blue toe

[Kc_1411]

has anyone experienced a very painful and blue to

[Kc_1411]

TOE**

[kimbalina in reply to Kc_1411]

yes I have. Although I assumed it was the usual raynauds symptom I did go to the hospital to get it checked thank god. I had all sorts of tests the last of which was a contrast CT scan. They found an embolism on my aorta and that a piece had broken away and travelled to my foot and blocked a vein to my toe!! I am already on warfarin due to anti phospholipid syndrome and then they prescribed an anti clotting drug and statins which brought the toe back to normal quite quickly. I strongly suggest you get it checked just in case. Good luck

[Kc_1411 in reply to kimbalina]

thank you it’s been a few days will contact scleroderma team

[Kc_1411 in reply to kimbalina]

omg scary will get it checked asap glad your ok x

[Kc_1411 in reply to kimbalina]

was the toe numb or did u have feeling as mine is very painful

[kimbalina in reply to Kc_1411]

it was not numb and sore but not as sore as when the blood supply returned!!

[Hidden in reply to Kc_1411]

I think your toe might need a trip to A & E. I was lucky. It’s gone back to normal but yours sounds like Blue Toe Syndrome. I think it needs checking rather than waiting. Good luck!

[Kc_1411 in reply to Hidden]

thanks when I lay down I found the colour returns but when walking on it it gets blue

Waiting on call back from gp

[Hidden in reply to Kc_1411]

it’s vasculitis then not a blood clot. You will be offered the same meds as I was I should think. It’ll be ok. It’s a horrible pain though. I feel for you. I hope you feel better soon. Let me know how you get on. I will be thinking about you.

[Hidden]

Hi, yes this is me. It was my presenting symptom. How you getting on? Mine has taken 6 months to get back to normal but I’m not looking tii or reward to winter.

[Hidden in reply to Hidden]

*forward.

[Kc_1411 in reply to Hidden]

did you get any meds for it

[Hidden in reply to Kc_1411]

This was December. I was sent from GP to emergency vascular clinic. I had CT angiogram to confirm not a blood clot, which it wasn’t. They wanted to admit me over Christmas for 5 days of Iloprost. I declined. They then wanted to try me on Nifedipine but I also declined this .

I then got to see the Rheumatologist for the first time in January. She suggested Amlodipine to start which I will start in October ready for my annual chilblain season in November.

My blue toe was caused by Raynauds and chilblains. I didn’t even know I had Raynauds and now I have had diagnosis of Limited Cutaneous Systemic Sclerosis.

[trunchalobesity]

how long has it been blue?

Suggests lack of O2, please see your go asap