Always had blue & white fingers in cold as a child relieved with piriton.Then I got it again after MI - cardiac & realised ,when read inserts to meds which hadn't been given with dosset box, that the side effects of simvastatin was pins & needles.The GP had diagnosed this as Raynauds yet when changed the statin to another have never have had again .
I now don't take more than 5 meds at a time & have then space through the day .I too have had PAH not found not on normal tests, but on Reveal device only revealing that .I believe this points to the Microvascular again .
Regarding oxygen I have had classic heart failure symptoms ignored before & after MI .One being dyspnoea resulting in my function being very restricted to mobility scooter/WAVs & now rollators.
I have only been given diuretics which reduce the bloating but very restricting .I have a lot of infections & fibromyalgia dependent on antibiotics .If not adapted can cause spasticity as know connected to sepsis & utis
As the NHS ignores chronic conditions & multi symptons with underlying disability , I have had to research for myself , as often acute. I came across MS therapy centres for various therapies.They will take on other conditions but you have to pay too.One of which haven't got to yet is the Oxygen Chamber .
When I consider the name with scleradoma could there be a connection with Multiple Sclerosis which don't have ?
Reflux and heartburn
Restless legs?
Summer temperature reactions
Raynauds breast pain
Domperidone and hydroxychloroquine
