Has anyone had flolan infusion for ra... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Has anyone had flolan infusion for raynauds being referred as no other medication worked

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being referred as no other medication or iloprst infusion worked. Norther Ireland based not sure if it's day patient is it like iloprst 8hr drip over how many days? Wasn't given much info .Any info would be great, dread it to be honest, also suggested I go on steroid tablet not keen either, mixed connective IBS lot of other digestive problems Raynauds is horrible 😢

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