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Vasculitis UK

7,783 members • 6,757 posts

All posts for January 2012

Sorting Out Vasculitis Damage From Disease : Rheumatology News www.rheumatologynews.com

The above link was posted on a facebook site,. This is a qutote- Dr. Seo highlighted nasal blockade/chronic discharge/crusting (32%), hypertension (22%),...

The above link was posted on a facebook site,. This is a qutote- Dr. Seo highlig...

•12 years ago

Nasal detritus problems.

If you read these messages over your breakfast croissant, I should stop now, and I apologise for the revolting nature of the question. On one of my stays in...

If you read these messages over your breakfast croissant, I should stop now, and...

•12 years ago

Hi, Just a quickie question, My muffled ears are worse?

and my urine test shows PH8, no glucose,Ketones 0, nitrate 0, Protein1+30(0.3). blood2+1 (ca.25) ketones 0, Luekocytes 2+(ca.75), Protein1+30(0.3). blood2+1...

and my urine test shows PH8, no glucose,Ketones 0, nitrate 0, Protein1+30(0.3). ...

•12 years ago

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Forthcoming Events!!! Some dates for your diary.

International Rare Disease Day is Wednesday 29th February 2012 Vasculitis Support Group Meetings Saturday 3rd March 2012 at the Caledonian Hotel on...

International Rare Disease Day is Wednesday 29th February 2012 Vasculitis ...

Volunteer•12 years ago

I have a GCA, and wondered if anyone thought they would never get better

I have had GCA, for about a year now, any have come down from 60mg of perdnisolone per day to now 4mg, I feel worse now than ever, no energyamd pretty painful,...

I have had GCA, for about a year now, any have come down from 60mg of perdnisolo...

•12 years ago

depression?????

it may be of interest to all you out there to hear how fellow sufferers cope with the spells when a new problem occurs or the old ones feel too much to bear...

it may be of interest to all you out there to hear how fellow sufferers cope wit...

•12 years ago

14 year old son just diagnosed with MPA, little information on long term prognosis, does anyone know?

His lungs and kidneys have been affected, but still has 50% of his kidneys functional. Has been placed on cyto and pres. Any long-term studies out there on the...

His lungs and kidneys have been affected, but still has 50% of his kidneys funct...

•12 years ago

New Poll January 2012

Please complete the new poll for January 2012. Please put the actual speciality for which your consultant is qualified. According to the GMC register there is...

Please complete the new poll for January 2012. Please put the actual speciality ...

Volunteer•12 years ago

Hope you all had a wonderful Christmas/New Year. I have WG/GPA and am currently suffering from strange sensation in left ear.

The only way to describe it is like putting a conch shell to that ear...a sort of muffled reverberation (sea waves) which is constant and makes me dizzy.Is it...

The only way to describe it is like putting a conch shell to that ear...a sort o...

•12 years ago

Suppot Group in the Channel Islands for WG sufferers?

•12 years ago

Has anyone been diagnosed with curtaneous vasculitis?

I would love to hear from anyone with this diagnosis. Many Thanks Jenny

I would love to hear from anyone with this diagnosis. Many Thanks Jenny

•12 years ago

Diabetes in vasculitis sufferers

Having been diagnosed in march 2011 with vasculitis(WG?) and having the cyclo pulses and put on prednisolone, which i'm now down to 5mg, and now a maintenance...

Having been diagnosed in march 2011 with vasculitis(WG?) and having the cyclo pu...

•12 years ago

new WG sufferer

Hi I just got told before christmas that I have WG and will get an appointment in the new year for treatment . I am scared and cant take it in that i am ill....

Hi I just got told before christmas that I have WG and will get an appointment ...

•12 years ago

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