I posted yesterday in the Thyroid UK forum and had some very helpful, friendly and informative replies.
One person called Aspmama suggested that I post here as she believes there may be some good help and advice from people here. Which I would be very grateful for.
Rather than repeat my post (same title as this post) and the replies here is a link to it here: healthunlocked.com/thyroidu...
In summary I am suffering from the worst exhaustion. It is so terrible it's hard to explain. Whereas a few years ago I felt healthy and well enough to work long hours in a stressful environment, play sports, socialise and do normal things, normal healthy people do. Now I have lost my job, and have no chance of working at the moment as I feel shattered from the moment I get out of bed in the morning. I also feel off balance and dizzy often. I have lots of hypothryoid symptoms such as feeling so cold and hair loss, weight gain.
I was diagnosed hypothyroid with hashimotos in Oct 2013 and coeliac disease confirmed by biopsy shortly afterwards.
Aspmama suggested I should repeat this extract from a letter my endocrinologist sent me following blood tests in October 2014:
"The positive gastric parietal cell antibodies are associated with normal B12 levels but symptoms of flatulence, and gurgling after meals. I wonder whether this is related to a degree of achlorhydria and impaired protein digestion."
Current medication: 100mcg levothyroxine, 20mcg t3. 100mcg pregabalin (for sleep but doesn't help, but does help reduce my anxiety) The levo has only recently been increased since endo dropped it down to 25/50 on alternate days when endo incorporated the t3. I am due a blood test in 3 weeks to see the effects.
Latest blood test results below extracted from my thyroid post:
20/05 (before T3 added) T4 =18.9 (range 10.3 - 24.5) TSH = 0.99 (range 0.27 - 4.20) T3 =3.9 (range 3.5 - 6.5)
28/07 (with T3 and dropping levo down) T4 = 6.5TSH = 1.09T3 = 4.6
WBC 4.7 X10^9/L ( 3.7 to 9.5 ) Auth
RBC 5.03 x10^12/L ( 4.32 to 5.66 ) Auth
HB 161.0 G/L ( 133 to 167 ) Auth
HCT 46.1 % ( 39 to 50 ) Auth
MCV 91.7 fL ( 82 to 98 ) Auth
MCH 32.0 pg ( 27.3 to 32.6 ) Auth
Platelets 205 x10^9/L ( 140 to 400 ) Auth
Neutrophils 2.3 x10^9/L ( 1.7 to 6.1 ) Auth
Eosinophils 0.1 x10^9/L ( 0.0 to 0.5 ) Auth
Basophils 0.0 x10^9/L ( 0.0 to 0.1 ) Auth
Monocytes 0.5 x10^9/L ( 0.0 to 0.8 ) Auth
Lymphocytes 1.8 x10^9/L ( 1 to 3.2 ) Auth
Red Cell Folate In progress
Calcium 2.57 mmol/L ( 2.15 to 2.60 ) Auth
Adjusted Calcium 2.47 mmol/L ( 2.15 to 2.6 ) Auth
Phosphate 0.93 mmol/L ( 0.80 to 1.40 ) Auth
Albumin 47 g/L ( 35 to 50 ) Auth
Alkaline Phosphatase 68 U/L ( 30 to 130 ) Auth
Free T4 6.5 pmol/L ( 10.3 to 24.5 ) Auth
Free T3 4.6 pmol/L ( 3.5 to 6.5 ) Auth
TSH 1.09 mIU/L ( 0.3 to 5.5 ) Auth
I chased the red cell folate twice and got the response that it was "normal". I don't want to push the endocrinologist too much as he is very helpful, and he emails me as his waiting list is many months long.
Vitamin D is now optimal at 86 when tested in May. It was as low as 30 a while ago. "therapeutic level 80+"
This is another extract from the Oct 2014 letter re B12: "normal active B12 and red cell folate (126pmol/L and 738nmol/L respectively" It doesn't mention the ranges though.
5/2/15: B12 = 771pg/ml (range 174-1132)
So my B12 would seem to be in the normal range, which the endo and GP have confirmed. However maybe with the coeliac disease I'm not absorbing it properly?
I feel like I getting worse every day. Private health care stopped when I was pushed out of my job, and the cover was rubbish anyway - most things were excluded, the GP keeps trying to diagnose me with CFS and give me anti-depressants, and the endo, who generally has been really supportive, has done all he can on the NHS. I have had tentative chat with a nutritionist, and a lab testing company. But I don't want to order a bunch of tests, costing money that I don't have coming in, if they're all going to come back in the "normal range."
Any advice would be much appreciated. Thank you to anyone who got to this point, for taking the time to read all this!