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Scleroderma & Raynaud's UK (SRUK)

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Cold gumbs and raynauds

Sylviaherring profile image
4 Replies

Hello fellow raynauds sufferers. It's relatively new to me but dies anyone else suffer from cold eyeballs and gums along with hands and feet ?

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Sylviaherring
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4 Replies
kel55 profile image
kel55

Hi the vast majority just get Raynauds in their hands Some get it in their extrematies (bits that stick out) and there are the odd few get it everywhere! im one of the odd few it maybe that your in this group aswell? it maybe a sign of other things (maybe)! You know that Raynaudsis a form of MicroVascular disease well investigate this and see if it fits you may then join another group

Sylviaherring profile image
Sylviaherring in reply to kel55

Thanks kel55. I have secondary raynauds with systemic sclerosis. I started with it in my hands a couple of years ago but got it in my hands and feet last year. This year it appears to be hands, feet and gums and inside of top lip. Didn't even know it was possible!!

kel55 profile image
kel55 in reply to Sylviaherring

Raynauds is when the vascular systems spasms ie it closes or pinches and cuts off or reduces blood flow to anything down stream hence going white and cold in that area. Its a diferent cold isnt it! l get it across my abdomem. True migraines are a form of Microvascular disease aswell. do you have any problems with other organs?

Sylviaherring profile image
Sylviaherring

Hi kel. Not that I've noticed! Just hands, feet, gums and eyes !! Although my breasts were a nice shade of yellow in the bath the other day !

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