Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for June 2012

Alendronic acid tablets - should we take them?

in common with most of us on steroids, I have been prescribed alendronic acid. I have found it upsets my gastric system and makes me feel pretty dire so...

in common with most of us on steroids, I have been prescribed alendronic acid. ...

Ayla

Volunteer•12 years ago

22 Replies

name of consultant

I have urticarial vasculitis, I have had it for 20years without any real problems,I am taking anti histamines, however since october last year i have had 8...

I have urticarial vasculitis, I have had it for 20years without any real problem...

jackrussell

•12 years ago

6 Replies

SUPPORT GROUP - LINCOLN (BBQ)

Pamela is having problems with her broadband but wants everyone to know the BBQ is still planned for this coming Sunday. Weather forecast not too good but "if...

Pamela is having problems with her broadband but wants everyone to know the BBQ ...

PatriciaAnn

•12 years ago

2 Replies

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Drug Trials on 'Doctors'

Has anyone been watching Doctors? I know, get a life, I only watch it while having lunch, honest! Although it is a soap they are very good at covering current...

Has anyone been watching Doctors? I know, get a life, I only watch it while havi...

LynneJ

Vasculitis UK•12 years ago

1 Reply

Please can anyone give me the names of the urology consultants at RPH who deal with vasculitus

Pest1

•12 years ago

7 Replies

I have recently (6 months ago) been diagnosed with vasculitis and have found that I am getting runny eyes, is this to do with the condition.

longbank123

•12 years ago

11 Replies

Can anyone tell me what tests required for diagnosis of takayasu arteritis?

Hidden

•12 years ago

14 Replies

Could anyone help with my puzzle please? I've been on Septrin Forte 960mg 3 per week, since January 2007 when WG was diagnosed.

The last meeting I had with my Rheum. Consultant suggested I'd be on it for life. My Nephrologist, 2 weeks later suggested it be stopped as he thought it was...

The last meeting I had with my Rheum. Consultant suggested I'd be on it for life...

braindamage

•12 years ago

5 Replies

Rallying today with Andrew Irving...... Andrew has WG.

Andrew is a Rally driver and has been in a rally today and I will quote his comment as I did not understand it until Patricia Ann explained. "Finished 13o/a...

Andrew is a Rally driver and has been in a rally today and I will quote his comm...

John_Mills

Volunteer•12 years ago

Be the first to reply

Bilateral hearing loss?

Hi, just wondered if many of you suffer or have suffered from hearing problems? One. of my daughters has systemic lupus and is having tests for vasculitis ,she...

Hi, just wondered if many of you suffer or have suffered from hearing problems? ...

nanny4

•12 years ago

8 Replies

Still haven't heard from you

Dear John and Susan, Some time ago a copy of the 'roadmap for vasculitis' was published and I asdked if i could have one for Headway Essex. The reply that...

Dear John and Susan, Some time ago a copy of the 'roadmap for vasculitis' wa...

AndrewT

•12 years ago

4 Replies

wg on house at last!

just watched an episode of house - s7 ep22 and they finally diagnosed wg! they have suggested it many times, but I cheered when xomeone finally had it....

just watched an episode of house - s7 ep22 and they finally diagnosed wg! they h...

hamble99b

Volunteer•12 years ago

6 Replies

If anyone is on progabalin for nerve pain what dose are you on. Thank you.

Cloe

•12 years ago

17 Replies

Proposed Vasculitis Support Group meetings

VSGs are planned for Essex and Cambridge. If you are interested in attending or want further details please contact the organisers: Essex - early September...

VSGs are planned for Essex and Cambridge. If you are interested in attending or ...

PatriciaAnn

•12 years ago

2 Replies

33 an just diagonsed any feedback welcome

Im 33 an just diagnosed any feedback would b welcome

aimee

•12 years ago

15 Replies

Why symptoms we report to our rhumatologist or doctors ignored so often?

I have CSS which I have had for 17yrs, I feel despondent when I have been to a rhumatology appt because unless I delve for indepth answers (don't always feel...

I have CSS which I have had for 17yrs, I feel despondent when I have been to a r...

Mumito66

•12 years ago

5 Replies

Marathon Blog 9

My name is Jamie Flanagan. This year I have ran in the Rome marathon, Plymouth half marathon and will be running in the Dundee and Berlin Marathon's (as well...

My name is Jamie Flanagan. This year I have ran in the Rome marathon, Plymouth h...

jimdrum

•12 years ago

1 Reply

What do blood tests reveal?

Hi My name is Sue and l am from Australia. I tested positive for p-ANCA but negative for MPO,PR3 and C-ANCA? Also my ACE levels were elevated. Thinking it...

Hi My name is Sue and l am from Australia. I tested positive for p-ANCA but neg...

Shezian

•12 years ago

13 Replies

Full body c.t scan for vasculitis!

Can anyone tell me if a full body c.t scan can pick up scarring on vessels etc? And also how a body. c.t scan may be able to tell if my daughter has...

Can anyone tell me if a full body c.t scan can pick up scarring on vessels etc? ...

nanny4

•12 years ago

6 Replies

my sister with CSS woke up with a red rash on her face and neck, also her neuropathic pain in her foot is in more pain, Is this normal?

I said for her to take an anti-histamine for now. On Friday gone my sister had her 3rd bout of Cyclophosphormide, also that day her prednisolone lowered...

I said for her to take an anti-histamine for now. On Friday gone my sister ha...

Cloe

•12 years ago

5 Replies

Churg strauss symptoms

I have been diagnosed with churg strauss vas but a lot of my symptoms dont fit into the pattern ie easily brusing and calf muscle pain arn't related to this...

I have been diagnosed with churg strauss vas but a lot of my symptoms dont fit i...

bargibar

•12 years ago

12 Replies

Just been refused disability living allowance, does anyone else get it for vasculitis?

longbank123

•12 years ago

19 Replies

Mark, Ian & Lins Yorkshire 3 Peaks Challenge

Please read Mark and Lindsey's story on their justgiving page. Mark has WG. They will be walking the 3 peaks in Yorkshire, in September, fund raising for...

Please read Mark and Lindsey's story on their justgiving page. Mark has WG. They...

John_Mills

Volunteer•12 years ago

Be the first to reply

Adoption approval for vasculitis sufferers?

Has anyone out there suffering from vasculitis had experience of trying to adopt children. We are in scotland and my husband has cutaneous vasculitis- (we...

Has anyone out there suffering from vasculitis had experience of trying to adopt...

Debmac

•12 years ago

2 Replies

Patriciaw

Does anyone have Poly Artertis Nodosa?

Patriciaw

•12 years ago

1 Reply

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for June 2012

Alendronic acid tablets - should we take them?

name of consultant

SUPPORT GROUP - LINCOLN (BBQ)

Drug Trials on 'Doctors'

Please can anyone give me the names of the urology consultants at RPH who deal with vasculitus

I have recently (6 months ago) been diagnosed with vasculitis and have found that I am getting runny eyes, is this to do with the condition.

Can anyone tell me what tests required for diagnosis of takayasu arteritis?

Could anyone help with my puzzle please? I've been on Septrin Forte 960mg 3 per week, since January 2007 when WG was diagnosed.

Rallying today with Andrew Irving...... Andrew has WG.

Bilateral hearing loss?

Still haven't heard from you

wg on house at last!

If anyone is on progabalin for nerve pain what dose are you on. Thank you.

Proposed Vasculitis Support Group meetings

33 an just diagonsed any feedback welcome

Why symptoms we report to our rhumatologist or doctors ignored so often?

Marathon Blog 9

What do blood tests reveal?

Full body c.t scan for vasculitis!

my sister with CSS woke up with a red rash on her face and neck, also her neuropathic pain in her foot is in more pain, Is this normal?

Churg strauss symptoms

Just been refused disability living allowance, does anyone else get it for vasculitis?

Mark, Ian & Lins Yorkshire 3 Peaks Challenge

Adoption approval for vasculitis sufferers?

Patriciaw

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