it badly, my uncle has B12 Deficiency, I have had low B12 numbers but my GP is so...

How do you know if you have Pernicious Anemia? My Grandmother had it badly, my u...

Hidden

•9 years ago

11 Replies

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is this the correct viles ?

could anyone set my mind at rest before i complete my order, are these the right viles of b12 i need to self inject? sorry to keep asking but i want to get it...

could anyone set my mind at rest before i complete my order, are these the right...

catherinejordan

•9 years ago

12 Replies

Gp was reluctant to give B12 injection

HI Everyone im a newbie for nearly 2years i have been palmed off with antidepressants which i never took as i just didnt feel it was a new GP who started but...

HI Everyone im a newbie for nearly 2years i have been palmed off with antidepres...

Hidden

•9 years ago

4 Replies

Methylcobalamin photolysis and side effects?

I almost dread to ask this, but for the people who suffered side effects from methylcobalamin, had the vitamin been exposed to light? I'm wondering if that...

I almost dread to ask this, but for the people who suffered side effects from me...

Allyson1

•9 years ago

16 Replies

Vitamin B12 Deficiency common in Primary Hypothyroidism

Looking for something else, I came across this research. www.ncbi.nlm.nih.gov/pubmed... "There is a high (approx 40%) prevalence of B12 deficiency in...

Looking for something else, I came across this research. www.ncbi.nlm.nih.gov...

Polaris

•9 years ago

10 Replies

Do I have pernicious anemia?

I can't feel when my muscles and bones are moving, it's like I have lost the sensation of feeling but I can feel a little bit. When I walk I can't fully feel...

I can't feel when my muscles and bones are moving, it's like I have lost the sen...

CherryLala

•9 years ago

4 Replies

OMG need to find sympathetic doctor who will not think I am crazy & diagnose me

My life is spiralling down and down and out of my control. My GP and now neurologist have washed there hands of me an I think they think I am crazy. I have...

My life is spiralling down and down and out of my control. My GP and now neuro...

Babygodmother

•9 years ago

21 Replies

Suspect B12 and folate deficiencies.

Hi, My name is Helen and I am 47 years old. Long term vegetarian (since 19) and raw vegan now (which includes about 20% of my diet as cooked). About 2 years...

Hi, My name is Helen and I am 47 years old. Long term vegetarian (since 19) an...

BarefootHelen

•9 years ago

3 Replies

Does Being B12 Deficient/PA Make You Feel Alone?

Hi. Perhaps this question only applies to those who can't get a diagnosis, but currently (and for last 4 years) I feel so alone and almost frightened. I have...

Hi. Perhaps this question only applies to those who can't get a diagnosis, but ...

LadyNZ

•9 years ago

11 Replies

help i cant read German

i cant understand the form to fill out for delivery on amazon.de bloody hell im so frustrated with it. if only i could read german grrrr can anyone help...

i cant understand the form to fill out for delivery on amazon.de bloody hell im ...

catherinejordan

•9 years ago

5 Replies

Prepare for Doctors tomorrow.

Hi all, Thought I would post an update since the last time i posted on here. I have had my B12 results back and they were 127 ng/ml for B12 and 3.4 ng/ml for...

Hi all, Thought I would post an update since the last time i posted on here. I...

Somberlain

•9 years ago

7 Replies

NHS PA Testing ??

Hi, I'm new here & would be grateful for any help as I've just got back in from a blood test appointment. Back ground... Huge amount of PA in my family, both...

Hi, I'm new here & would be grateful for any help as I've just got back in from ...

rockinHippy

•9 years ago

3 Replies

Subcutaneous injection v. intramuscular?

I just wanted to know if anybody can tell me if there is any difference in how B12 is administered as far as effect goes. Does it take longer to absorb...

I just wanted to know if anybody can tell me if there is any difference in how B...

LadyNZ

•9 years ago

13 Replies

B12, hormones and the menopause

Really looking for experience of others and probably not just the menopause On 27th August my last period started - it still hadn't stopped ... in fact it...

Really looking for experience of others and probably not just the menopause On ...

Gambit62

Administrator•9 years ago

11 Replies

Prescription help!

Hi, So every other prescription of hydroxocobalamin I've had they've given me a box of 5 ampules (£8.20 and this lasts just over a year so the price isn't...

Hi, So every other prescription of hydroxocobalamin I've had they've given me ...

bethH

•9 years ago

10 Replies

Which Way to Turn

Hi everyone. I posted yesterday in the Thyroid UK forum and had some very helpful, friendly and informative replies. One person called Aspmama suggested...

Hi everyone. I posted yesterday in the Thyroid UK forum and had some very helpf...

ExhaustedLee

•9 years ago

51 Replies

Can PPI'S deplete b12 this much?

Vitamin b12 serum 166 250 - 725 Could omerprazole cause this b12 level for a big meat eater and dairy eater? I'm hoping that my low b12 is the...

Vitamin b12 serum 166 250 - 725 Could omerprazole cause this b12 lev...

leahcim

•9 years ago

13 Replies

Palmed off for too long....I am not going into 2016 without injections!

Hi everyone, I posted in here a few months ago and cannot thank everyone who replied enough for there kind words and support. Unfortunately even with the...

Hi everyone, I posted in here a few months ago and cannot thank everyone who re...

dot7

•9 years ago

5 Replies

Help needed

Hi everyone hope someone can help. Was diagnosed with pa about 3 years ago and think I have finally got it under control (hopefully) with injection every 8...

Hi everyone hope someone can help. Was diagnosed with pa about 3 years ago and ...

Moppet

•9 years ago

4 Replies

Injections for PA

Because I am needle phobic why is B12 not available using an auto pen device.

lupin23

•9 years ago

12 Replies

Confused and not sure what to do next?

Hi. I have been reading a lot of the great advice on here and learning a lot of information. I have had an insidious onset of symptoms ie migraines, feeling...

Hi. I have been reading a lot of the great advice on here and learning a lot of...

Lizzie69

•9 years ago

8 Replies

Allergic to Hydroxocobalamin brand

I received B12 injections at the beginning of July, my symptoms have got worse. I attended a Gastro Clinic today, the Doc thinks I may have had an allergic...

I received B12 injections at the beginning of July, my symptoms have got worse. ...

NicRee

•9 years ago

27 Replies

Solgar B12

Hi everyone, I was just looking for some advice on Solgar B12 vitamins on Amazon. There are 1000mcg and 5000mcg sublingual methylcobalamin. 1000mcg is £8 and...

Hi everyone, I was just looking for some advice on Solgar B12 vitamins on Amazon...

Katiepoopops

•9 years ago

5 Replies

Where do you inject?

My nurse injects alternate arm, but can you inject for example your thigh?

Catherine50

•9 years ago

4 Replies

What helps you more? Injections vs Oral ?

Sorry to keep posting on this forum but im curious to know, what has helped you guys the most? Injections or Oral supplements?

Sorry to keep posting on this forum but im curious to know, what has helped you ...

leahcim

•9 years ago

14 Replies

Am I suffering from PA or is it underactive thyroid?

Hi, just had second round of blood tests and still can't get a diagnosis as doc away on holoiday :( Serum B12 is 455 pg/mL (180 - 914) Serum folate is...

Hi, just had second round of blood tests and still can't get a diagnosis as doc ...

stig5882

•9 years ago

20 Replies

Stopped injections

Hiya everyone, why is it that gp,s just suddenly stop injections after 3 year from diagnosis saying b12 levels are fine? Do they really no what they are doing?...

Hiya everyone, why is it that gp,s just suddenly stop injections after 3 year fr...

hotcherry

•9 years ago

6 Replies

Cold Feet and PA

Hi there. I've had B12 injections every 3 months since last year due to my PA. My feet always cold (unpleasant cold). Warm sleepers don’t work at all. My GP...

Hi there. I've had B12 injections every 3 months since last year due to my PA. ...

fred-green

•9 years ago

14 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2015

Low GGT on Blood Result. ls this PA related?

What type of symptom is a Swollen Tongue?

To be treated or not be treated – that is the question

is this the correct viles ?

Gp was reluctant to give B12 injection

Methylcobalamin photolysis and side effects?

Vitamin B12 Deficiency common in Primary Hypothyroidism

Do I have pernicious anemia?

OMG need to find sympathetic doctor who will not think I am crazy & diagnose me

Suspect B12 and folate deficiencies.

Does Being B12 Deficient/PA Make You Feel Alone?

help i cant read German

Prepare for Doctors tomorrow.

NHS PA Testing ??

Subcutaneous injection v. intramuscular?

B12, hormones and the menopause

Prescription help!

Which Way to Turn

Can PPI'S deplete b12 this much?

Palmed off for too long....I am not going into 2016 without injections!

Help needed

Injections for PA

Confused and not sure what to do next?

Allergic to Hydroxocobalamin brand

Solgar B12

Where do you inject?

What helps you more? Injections vs Oral ?

Am I suffering from PA or is it underactive thyroid?

Stopped injections

Cold Feet and PA

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