Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for December 2017

Misdiagnosis, can I claim?

Hi, I am not sure where I stand with this but I got misdiagnosed with microscopic polyangiitis. I have bronchiectasis and 3 months ago due to a blood test...

Hi, I am not sure where I stand with this but I got misdiagnosed with microscopi...

•6 years ago

Latest research into ANCA associated Vasculitis and Rituximab

Came across this online. It's the report of a clinical trial comparing regular Rituximab infusions for AAV with tailored regimes taking into account ANCA and B...

Came across this online. It's the report of a clinical trial comparing regular R...

•6 years ago

Advice please

Hi my husbands GPA is now quiet (don't like remission) after 6 cycles and high steroids. His lungs are now clear and at the moment he has no other issues. He...

Hi my husbands GPA is now quiet (don't like remission) after 6 cycles and high s...

•6 years ago

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Newly diagnosed. Needing help please.

Hello everyone. I'm newly diagnosed with chronic idiopathic urticaria, leukocytoclastic urticarial vasculitis and cold urticaria. I'm on Ozalimutab,...

Hello everyone. I'm newly diagnosed with chronic idiopathic urticaria, leukocyt...

•6 years ago

Retinal Vasculitis

Hello all! I am new here and am hoping to reach out to others. After a lengthy period of high stress, I had been feeling poorly for at least a year.........

Hello all! I am new here and am hoping to reach out to others. After a lengthy p...

•6 years ago

Flares and relapses

I was diagnosed three and a half years ago with MPA, symptoms beginning in January 2014. I have flared every winter since diagnosis. Does anyone else see such...

I was diagnosed three and a half years ago with MPA, symptoms beginning in Janua...

VasculitisQueen

•6 years ago

Test for aziathioprine levels

I’ve had Chung Strauss for about 5 years now and for most of that time I’ve been on aziathioprine. I did flare around three years ago and my consultant thought...

I’ve had Chung Strauss for about 5 years now and for most of that time I’ve been...

•6 years ago

Christmas Bazaar Fundraising for Vasculitis UK tomorrow in Plymouth 🎄🎅

There will be a Christmas Bazaar in aid of Vasculitis UK on Saturday 2nd December 2017, from 11am to 3pm at the KGP Centre, 163 Renown Street, Keyham, Plymouth...

There will be a Christmas Bazaar in aid of Vasculitis UK on Saturday 2nd Decembe...

Volunteer•6 years ago

Encouraging start to latest steroid dose drop

Got to the end of the first full week on my new steroid dose, 8mg (down from 8.5mg), and definitely looking encouraging. Have some increased bladder...

Got to the end of the first full week on my new steroid dose, 8mg (down from 8.5...

Volunteer•6 years ago

Ear / Hearing complications?

Hello Friends, I am looking for information from anyone who is having ear problems with wegeners granulomatosis? I have had wegeners for 27 years now, and my...

Hello Friends, I am looking for information from anyone who is having ear proble...

•6 years ago

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