Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for February 2018

Help with crest symptoms

Hi everyone, My name is Cathie. I was diagnosed with crest 5 weeks ago. The results of tests are still ongoing. I am a single mother and full of anxiety for...

Hi everyone, My name is Cathie. I was diagnosed with crest 5 weeks ago. The res...

catkar

•6 years ago

20 Replies

Scars in systemic sclerosis

Hi all. I have had scars on my forearms which look like little burns. They have been there a couple of years, however some of the scars on my right arm seem to...

Hi all. I have had scars on my forearms which look like little burns. They have ...

Sylviaherring

•6 years ago

9 Replies

Sjögren syndrome & Scleroderma ?

Hey guys so, I had a follow up appointment with my ophthalmologist on Friday and he said that my disease is now attacking the tear glands and he can see lots...

Hey guys so, I had a follow up appointment with my ophthalmologist on Friday an...

JazPont

•6 years ago

2 Replies

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Reoccurring, extremely painful sore throat.

Hello 👋 Diagnosed with limited cutaneous systemic sclerosis February 17, but suffered awful Raynauds for 11-13 years. Whenever I pick up a virus, colds and...

Hello 👋 Diagnosed with limited cutaneous systemic sclerosis February 17, but s...

-missymoo

•6 years ago

1 Reply

Nails falling apart...

Hi everyone I’ve always had really nice nails and it’s been one of the few parts of my body I actually liked! I’ve always looked after them too But over the...

Hi everyone I’ve always had really nice nails and it’s been one of the few part...

Croft1987

•6 years ago

2 Replies

One for the men

Do any of the men with this condition suffer with erectile dysfunction? I’m taking sindenafill (viagra) on a daily basis. So finding it doesn’t work for E.D...

Do any of the men with this condition suffer with erectile dysfunction? I’m taki...

meders

•6 years ago

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Quitting Fluoxetine (prozac)

I find the thought of the amounts of medications I am supposed to take for my severe Raynauds with SSc rather sickening. Especially as we might not even be...

I find the thought of the amounts of medications I am supposed to take for my se...

hunkyd0ry

•6 years ago

7 Replies

How much did you consider the direct connection of your condition with your diet?

Hi all, I would like to start a debate on the following subject: How much did you consider the direct connection of your condition with your diet? Have you...

Hi all, I would like to start a debate on the following subject: How much did yo...

hunkyd0ry

•6 years ago

5 Replies

Scleroderma with sore mouth rash

I had a sore rash in my mouth to were every thing I would eat or drink would burn. My Rheumatology doctor at Cleveland clinic referred me to infection...

I had a sore rash in my mouth to were every thing I would eat or drink would bur...

23Whitehorse

•6 years ago

1 Reply

Links ?

Always had blue & white fingers in cold as a child relieved with piriton.Then I got it again after MI - cardiac & realised ,when read inserts to meds which...

Always had blue & white fingers in cold as a child relieved with piriton.Then I ...

skybluepink

•6 years ago

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Booster injections

Hi I am currently taking mycophenolate but have been advised to stop it for at least 2 weeks as i am going abroad in 3 weeks and having booster injections next...

Hi I am currently taking mycophenolate but have been advised to stop it for at l...

NSV69

•6 years ago

8 Replies

New to this community.

Diagnosed with Limited Scleroderma, only by accident, approximately 3 years ago and have had Raynaud’s for about the past 30 years.

Diagnosed with Limited Scleroderma, only by accident, approximately 3 years ago ...

dholland29

•6 years ago

7 Replies

A BIG THANK YOU

Hi everybody, thank you to everyone that replied to my previous post. You will be happy to know that today my body is no longer reminding me that I fell over...

Hi everybody, thank you to everyone that replied to my previous post. You will b...

fairy56

•6 years ago

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My first broken heart 💔

Hey guys! I’ve had my Holter monitor rigged up. I have to wear it for 4 days, see what’s going on with the little ticker. Recap - since becoming sick 4...

Hey guys! I’ve had my Holter monitor rigged up. I have to wear it for 4 days, s...

JazPont

•6 years ago

4 Replies

Electric shock type pain.charcot marie tooth

Hi I'm diagnosed as having chariot marie tooth disease and peripheral neuropathy. I suffer terrible electric shock type pains when resting or in bed. These...

Hi I'm diagnosed as having chariot marie tooth disease and peripheral neuropathy...

Maz1961

•6 years ago

1 Reply

This thing called systemic sclerosis!

Hi everybody, just logged on to the sruk site, and read all the posts. It truly is amazing that most of the posts mention lots of the irritating things that i...

Hi everybody, just logged on to the sruk site, and read all the posts. It truly ...

fairy56

•6 years ago

7 Replies

Frances18

I have raynaurds at Christmas my hands and legs bloated up very painful someone mentioned about getting my heart checked out is that right x

I have raynaurds at Christmas my hands and legs bloated up very painful someone...

Frances18

•6 years ago

4 Replies

Hurt fingers...

Hello I’m charliegirl as I get older I swear things that never bothered me is now bothering me smh I have these like paper cuts on 7 of my fingers and they...

Hello I’m charliegirl as I get older I swear things that never bothered me is no...

Hidden

•6 years ago

5 Replies

Leg pain after Iloprost?

Hi all, I have had a week of Iloprost infusions at the beginning of January. Besides some headaches and a little bit of nausea I handled it fairly well and...

Hi all, I have had a week of Iloprost infusions at the beginning of January. Bes...

hunkyd0ry

•6 years ago

1 Reply

F

Pennypetra

•6 years ago

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Fatigue

Hi everyone. I have systemic sclerosis and raynauds. I kno it’s been cold this week and my fingers are really bad but I have felt so tired this week. Usually I...

Hi everyone. I have systemic sclerosis and raynauds. I kno it’s been cold this w...

Pennypetra

•6 years ago

21 Replies

Cold gumbs and raynauds

Hello fellow raynauds sufferers. It's relatively new to me but dies anyone else suffer from cold eyeballs and gums along with hands and feet ?

Hello fellow raynauds sufferers. It's relatively new to me but dies anyone else ...

Sylviaherring

•6 years ago

4 Replies

Holiday insurance

Can anyone advise on reasonably priced holiday insurance for European holiday. I have systemic sclerosis, Sjögren's and raynauds.

Can anyone advise on reasonably priced holiday insurance for European holiday. I...

maur60

•6 years ago

6 Replies

Is anyone a Carer

Would be nice to speak to someone who's caring for some one just to hear ur story? How you cope .... ? Thank u xxx

Would be nice to speak to someone who's caring for some one just to hear ur stor...

Kc_1411

•6 years ago

4 Replies

Reflux and choking

Today I had a reflux attack and was really choking, luckily I had my family with me and eventually managed to breathe. Begs the question what do you do if you...

Today I had a reflux attack and was really choking, luckily I had my family with...

nomadscot

•6 years ago

2 Replies

Profile

How do i change my profile name?

NSV69

•6 years ago

4 Replies

Upper back pain

Hi Anyone help? I have scleroderma which includes lung involement & Raynaud’s and currently take cellcept. I recently had the awful virus which lasted about 5...

Hi Anyone help? I have scleroderma which includes lung involement & Raynaud’s an...

NSV69

•6 years ago

11 Replies

Systemic sclerosis and cramp

I have been recently been diagnosed with systemic sclerosis and secondary raynauds but currently am fit and active. However the last couple of weeks I get...

I have been recently been diagnosed with systemic sclerosis and secondary raynau...

Sylviaherring

•6 years ago

2 Replies

Itchy neck no rash.

I've had an itchy neck for 4 months. Have tried all types of cream but skin is not dry. Dr. is mystified. Taking Levothyrixine and have changed back to an old...

I've had an itchy neck for 4 months. Have tried all types of cream but skin is ...

jackdaw50

•6 years ago

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Worried

Hi I have had limited systemic sclerosis and so overlaps for a few years. I’m under a local rheumatologist and the royal free. I’ve never had any difficulty...

Hi I have had limited systemic sclerosis and so overlaps for a few years. I’m un...

Sami13

•6 years ago

5 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for February 2018

Help with crest symptoms

Scars in systemic sclerosis

Sjögren syndrome & Scleroderma ?

Reoccurring, extremely painful sore throat.

Nails falling apart...

One for the men

Quitting Fluoxetine (prozac)

How much did you consider the direct connection of your condition with your diet?

Scleroderma with sore mouth rash

Links ?

Booster injections

New to this community.

A BIG THANK YOU

My first broken heart 💔

Electric shock type pain.charcot marie tooth

This thing called systemic sclerosis!

Frances18

Hurt fingers...

Leg pain after Iloprost?

F

Fatigue

Cold gumbs and raynauds

Holiday insurance

Is anyone a Carer

Reflux and choking

Profile

Upper back pain

Systemic sclerosis and cramp

Itchy neck no rash.

Worried

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