Hi,
I am not sure where I stand with this but I got misdiagnosed with microscopic polyangiitis. I have bronchiectasis and 3 months ago due to a blood test which should have been done in the first place i got told i have mild alpha-1-antitrypsin, I am 39.
The problem is due to the diagnosis I was put on a high dose of mycophenolate (1000mg) and prednisolone (30mg) which I took for 18 months. The other issue is that I had appointments cancelled by the hospital (found out from my GP, the consultant had retired) and did not see a consultant for 6 months. When I asked about seeing someone the answer was not until we employ someone!!! Due to this I was told I was not fit to fly and lost my job of which I had only been there 6 months.
Over those 18 months I have never felt so ill with the drugs, it has truly wiped those months from my life. I have slept the best part of 2-3 hours a night whilst trying to be a father to 3 children, husband to my wife and hold a job down.
Since coming off the drugs I am different guy and being treated appropriately, I feel normal again. I currently have a Fostair pump which I don't need to take everyday.